ROSEMARY-142131

Activity

  • ajeanWV63
    Rosemary, thanks for your recent post to my comments. Yes I actually never put it totally out of my mind that ovarian cancer would again pay me an ugly visit. I did not want to live in a fool's paradise and not suspect the possibility or be unprepared for the initial shock or reoccurence.
    As we are the same age and same staging 3c the journey is a lot similar. It is really tough to fight this thing not having the youth thing as an asset. But we do have the mature resolve and experience to focus on the important. I am trying to do a very strict diet that is as nourishing and supportive as possible to help my body fight this thing. I am currently adding ABM Mushroom along with the healthy diet to the regimen of tools I am using. I did a lot of research on it first, and checked out the human trials done so far. I did this not using companies that made their claims to sell the product only. Since I have a mass on the dome of my bladder I need to shrink this thing before it invades the bladder. I am hoping the chemo and ABM together which also has tumor shinking evidence and also excellent immune building results will get together and help me avoid doing the possible operation I may face if chemo alone doesn't stop this thing. I had high grade form of cancer, first time around, and understand your cancer type cannot change. I am concerned about if it is growing or not but have no signs like blood in urine,pain during urination, fevers, just a little bloating. It is such a big crazy mystery. I was in excellent health other than arthritis when this thing took over my life. I am now eating a much better diet, and trying to stay positive on everything. I know a lot of people are wary and scared of adding other things to their chemos and I would say tell your doctor about what you want to do first of course to help with the side effects and progress of the chemo within your body.
    all my best, and I would like to follow your progress as well through our journies. Jean
    October 2013
  • bjhorine
    I am following in your footsteps. I feel like I am outside my body and talking about someone else. Whee, what a journey we are facing. Good luck..Your info has helped me .
    November 2014
  • Lynne-I-Am
    Thank you Rosemary.You have been so helpful .You told me when I joined this site I could do it. That meant everything. Hope you are still doing well. Will always keep in touch.
    March 2014
  • cam32505
    I like to hear inspiring stories, as it keeps me upbeat. I worked with a lady who had both breast and ovarian cancer at the same time. She was treated for both (at the same hospital I am treated), and she has survived both for over 13 years.
    January 2014
  • Lynne-I-Am
    Going into surgery on Wed or Thursday. Scared but know this is a necessary step forward.
    November 2013
  • Lynne-I-Am
    Rosemary, you sound like my twin, hope we can communicate on a regular basis.
    November 2013
  • Lynne-I-Am
    Will keep you informed for sure.
    November 2013
  • Lynneheinze
    Rosemary, my husband is really trying to help me to communicate with others in the same circumstances I found myself in just three months ago. I do feel this will help . I have a ct scan on Nov. 5 th then will be scheduled for surgery. Everyone is very supportive but they are not experiencing what I am. Glad to talk anytime.
    October 2013
  • Lynneheinze
    Rosemary, would it be possible to send her an email msg? I think she would feel more comfortable that way.
    Lynneh1946
    At
    Yahoo
    Dot
    Com

    Thanks, Paul
    October 2013
  • Lynneheinze
    Rosemary my wife, Lynne, was diagnosed with stage 3c in August and has completed two cycles (3 weeks per cycle) of chemo and if next week's CT scan goes as planned will be having surgery the following week and then 3 more cycles of chemo to follow. She needs someone to talk to who has been through this. Could you be
    that person?
    Thanks, Paul
    October 2013
  • Vjp2012
    Hang in thereRosemary! I am IIa Fallopian Tube cancer and understand how scary those microscopic cells are. Chemo is rough but tolerable. I know you can do it! Hugs!
    October 2013
  • Carol-Charlie
    I was given six month..... almost 8 years ago. I was diagnosed with Stage IV Ovarian Cancer... had debulking surgery and was told I had about six months. Then he got the PET CT Scan back and found out he'd removed all the cancer. I laugh when I remember him bouncing up and down in his chair and yelling "I GOT IT ALL.I GOT IT ALL".... I was 62... I'm 70 now - still no recurrence. I did almost two years of chemo to get here. It's just a number Rosemary....
    July 2013
  • Itiswhatisis
    I was diagnosed with IIIB Ovarian Cancer in August 2010. After surgery, I received Dositaxel and Carboplatin. I developed a allergic reaction to the Dositaxel and that was replaced with Abraxane. After a year remission I was told I have "chronic" ovarian cancer and received Gemcitabine and Carboplatin starting in July 2012. I have reached my lifetime limit for Carboplatin. In April 2013, I started Topetican which I received for two months however the mass continued to increase. I am now receiving Abraxane. I see endless hope not hopeless end!
    July 2013
  • GregP_WN
    Hello and welcome, we are glad you found us.Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

    https://www.whatnext.com/conditions/cancer/ovarian-and-fallopian-tube-cancer

    There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

    You may also find our "Beginner's Guide To Cancer" page helpful Click Here for that=> http://bit.ly/10BQKCi

    Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

    Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

    Follow Us on Twitter Click Here =>http://bit.ly/XExkce
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    GregP
    3X Survivor
    Team WhatNext Community Mgr.
    June 2013
  • carm
    Hello,
    I am an oncology/end of life nurse. Welcome to the “What Next” family. If you should have any questions or concerns that you feel that I might be able to help you with, please do not hesitate to ask. There are many excellent people here always willing to help in any way with the latest information or experiences to share. You are among friends….there are no strangers here. I hope you find all the information and support you seek, Carm RN.
    June 2013
  • DaveWaz

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    David
    Founder, WhatNexter
    June 2013