marybeth

Hi there! Saw a post you made several months ago about anti-nauseaus and was wondering, I'm in the same boat you were, didn't feel sick after chemo for 3-4 days. When did you start the zofran, right after chemo or did you wait a few days then start it? Thanks.

Hi Marybeth just checking to see how you are doing. Hope things are going as best as can be. Cyndy

Well you have had your last chemo and have you started your radiation yet? Don't they normally wait 3 wks between treatments? Well, hope this finds you in good spirits and pain free.

Hi Marybeth, I saw that you developed a skin rash from the dose dense infusions of AC~I did as well along with peeling feet and eyelids. I also developed the arthritis feelings in my hands and wrists and hip area. I haven't noticed anyone else with those symptoms so thanks for sharing. I hope you are doing well with the taxol. I just finished and am getting ready for surgery. best wishes. Cyndy

I notice that you have not posted for about a month...hope all is OK with you and that you are managing chemo with better results than earlier...if you get a moment please let us know how you are...we all care. (((Hugs)))

I have been on Arimidex for 2 and 1/2 years and have joint pain mostly in fingers and wrists helped by moist heat and finger exercises from the Mayo clinic for arthritis sufferers...at my age, almost 68, I often wonder how much of this pain is actually arthritis vs. side effect of AI...all AIs have side effects but we are all different and respond differently to the same meds. Hope his helps. Good luck!

Hi Marybeth, I did the same chemo about 3 years ago. I had a big problem with nausea and Compazine and Ativan (after Emend wore off) never really resolved the issue. 8 weeks in, I saw a PA that said that was unacceptable and put me on Zofran every 8 hours. It made a huge difference and I weaned myself off of it about 2 weeks after Taxol was done. See if you can get Metanx to prevent neuropathy from Taxol. I felt better with each dose of Taxol, but the AC was tough. Remember to use Claritin, (generic OK) to prevent bone pain after Neulasta. I went on it with the 1st chemo and stayed on it all during treatment (with permission)because my eyes watered making my nose run. Chemo is tough but doable, lots of fatigue. I'm 3 years out and things are good. I have some neuropathy in my feet(much improved) and mild lymphedema in one arm, but they are just putzy inconveniences. So glad to be back to a new normal.Hang in there, be well. jojo2

Hi Marybeth I just wanted to ck in with you to see how you are doing....I was curious did the Dr. say how many treatments you need with the Chemo? Please keep in touch !! You and I have alot in common with our diagnoses so maybe we can lean on each....Take care and hope to hear from you soon...Amy

Hi Marybeth!. You asked if you should do Chemo. Here's my answer! I was diagnosed with Stage IV Ovarian Cancer. The Gynecologic Oncologist Surgeon removed a 39 lb. tumor and my ovaries, I'd had the uterus removed in a hysterectomy about 20 years before. Then after fighting off a MRSA infection, I began a series of six cycles of three infusions of some pretty heavy chemo. I won't say it was a breeze, but I will say it was nothing at all like the movies portray it to be. I was 62 at DX and I made it through.. With meds and doing what the doctor said and with God holding one hand and guiding me.... my fabulous Doctor and the clinic staff cheering me on it was completely doable... No problem. When I'd completed these cycles..my hair started coming in again, my fingers and feet were numb, but all in all I was feeling good. At my one month off the juice doctor visit he hit me with the next offer of help. He told me that great results for this nasty cancer's treatment had been seen in taking 'the strong stuff' once a month for a year. Thus 12 more infusions. Now unconsciously I reached for my hair. He said "Yes,My hair would fall out again... etc. He said if I was his mother he'd make me do it... I chose to do it. You see my husband and I have 8 children, my three sons and his two sons and three daughters. They have given us 17 grandchildren (at that time - now 20).. Then those grand children two years ago gave us two great grandchildren... I WANTED TO LIVE and be part of their lives. I had told my doctor I wanted to fight!!!! and Fight we did. Now 7 + years later my fingers are still numb, but I'm typing this... my feet are still numb and I have the coolest eagle headed cane for when my husband's hand is too far away. We've traveled to places I wanted to see (by car) I don't fly... it scares me. However chemo, I see it as God's gift to those of us with cancer. He doesn't say it's easy, but it's not hard!... When you weigh being very tired against possibly dying. Tired wins every time in my book.

Welcome to the site. I think that you will find it very helpful to you in a lot of ways. Everyone here has suffered cancer in some form or another and can give you their experiences should you have any questions. No question is to silly or dumb on this site. So don't be afraid to ask them. Everyone here is very friendly and helpful. This is a place for you to come when you need to vent or sound off because you are angry or frustrated. We have all been there and we are here to listen and encourage when needed.

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/breast-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

You may also find our "Beginner's Guide To Cancer" page helpful Click Here for that=> http://bit.ly/10BQKCi

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter