ladyd2013

Hi. You did not go into any detail. Cant blame you. On the forefront, dilators are helpful. Pomegranate oil is healing. Almond oil is less expensive. Both can be used internally.

Otherwise, do kegel exercises until you are exhausted. Black seed oil is soothing. It can be swallowed. To tell you the truth, it was four years until I could use toilet paper again. I still bleed from a radiation scar but not so much. Invest in a bidet.

Best healing wishes.

Just checking in to see how you're doing? ) I hope you have a great week!! Lynne

Hi, just dropped by to find out how you are doing. Sending a hug and hoping to hear from you soon.

ladyd2013, as you can see from the community input you are far from alone . We are all trying to adjust to our own " new normal" as best we can. You mentioned episodes of crying. I had such episodes early on when first diagnosed. I thought I was handling things relatively well when my primary doctor recommended placing me on an antidepressent. My first impulse was to tell him no, but then considered this medication as another weapon in the arsenal to fight this xxx disease. I was really suprised that it did help me. The crying was a thing of the past. I have been on a mild dose of anti depressant now for seventeen months. Think about it and discuss with your doctor if you chose. Always wishing you better days ahead lady. Talk anytime.

I just read your posts and wanted to see how you are doing. I am not experiencing, for the most part, the loss of control. Sometimes the bowels are more urgent but not too bad. My problems are the vaginal canal and the stenosis. Never thought I would be dealing with this to this level! Hope you are doing better. I, too, have the hip and groin pain, and sometimes my hips seem to almost lock up! It does hurt doesn't it??

I know that Xeloda is used to manage a bunch of different types of cancers, sometimes for early stage cancers but usually to manage people like me with late stage cancers, where they are treating it as a chronic illness. I would ask each doctor why are they changing your routine around, are they giving you a break? What is the deal? Maybe you don't need it anymore? That would be great, but sometimes doctors aren't very good at explaining things and you have to kind of pry it out of them! I have breast cancer but there is a woman in my support group with anal cancer, she is stage 2 but she isn't on Xeloda, at least not at this time. My oncologist has given me little breaks from the Xeloda but unfortunately in my case the cancer always starts acting up again when I am off treatment so honestly I don't like to go off of it anymore, it feels more like I am giving the cancer a break than myself when I let it flare up again. Good luck and best wishes with this!!!!

Good morning! Just wanted to say that I hope you are resting up and feeling good!

Good morning! I hope this finds you well. Give the healing time. Don't be surprised be low energy or feeling cruddy. I got home from completing treatment just before Christmas and I just expected to be normal! I didn't, of course, so I just focused on being finished and Christmas!! Thinking about you!

Sorry you have a reason to be here, but welcome! Having read your profile, I can completely relate. Our stories are very similar. I am exactly 1 year ahead of you. Please feel free to ask me anything!

WhatNext is truly a loving, supportive family, without the dysfunction! I am so glad you found us!

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/anal-cancer
There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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GregP 3X Survivor
Team WhatNext Community Mgr.

Hello and welcome to the site! Lots of wonderful and informative people on here just waiting to connect with you. If you have any questions feel free to ask. If you see any conversations that interest you jump right in and join them.

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter