elissa5

Heartiest congratulations.

I am in a FB group called "cannabis oil success stories" which you might like.

Stay well.

Heartiest congratulations.

Stick with what you are doing. I was cancer free for a very long time after leaving a mold infested house and becoming a k nowlegable raw and living food devotee.

I took weird drugs to beat a little giftie of a botched chemotherapy session. It was rough as the drugs were an allergen but I routed the giftie. I fell off my good habits and a spot of cancer developed within a year. Having the spot of cancer excised early next month and struggling to return to my good habits.

Best wishes.

Hey Elissa.....Good For You....There are a few on this and others that really don't like these other views. I was too afraid to do chemo two years ago and turned vegan that day. I juiced for about a year and stopped when my wife started to freak out when she found some old carrot juice on the ceiling....lol I couldn't take the Budwig but take lots of the same supplements. I won't take anymore scans and am still ok. I have a rare indolent form but it can change into more aggressive.....I was stage 4 and nodes lit up in abdomen, spleen, under the arms groin and lots in my neck. Many large ones in my neck and groin are almost gone.....still have a large one behind my head and a few small ones....I believe in this and am hoping for the best....good luck! Barry

Elissa, I would really like to talk with you more about the wheatgrass and the cannabis oil, but off this site. Could you email me at fishercathy45@yahoo.com?

I didn't realize how similar we were in diagnosis. What has your treatment been like? I had three liver resections, a Whipple, a lung surgery, radiation and am now on an oral chemo.

Happy New Year Elissa: just checking in with some fellow PNET folks. How are you? I just got an Ultimate pro Ninja Blender- made me think of you and your diet regimne! You still juicing, flax oil etc? I've tried the flax & cottage cheese...yuck! Do you add stuff to make it taste better??

Elissa…how did your doctors find out or realize that you had blood clots? I am curious because I already have poor circulation so how would I know if its from the clots? Thank you for your responses.

Where do you get the cannabis oil?
Does it seem to help?
Florida is getting it soon but not sure if it is even the best kind.
Good Luck!
Barry

How do I find the facebook site for whipple warriors? Hope, your doing well.

I have pancreatic neuroendocrine as well with mets to liver. I had liver resection a year ago and they can't find the primary tumor yet. Is chemo your first therapy? What was your ki67 level? Who are you seeing for oncologist/expert? There is a large group of pancreatic neuroendocrine patients on yahoo group and on ACOR. Org. You may already be aware of that, but those have been great resources for me in helping to decide what next. I live in Connecticut but am seeing Dr Warner at Mt Sinai in NY next week for consultation. I hope that you are feeling better.

Celebration (Breakthrough): VERY VERY HAPPY NEWS FOR ALL CANCER PATIENTS.
CANCER HAS BEATEN.INDIA'S HISTORICAL LIVING LEGEND WHO SAVED TAMILNADU FROM famine on 2009, 2010, 2013 WITH HIS GAME (THINK HOW)has OBTAINED CANCER MEDICINE DIRECTLY FROM LORD SHIVA SUPREME OF ALL GODS FOR HIS STRUGGLES

Hello elissa5,
How are you today?
My husband's CA 19-9 is rising. We have to wait until the end of treatment (end September) to have a scan to know what is going on.

Hi elissa5,
Welcome to WhatNext.
I am the caregiver for my husband (77, pc adenocarcinoma stage IV).
I read your post about supplements. How do you use turmeric? Several friends told me about it this week.
How old are your children?
My positive thoughts and prayers are with you and your family.

Hi elissa, yes I could take 2 ambien if the Dr. would give me 60 pills a month,but she won't.
I could try a different drug,but I have been taking ambien for awhile now and I like it,so I really don't want to change. I don't know if this is a new law or just a recommendation from the FDA. My onc had no problem giving me 10 mg so, maybe I'll ask him about it. I hope you're feeling well and have a peaceful weekend. Zoe

Hi Elisa, Welcome to our group. You are not alone and we are all here for you. This is a great place to be. I found warm hearted people here with lots information, experiences, strengths & hope. We as 'Survivors' can offer our own medical and emotional journey and with this tool, can share them with the many members of the group. Keep strong and stay positive.

Good morning Elissa- so sorry to read that you've got cancer! Do you know where the primary is? Mine is pancreatic w/liver mets stg 4. It sounds like you have been to a lot of doctors! I live in the Atlanta area , get Sandostatin shots here, and go to Moffitt with dr. Strosberg each few months... He's the specialist and 'lead' dr. I've found that it is a MUST to have a top specialist monitor your case!
Regular oncologist are not very clued in on the neuro endocrine stuff. It's too rare... So. Their experience is too limited. On this site you will find names of those who are the best!
While a cancer diagnosis can feel very isolating, you will see on here that you are not alone! Have you checked out Zebra Zone? PanCan action network, carcinoid foundation, etc... There are a lot of sites!
I also attempt to supplement my medical care with nutrition etc... Have you read about turmeric? I try to drink the wheatgrass...but yuck! Not easy for me! Do you have any recipes that make it easier?
I hope you are not in pain! I hope the very best for you as you take this journey! I find that being very intentional about positive thoughts, prayers, and actions helps!
Blessings!

In addition to my welcome post, here is a video interview I done last week with one of our Whatnexters on surviving pancreatic cancer. https://www.whatnext.com/blog/posts/12-year-survivor-of-stage-iv-pancreatic-cancer-tells-story

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/pancreatic-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

You may also find our "Beginner's Guide To Cancer" page helpful Click Here for that=> http://bit.ly/10BQKCi

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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GregP
3X Survivor
Team WhatNext Community Mgr.

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter