Judt1940

Please don't think I'm crazy. after writing my reasons it occurs to me putting my full diagnosis is more than alright here and makes sense as we support one another and is not within my daughters reach sort of speak. Stage III grade 3c. I realized this after another put their "poorer" prognosis and if my story could help her that is the point of this site. Perhaps you were meant to help me realize this. Thanks.

How your back troubles been going. I have just heard from my neurologist that he has consulted with the second opinion doctor and has reviewed the MRI and they are refering me to a neuro-surgeon. They are hoping for an appointment sometime within a month

Judi- I give my hound WalDryl-- those are generic pills from Walgreen- half of the price of benedryl and you don't spill it all over. They are 25 mgs 25 mgs for 25 lbs of dog. It's a lot easier if you aren't spilling a liquid.. A gauze pad is good for cleaning out ears. It scratches that itch for the hound and pulls the crud out. That changed the ear cleaning from a fight-and with mine weighing a 100 each, I sometimes felt like they were cleaning my ears.

So I'm new to all of this. What is next for you? Are you looking at the Davinci hysterectomy?

Good luck to you Judt on your journey I will remember you in my prayers.

Your kindness is a beautiful gift. Thank you for sharing your gift with me.

Hi Judi--what you said is so true, I have a grandson that when he was 6 was dropped off at my house, so I could get him to school. My stupid daughter says "By the way, he didn't pee this morning."
The poor baby collapsed on the couch saying that his head, back and legs hurt, and he was hot. He said that he hadn't peed for 2 days. I called the doctor's office and they said to get water in him and bring him in now.

I told my poor baby that he had to drink a glass of water. He cried- I stood there with a belt and told him to drink the water or get spanking. He drank and cried from the pain. I cried too. It was a 100 miles to the doctor and closer than an ER. After a bit, he began drinking water on his own. I drove macht schnell-over a 100 mph. By the time we got to the dr. he could make urine.

The dr said that I saved the poor baby's kidneys-saved him from a life of counting calories on a restricted diet-saved him from dialysis. Would I have hit him with the belt--No, but my poor baby didn't know. I know how much my poor baby hurt. I can't imagine this poor woman dying that way.

Hi Judt1946,saw your post about your hair,mine is coming in thick and still quite short after four months.Has undergone a color change also more white than gray.Friends say they like it short.I have never had my hair cut above my ears before.It is easier to care for though.Perhaps your hair will get a bit thicker as time goes by.How is your neuropathy?Hope you are able to enjoy the warmer,sometimes too warm,weather.Take care.

Judy, glad you'e doing well, now. I tolerated chemo much better than radiation. I had no side effects other than exhaustion (and chemo brain. Altough it is hard to know the difference between chemo brain and the natural aging process!) I worked everyday, but would go to bed when I got home. My husband made sure I got dinner and had clean clothes. I've been on sick leave since my surgery in May, am now on vacation until August 1st, when I will officially be retired. A little sooner than I wanted, but just grateful I had the sick time built up. I'll meet my breast surgeon this afternoon.

Unfortunately, I am about 6 hours away. The waiting is so difficult. I am sure that you are right about the "doing something" side of things. It's been 3 weeks today since her surgery & now she's afraid of every ache & pain. Thank you for your concern, it means a lot. I hope you are doing well I will keep you in my prayers.

Baby hair is the word. Still wearing head gear another couple of weeks I will ditch them and go free

Thank you for the referral. I used to live in Nashville & I am familiar with St Thomas. I am amazed at the outpouring of kindness & concern through What Next. God bless you!

Do you have an oncologist that you can recommend in nashville?

I have been meaning to ask you about the osteoporosis. The Dr. says mine is not cancer related. And my neurologist says my polyneuropathy is not cancer related. My oncologist also agrees with him (his father is seeing the same neurologist) Of course I have quite a few injuries to my spine. The last one occurred at the same time as I found out I had Uterine Cancer, I have been going to hydrotherapy twice a week to try to get stronger (not really working) I am also taking gabapentin (working a little). To make matters worse my gyne-oncologist thinks I might have a hernia. I picked up my 15 pound kitty and put her on the bed and felt like every scar in my body had been ripped open.

Judt1940 I thought in the beginning when I started trying to get insurance in October 2013 that Obama said you can keep your doctors and it would be affordable. Well that was not true. I have an autoimmune disease as well which probably brought on the cancer like so many other people with 'AI issues. I have been in the insurance battle for a while and was waiting on the affordable care. Where I live if you want the care that is just about 50 dollars a month they send you to clinics. You do not have access to the good hospitals or the cancer centers. I started out at one of the clinics and they were not treating me seriously to find out. I spent my savings to find out that I had cancer and then went back to them. The doctors at Cedars told me to get the clinic to start asap and well that didn't happen and they didn't do the most aggressive treatments. I had to figure out how to upgrade the insurance so this disease could be attacked. So fighting for SSDI amongst insurance woes has exhausted me and I guess that is why i am so down. Its worst when the chemo is making me so sick but I am hanging in there. Thanks for responding.

It was stage 4 I believe, not sure on grade. I just know that by the time I was so sick and trying to figure out what it was it already had spots in other places. Namely my lungs, and this one odd spot on my liver but it was always hard to tell and couldn't get a biopsy on the liver one 1st time.

This drink says Vanilla Smoothie....YEAH SURE...LOL
How are YOU Doing???
B

How long have you had Neuropathy?

Hi Judt1940, I wouldn't take Lyrica again if I were you because I think it either works immediately or it doesn't, and it sounds like you had a bad reaction to it....many people can't tolerate Lyrica by the way. But please bug your oncologist for help because they tried about 3 other drugs first on me before I ended up on Lyrica, I can't remember what they were but at least I know that there are other drugs available, and I think that vitamin B helps? But I am not sure about that...sorry chemo brain! Ask your oncologist or his oncology nurse....sometimes nurses are better at dealing with the side effects than the doctors. I always drive my doctors crazy when I complain about the side effects, but sometimes "the squeaky wheel get's the grease." Good luck and god bless!

Gak. you've been through hell, my poor darling, I'm so sorry. A simple and unobjectionable few things to help with neuropathy by reducing the inflammation of the nerves are berries, cherries, and sprouts. Eating a cup or two each, per day, will make a slight difference over time (a month or so). If fresh isn't available, use frozen. Alfalfa sprouts are best but do not buy them if you can't grow them. They are too easily contaminated with salmonella by the commercial growers. Larger sprouts are almost as good and do not carry the same stigma. Oddly, if you can actually do this for 10 days and then stop, you will notice a difference as you back slide in spite of not noticing a difference in feeling better. Please allow me to extend best wishes for your complete recovery.

Congratulations on being NED! I have one more chemo and I'm kind of dreading it because the last one did me in. It was over a week ago and I'm still not feeling great. I think there must be a cumulative effect. I needed two neupogen shots, one Monday and another yesterday, together with fluids and a shot of procrit. I haven't been able to sleep in two nights. Not sure why, but I just don't feel tired. Did you ever have that problem? Don't know what's next after chemo, but I'm not sure I'm open to radiation. The Dr will have to do a lot of convincing! What's next for you?

HI there. Good to hear from you. Still no bone marrow biopsy. Yay! I continue to hover on the borderline of needing a transfusion. I just keep Hoping each week my blood will reflect an upswing. I am not worse though so that is a good thing. I plan to start private Pilates sessions on Thursday. After four months in bed, I have no core strength. Our local Pilates studio does private rehab sessions. Not cheap but I am worth it. :-)

I am also now participating in a brain booster class at our senior center in hopes I can improve my chemo brain. I am now scheduled to return to work on June 2 so I am trying to get to a good new normal.

How are you?

Hugs,
Jane

Hi,
I had 2 Moh's surgeries, one on my nose about a year ago & one the other day on my chin. I have had so many other cancer surgeries that I can't remember them all! LOL
But the Moh's isn't too bad as far as pain goes, but it does leave scaring. And I had mine done by a doc who only does Moh's & is quite careful about scaring. My nose was extensive & deep & had to have 3 different passes (a layer of tissue removed), my chin only had 1 pass.
Here's the scoop: Your area of Basal cancer is numbed, ask for plenty! Then the dr. cuts out a thin layer of skin around the cancer area & sends it to the lab in his office. This is repeated until there are no cancer cells seen under the microscope. Then he cauterizes the area to stop the bleeding (this is the worst part, as it smells!) & then stiches you up & bandages the area, & you go home.
I was fine afterwards, normal activities. But my nose has a large scar, & it is too early to tell about my chin, but it is a large area & I know it will scar.
You need to clean the area every day & change the dressing.
Hopefully, you will only have one pass.
Good luck & let me know how things go.

I do not know why everyone seems so young, I guess it is because we are the age we are. My onc. Is younger than my older son at 38, but I have total faith in him. I am in awe how you easterners survive these harsh cold winters. I am spoiled being born in. California. Spent yesterday sitting outside weeding in seventy degree weather. Sounds like the acupuncture may help you physically as well as mentally. Good for you trying something new.Keep me informed on your progress.

Hi Judy, well done for sticking at it and giving it a go. Hopefully it will help the neuropathy too, as well as the circulation and odema problems. So much for your body to cope with at once. I totally understand your exasperation at being told to move more, when every single movement causes so much pain. Its very easy for them to say that with no understanding of how difficult it is to do. I was told the same when I was relying on the wheelchair. I started off small and worked my way up as I was able. Even if you can just flex your feet and turn your ankles when you're lying down, it still helps with circulation. Could you manage gentle massage in upwards strokes to help the circulation in your legs? Keep faith that things will improve. Take care and keep in touch

Hi, hope the acupuncture helps.Does it hurt at all? How often will you be having treatments?

Hi Judt, It has been a year now for me, curious to know how everyone is doing, who had success and what has worked, after surgery I wanted a more aggressive treatment plan, but my doc said not necessary. Now I am having a biopsy on enlarged lymph nodes, that were opaque lymph nodes to be watched 3 months ago after I finished chemo. I'm trying to make the decision of changing to a new doc. Hope you are doing well, good luck.

HI Judt1940, I was diagnosed with Uterine Cancer in Jan.--lllC.
I had my port put in last week & had my first PET scan today. I start chemo on Tues. I feel numb about all of this & scared of how I m going to deal with it all.

Judt1940,many of us think of possible recurrence and judging from the odds can not help but do so. Saw my doctor yesterday and he was quite happy with my progress. Still have two cycles to go. He told me starting on next visit in three weeks will be doing pelvic exams every three months. OH BOY! Doesn't have a lot of confidence in CA125 tests but will do those also every three months. told me many countries don't even bother with those tests anymore. He told me the best indicator is how you yourself are feeling. I knew something was wrong seven months before they finally diagnosed me correctly. My doctor also told me if the cancer does reoccur that he has seen women go into second remission,some staying that way. I feel he is being very honest and does't sugarcoat anything.All we can do is the best we can.

I have the same type of cancer stage I. I went to Md Anderson for a second opinion and came back to be treated following their protocol. Every 3 months I have a ca125 and a pap smear for the first year after chemo as they recommemded.