Marci

Hi Marci,

Thank you so much for your input on my question. This is my 2nd battle with breast cancer, the first time was back in 2000 when I had a partial masectomy followed by 8 wks of radiation. I was taken off my BC pills which to me was a cruel joke after 18 yrs lol. Aside from being burnt to a crisp after the first week I really wasn't overly tired. This time around the cancer was different, it was an aggressive triple negative in the same breast as last time so this time I had to have a total masectomy. Within 3 hrs of my surgery I wanted to go home, I didn't want to stay in the hospital at all but they wouldn't let me leave so I just stayed awake all night long watching tv counting down till it was morning and I could go home to my furbaby. I was hell bent on getting back to normal, not letting this cancer beat me and for about a week or so I did good. Then the exhaustion just got worse but still I refused to give in. I still walk my furbaby 3x's a day for and hour at a time. I didn't go the chemo route because for me it wasn't worth the risks to my heart or making my neuropathy any worse. I told my onc. that I had talked to my card. and it was my decision to not have chemo because the drugs cause damage to your heart and since I had open heart surgery 40 yrs ago at 11 yrs old and still have valves that leak because they wouldn't replace them back then the risks were to high for me to take. Now my decision was the right one for me and everyone is different. I plan to ask my endo when I see him in a few weeks if any of my meds need to upped or anything to help with the exhaustion. I live with several life threatening diseases in addition to my cancer and heart issues but its the cancer that scares the hell out of me. So thank you for your advice, I wish you and your family a VERY MERRY CHRISTMAS and a HAPPY HEALTHY NEW YEAR.

I liked your answer...that you wish you were numb on both sides. I am numb almost all over the left side, but I am occasionally aggravated by stabbing pains but I tell myself, "If you had good sensation, you'd probably hurt worse and lots more!" Guess that's true.

Hi Marci, welcome to our wonderful website where you will meet some of the most wonderful people here. They are always here for whatever you may need. I pray for your journey to go well for you. God bless.

Welcome to the site. I think that you will find this a friendly place to come when you need to sound off or vent from anger. We are all here to listen and help, if we can, because at some point and time in each of our lives we have been in your situation. Please don't be afraid to ask questions either. No question on this site is silly or dumb. We all have questions we would like other opinions on or answers to. There are so many nice people here that it has helped me get through my fears I had when I was DX'd with DCIS. Good luck in the future.

Marci!! I absolutely adore your response to the recurrence question. I want to be like you when I grow up . You totally rock!! Thanks for sharing!

Congratulations on completing radiation!

Oh Marci thank you so very much! I have thought the same myself....I had to be strong, especially for our 24 year old son who has had to deal with more than many...he is my rock! I will get through this and with all the great support from everyone I really feel like getting on with life! All the best to you, and you and your family are in my prayers..Donna

Thank you for your response to cumulative chemo question.

OK MARCI, YOU KNOW WHEN YOU HAVE ALWAYS DONE EVERYTHING FOR YOURSELF ITS HARD TO RELINGUISH THE REINS.

Thank you for your responses. I really appreciate it and YES, I'd like to connect.

Marci, saw your post to Aggie....email Greg, he will help you.

Hello and welcome, we are glad you found us. Your experience as a survivor is valuable to those who are just starting their journey. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/breast-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

You may also find our "Beginner's Guide To Cancer" page helpful Click Here for that=> http://bit.ly/10BQKCi

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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GregP
3X Survivor
Team WhatNext Community Mgr.

Welcome Marci...you will find this to be a wonderful site filled with wonderful people...please let us know how we can help...questions, concerns, need to vent...I like to tell newcomers that we are the friends you have not met yet...we are here to support and encourage you as you go through your journey and to celebrate with you as you complete treatment...please add your voice to ours here when others seek our advice and support...good luck and God bless!

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter