chrissy-100571

Hi Chrissy. Wondering how you are doing? It has been a while.

Dear Chrissy, I believe in miracles and I am sending good vibrations your way.

I pray for your peace and comfort may GOD bless you

Chrissy,
I am an oncology/end of life nurse and if you have questions regarding palliative and hospice. I can answer those questions for you. Carm RN.

Hugs, I am so sorry to hear your news. For some reason many people in the medical profession are still afraid that too much pain killer will make people receiving palliative and don't prescribe enough to help. Speak your team ASAP your comfort and quality of life is the most important thing they can do for you now.

Hi Chrissy, just wanted to touch base with you and see how things are going. Hope you are surviving the heat I know it's hot as h#$& here in Mesa.

Your comfort is the most important thing and your doctors need to be on top of this!!!! insist !!

Chrissy, I'm sorry for not responding sooner. Prophylactic cranial irradiation (PCI)is a preventative radiation therapy to the head to kill cells that may have already spread there, but are unable to be seen yet with scans. PCI is used most commonly with small cell lung cancers that have responded to initial treatment with chemotherapy and radiation therapy.
The Phoenix area has several excellant cancer centers. I am going to Ironwood.

Chrisy have they done slow radiation on your brain to stop the smaal cell from getting there yet? i start that in april 14th and my doc said it will sop it from ever getting to my brain.

Chrissy,
If I understand your journey, then I am to assume you are EGFR+. It is hard to answer your question regarding what is next because I do not know which therapies you are/were on, and if any were targeted therapies. I also do not know your history, and history is important with adenocarcinoma. Adenocarcinoma is actually referred to as "scar carcinoma" because often patients who have it tend to have scarring from an associated history of pulmonary diseases like interstitial pneumonia, rheumatoid arthritis, sarcoidosis, etc. It is believed that adenocarcinoma results from the long-standing insult of an underlying disease. There are actually many new targeted therapies to combat EGFR signals and, I should think it is just a matter of finding the right one that works for you. If you have any questions that you feel I can help you with, do not hesitate to ask. I am always around. Good luck, Carm RN.

I have hd sisplatin and etopiside for the first 4 and it was gone all but a dark spot in my left lung, then carboplatin on 5th round. but yes the back pain is horrific, i had back pain b4 but not like this. going to see rtopedidic in april cant wait.

Hello and welcome, we are glad to have you with us. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, any questions you may have just post them in the questions tab and everyone will see them there and be able to help you.

https://www.whatnext.com/conditions/cancer/lung-mesothelioma

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

Also, if you can take a few minutes and fill in some details of your journey so far, ite will haelp others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves.

Thanks for being with us and let me know if I can help you find any information on the site.

Greg P
3x survivor
Team WhatNext

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Team WhatNext