Bax5454

Just checking in to see how your Mom is....This story is so close to what has happened with my Mom...Just stay strong!

Hi,

If you feel like something is missing - ask for it and get it done.
I always keep my medical records with me and learn what they mean.
If you are have a lot of documents you can use an app - I use a really good ipad app called Hello Doctor http://goo.gl/qoxG1j
It's free and super simple to use, try it.

Good luck!

Hello bax 5454,

Just wanted to check in and see how you and your mom are doing?

Jane

Good luck to you and your mom.

Just wanted to check in and see how things are progressing. And how you are holding up. Thinking good thoughts for you.

Jane

Hello, sorry you are here.

Catch up on reading fast.. Go to the lung cancer alliance and find out the lung cancer experts in your area.. Watch the Bonnie j. Addario webinars and go to cancer grace and read some of the material there. Also visit cancer commons to learn more abt. mutation testing. good luck

Your mothers oncologist should test her cancer (using biopsy tissue) for at least the most common genetic mutations and rearangements. ALK, EGFR are the most common. There are effective treatments for these. I believe there is a testing panel for about 40 mutations now, but see what the onc says. If he/she doesn't know what you are talking about, you will want to get to a regional cancer center and consult with a Thoracic Oncologist asap (I would do this anyway for a second opinion on treatment). Call her onc and ask if they have sent the sample tissues for testing yet.

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/lung-cancer
There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

You may also find our "Beginner's Guide To Cancer" page helpful Click Here for that=> http://bit.ly/10BQKCi Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

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GregP 3X Survivor
Team WhatNext Community Mgr.

I am very sorry to hear about your mother. Please know my prayers are with you. Remember this if it turns out to be cancer: people's lives are saved even after cancer metasticizes. (Spreads)

Brain clear and all else clear. Thank God. Doctors work miracles these days.

Hi there. You were just diagnosed? Well I had breast cancer 12 yrs ago and used to smoke. I had a cat scan done on my abdomin the other day and they saw a 13mm(?) nodule on my right lung so now are scheduling me for a full lung cat scan. Think with my history my chances are pretty high. Had you had cancer before, have you ever been a smoker?

welcome to WhatNext. I'm sorry you needed to find us, but now that you are here you will find the greatest bunch of supportive people whose combined knowledge is awesome. We can answer your questions, hear you vent and celebrate good news with you.

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter