hippgolovchen

Hi. I don't navigate the site well. Can you post on update. I'm 5 1/2 yrs out with MBC. I know each person is different, but wondered how you were doing.

Thank you! Thank you! I have a biopsy tomorrow and am in full on blues which I hate. Your update yanked me right up to my original thoughts of it's going to be a while And I can be fairly normal. I know that anything can happen but I prefer to think ahead and plan on positives You helped me get on track. So again Thank You.

Thanks for responding to my question on side effects while on Letrozole. It does seem that we have much in common, and now that I'm in GA visiting a very good and supportive friend for 3 weeks, I've only had one hot flash. Hope this will continue when I return home. Relaxation and no stress seem to be doing wonders for me! I will turn 62 this month. Would be happy to stay in touch, as we go through this treatment together. Thanks so much for the suggestions.

Oh yea, stay warm!

Was just wondering how your hair was growing in. Dark, gray, curly, straight? It must feel wonderful. However, I am kinda liking this no shave regimen. Not all of it has left but soon I would imagine. Thanks for the follow, hope I can be of some help down the road but you are ahead of me so I will follow you also. Thanks for all your info.

Hi Hippglovchen,
By now you are in Israel on your wonderful trip! And I can't keep track of anything...I just saw your post on my wall and you posted it 12 days ago, they don't seem to send notices when there are things posted and I always forget to look! Anyway I hope that you are having a wonderful, fantastic, fun trip!!!! I will think of you floating in the dead sea, how incredible that would be. It is a long way off but I am really looking forward to my trip to Hawaii, I'm going to spend a whole month with my friend who lives there...and we were on the phone yesterday planning it! I am chickening out on my knowledge is power idea myself, having my next PET on October 15th, and needless to say I am worrying! My tumor counts have been going up so my oncologist will probably have to increase the Xeloda ( chemo pills ) but that is OK, I have been on stronger doses before. I hope that you get to stay on Femara! I did get some good news yesterday, my social worker called to tell me that I was nominated for some sort of cancer fighter award, so I get to go to some big deal cancer event in January and accept this award. Hope they have good food! and hey, maybe I will get a free t-shirt? ;-) but I am kind of excited about that, so that is something else to look forward to. Although honestly I don't feel that I deserve any award for fighting cancer, who wouldn't want to stay alive, life is so wonderful sometimes!
Love and Blessings! xoxoxoxoxoxo

Have a wonderful, safe, and renewing trip...Bon voyage! Check in when you return to tell us about it.

Hi! sorry I have been away, sometimes I have a hard time with computers and I kind of lost my wall with your last comment. darn it how could I lose my wall anyway! ;-) and I was working like crazy on a benefit that my friends were throwing for me, the event was last Sunday and it was really fun and now that it is over I am catching up on stuff. I used to be a professional dancer so we had a ton of entertainers, live musicians, dancers from all over the world. it was super fun and they raised some $ to pay for my medical bills. :-) I love to travel as well and I love other cultures! probably that is why I have been into the ethnic and international dances all my life ( besides ballet of course ) when are you leaving for Israel? I am so excited for you, I have never been there and long to go someday, it would be amazing to be where Jesus actually walked. I love educational trips as well...but because of my financial situation I am only going places where I am invited and have a place to stay. So my next trip is Mexico and then I will spend a month in Hawaii next year. yay! besides that I have nothing else planned but I do have other friends to visit so they better watch out because I will be there eventually! but I tend to love to hang out and lie on a beach somewhere....kind of lazy! and I love to swim! I don't live that far from the beach but the water here in LA is cold and dirty so I only swim in pools around home.
my cancer has definitely slowed me down, but I won't let it stop me. I do have it all over my bones so it is painful, but I have arthritis and that is just as painful sometimes! Your PET scans will show if the cancer is active in bones all over your body, so I would ask your oncologist about that- ask him how far it has spread in your bones, he should know. they also see it by x-rays because my bone oncologist does x-rays every 6 months or so. I love scans but if your insurance company is slow to approve I suggest being a big pest to your oncologist! doctors can force insurance companies to approve things if they push hard enough. but maybe he thinks you are doing alright and it isn't necessary to get more scans? that would be good! but I always like to know exactly what is going in my body so I insist in scans and I am probably repeating myself but knowledge is power, it is always better to know what you are dealing with. massage with fragile bones should be alright but maybe stay away from deep tissue massages, only lighter touch type Swedish massage. but those are great! Hey we can do it, we can live with cancers! even though my cancer is still there, as long as my cancer isn't growing I am alright and I am living my life as best as possible.
love and blessings! xoxoxoxoxoxoxoxo

Thank you for your message. Up in the middle of the night, unable to sleep, and "made my day (night).

Thank you for your post! I'm 55 and I can't remember what it was like to be without pain...it is like carrying a huge weight around all of the time. :-( I have a pain management team helping me with all the bone meds, funny I cracked a few ribs a few days ago so now it hurts to breath again. oh well! I just kept trying everything until I found the right dosage and drugs for myself, it is morphine and dilauid...maybe try something new? sometimes when I change meds I notice an improvement for awhile. But everybody processes these medications differently, I think I have tried about 30 different ones. I'm so sorry that you are going through this, and all the surgery! oh no! they keep talking about doing hip replacements but so far I have avoided it, I don't heal well because of all the chemo. I really feel bad for you, just hang in there and keep trying, glad you are not ready for hospice! It is really amazing what we can tolerate, I never though I would have been able to hang in there so long...but I have and I'm going out with friends tonight, trying to avoid cancer for a few hours. I hope you have a good evening as well. love and blessings! xoxoxoxo

Hello and thank you for your kind words. I am actually in a fairly decent place with all this. It has been two years since my bi-lateral mastectomy, but I had another little surgery in February to remove some troublesome lumps around my scar line. I just found another two days ago. Such a drag! I want my new boobies! LOL
I honestly think that a good attitude helps a lot. I've been through the wringer and am still here. Still laughing. I have a very strong communication with God - direct line - no dogma. Chemo is a bother with all the reactions one gets, but better than dying, same with radiation. I thank God that I am in California and have ghe best treatments in the world for this. Instead of asking why me, perhaps why not me is more valid. We are alll put through trials in this life and it is what we can take away from the experience that has value. I learned that I am truly loved by my husband and kids and that I am very strong and an eternal optimist. I never let the "devil" get into my head and make me angry about it. I am pissed as hell at the English National Health System for failing me, but that is a human thing.

Hi, not too much to add. Worst thing is pain. Fentanyl, morphine, Oramorph for breakthrough, occasional Diclofenac just about makes it tolerable. Also injections every day for blood clots. Hey! I'm still alive that's got to be good.

Hi, hippgolovchen. I see you're new to the web site. You have found a great resource here. There are a lot of really wonderful people on this web site - very kind, helpful, and supportive. I hope you find as much support here as I have. I bet you will. Take care.

Hi I'm so glad u wrote on my wall like I've said before I feel so alone until I get on this site and talk to people who can relate. I dnt have many freinds to talk to much less who would understand. GOD is the cure I feel strong but then I cry and cry. I took femera in te beging(08) Then Tamoxifen. I now am fighting with chemo only new tx the last tx stoped working. but they say thier is alot more diff tx to try I'm not sure how that works but im in it to win. we shouldshare all the time. Thanks

Welcome to the site. I think that you will find this a friendly place to come when you need to sound off or vent from anger. We are all here to listen and help, if we can, because at some point and time in each of our lives we have been in your situation. Please don't be afraid to ask questions either. No question on this site is silly or dumb. We all have questions we would like other opinions on or answers to. There are so many nice people here that it has helped me get through my fears I had when I was DX'd with DCIS. Good luck in the future.

As a stage 4 victim - I always reach out the others - this stage sometimes makes you feel you are alone in it - but you are not. Keep calm and carry on as the saying goes.

It seems when life starts throwing curve balls at you, it doesn't know when to stop. Like you , I had normal mammys (so they said) then the next thing I knew I had mets in bone and liver.
Being a single mother is hard enough when you are well. It must be really really rough when you have this disease. I hope you enjoy your trip with your son. Hugs

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/breast-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

You may also find our "Beginner's Guide To Cancer" page helpful Click Here for that=> http://bit.ly/10BQKCi

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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GregP
3X Survivor
Team WhatNext Community Mgr.

Hello and welcome to this wonderful site filled with wonderful people...please feel free to ask questions, express concerns and vent as needed...also remember to add your voice to ours as others need support and advice...I am glad you and your son plane to travel as those will be memories you both will always have...I try to live my life by the saying "Yesterday is history, tomorrow is a mystery, that is why today is called the present"... Take it one day at a time but enjoy the planning and anticipation that comes with travel...good luck and God bless!

I was recently diagnosed with stage IV breast cancer and it has turned our lives upside down as I'm sure it has yours. I'm finding it more of a challenge than other people had told me it would be. This support group seems to be good though.

Hello. Saw you joined our group and wanted to say welcome. This is a wonderful place to come when you are in the NEED of ...hugs ,sympathetic ears, advise, or just a place to come when you need to vent and know that here you will not be judged because some of us have already been there and understand.

I also am a stage IV . Mine is invasive lobular and Er/Pr+. I was diagnosed last summer. Chose a bilateral mastectomy . Had 6 rounds of ACT. Am now on Arimidex and Zometa.

My onoc and I don't talk of expiration dates. You will find some of our members have gone well past their exit dates. I feel that to subscribe to a check out date more or less locks you in to that time.

Anyway, I am rambling. Welcome again. I am here if you need a shoulder. I usually reach for my iPad with my first cup of coffee and its the last thing I do at night. Usually,up late thanks to Arimidex. Sending cyber hugs your way....Millie

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter