sue57

Hello @sue57. I have another friend, originally from whatnext, who is also alfa-gol (SP?) . She was bitten by a bad tick. Is that what happened to you? Best wishes

Hello @sue57. I have another friend, originally from whatnext, who is also alfa-gol (SP?) . She was bitten by a bad tick. Is that what happened to you? Interestingly enough, she also had the same type of cancer. Best wishes

Thanks so much for the wristband! It's lovely!

Do u still have bracelets

Thanks for flagging the two nut jobs that were trying to sell their "miracle cures", I appreciate the heads up, I had not seen those two yet.
We hope you're doing well, and thanks for being with us!

My radiology gave me samples of Xclair for my burn. I had tried many OTC products that really did not help much but the Xclair cream did. It is a prescription and insurance did not cover it but it was less expensive in the long run than the OTC stuff I bought and did not use since (my burn was in my intergluteal cleft- butt crack- and genital area and was very uncomfortable).

There are new possibilities to check out

I had a massage today. My friend went to take off the bracelet and I asked her to read it and, when she did, she laughed and laughed and laughed. You did a very good thing. She also agreed with me that your colors are much better than various shades of beige and brown.

Catching up a bit before bed -- I noticed a post between Uranus and yourself discussing ahcc? I'm unfamiliar with it.
I was researching liver cleansing today and milk thistle is preferred but because of it's estrogen it's not a good option for someone w ovarian or breast cancer chances . My Mom died a year ago of ovarian cancer and I have 6 Aunts with breast cancer. No milk thistle for me.

Sue, I just read that the reason they don't normally do the sphrinchterectimy on anal cancer patients is because the radiation leaves the anal tissue thin and delicate after treatment which may result in the surgery being difficult to heal in addition to the fissures. Well heck, I wonder if my doctor wasn't aware of this? In any event, it sounds like this surgery is going to take much longer than two weeks to heal if at all. So I bet that is why your doctor advised against the surgery for now.

Thank you.

Hello, the bracelet arrived. I've decided, lol, that I'm a Champion not just a survivor. It is pretty colored. No one has asked me about it as of yet.

The recovery is going well. Still no pain. But I need to have a colonoscopy done to see if there is damage to my colon from the radiation. Still getting that mucus and more often. I have to wait until the end of November to see my new Primary Care Manager to get a referral. It's weird but my arthritis seems to have gotten worse too - feet hard to walk on in the mornings and after sitting. Once I get up and move the stiffness goes away though. I've been doing over a mile a day on the treadmill and the walking 2 days a week with a friend. So overall, life is good!

I will have to look up the study for the AHCC - would be interesting to contact that lady and see what she says.

Hi sue57, i hope every thing is ok with you. Just saying hallo. And hoping you are better.

Hi sue57, hope u your oxygen treatment is going well and wish u a happy october.

Oh Sue, I forgot to tell you that after the first month I quit taking the AHCC. Soon after starting the second month the pills staeted making me nauseaous. I stopped then started again to be sure it was the AHCC and it was . Did you end up starting yours again and if so, how did you do on them?

Hi sue57, usually i don't take softeners very often. I drink a lot of herbs such as funnel and anise. It helps relaxing the digestive system. I have never taken vitamin supplement because some how i don't believe in them .I know how hard it is to feel crippled and confused some times, but our gurney demands us to change courses.i hope one day u will be able to go golfing and enjoy the beach but cheer your self up because u have survived the worst .I wish u the best in every step u take. .

Hi sue 57, i have been taken Strong painkiller Tramadol. I usually take 100mg in the morning with or without ibuprofen. It relieves the pain after couple of hours and makes it manageable.If the pain is severe, i take 200mg if necessary. I fully understand your pain because i share it with u and the only thing that keeps me going is believing that tomorrow will always be better. I hope the new treatment works well for u and best wishes to keep u safe and pain free.

Hi sue57, I have avoided the colostomy as well I have just ' finished a rectoscopy procedure few days ago to check whether there is a need for surgery or not. The tumor was also in the anal area . The surgeon told me the surgery will make the pain worse .
The radiation treatment is the cause of the pain and if i can manage the pain through other methods such as choosing the right food and suitable activities , things might improved . Hope u the best luck in the world and keep up the good spirit .

Hi sue57, what i meant is that the tumor was about one inch above the anal area.

Hey poop sister,
I read your post. I begin my treatment on Monday, June 16. All of you there have been so informative in this secret society.

Hi Sue. What is oxygen treatment for?

Hi Sue,
Just checking in to see how you're doing. Been thinking about you. Did you start the oxygen treatment yet?

Sue, I have question about HPV, if screened for that in pap smears and it comes back negative can it be present somewhere else in the body? I had those screenings with my paps and they came back negative for that then I get diagnosed with this. I have read of the correlation and now wonder if it doesn't show up in pap can it be present somewhere else?

Hello sue7; I have been mulling over whether to write to you because I was very bothered by something you wrote regarding hpv. "We all have been taught to wipe front to back, so this is my suspicion of how it was transferred as well."

In truth, what you wrote so disturbed me that I spoke with two professionals about it. If this is the conclusion you have reached, you really need to rethink your wiping habits. Urinary discharge is not meant to be wiped up to the rectum any more than the other way round. In other words, use a separate bit of toilet paper to address each end of you. The direction of a wipe does not mean that the same bits of tissue are to be used on both ends.

I can 100% assure you that I do not have such habits as you mentioned and that the cancer I had and which was routed did not get onto me from such a circumstance.

Best wishes for a complete recovery.

GmSue57.Im a survivor i was told on Jan 7th,2014 that the cancer is gone...The problems your having regarding painful bowel movements is normal.I went thru the same thing and still i get pain when i have a bowel movement.I finished treatment in Nov22,2013 was my last radiation treatment.And i have been on the mend.I will say that it does get better.The pain eventually subsides.I was taken out of work in August of 2013 and still havent returned back.I was told that they will release me in March2014.I still have problems holding my bowels.When i have to go i have to go I was told that its normal but when i go to see him in April and im still having bowel issues we will look at that then.But its a healing process that takes time to mend.I walk or just keep busy when im having those problems.It comes and goes so just know that it will get better and the pain does ease up some as you begin to heal.I was told not to push when having to go.So i just chill when im in there and let it just happen and it does seem to help.If your tense it does tend to make it harder on your bum...Good luck i hope this does give you some comfort or answers your question.

Hi Sue, my name is Sue also. I'd like you to know I was stage111B anal cancer and also spread to my lymph node which was removed, the wonderful news is that I have been cancer free for 6 years next month. I have never regained energy and have alot of nerve damage from 9 weeks of radiation which today I don't know how I did it. I had a port and had one week of chemo pumped 24hrs a day for 5 days which I lived in the hospital for one month and a half after that. I did not do my second session of chemo and I am here today due to alot of prayers and beliefs and a whole lot of will. My thoughts are with you.

Sue, thank you for your response to my question. Please let me know what you find out. Good luck.

xxx-butt

Hi, Just checking in which I do infrequently and read through your posts. I think everything you've been through is pretty normal considering the treatment. I too had my hair thin to the point where I shaved but was lucky that my tx was over the winter. I wore alot of cute hats people gave me, knitted for me and even knitted one myself that I still wear on occasion. I had mega mouth sores from the chemo, diarrhea the last few weeks and before the end of radiation and for a few weeks after. Urine leakage and getting up 5 times a night for a while was pretty routine but I fell right back to sleep! Thats one thing I don't suffer since going through (not being able to sleep). Anyway, it all does get better, I am 2 1/2 years out now and maybe get up once in the night.
I developed hypothyroidism (I think as result of the therapy) that was discovered at my last visit a few weeks ago and my naturopath put me on a very low dose of synthroid which is helping with the tiredness I have been feeling. I still don't feel as though I have the mental sharpness I had before all of this and reading at night lasts about 15 minutes. But, am alive and enjoying all my previous activities, just maybe at a lighter pace. So instead of running 5 miles or more I walk and jog 4, I guess not too bad for a soon to be 60 year old. Hang in there.