Estherj

How is my Sioux Falls partner?

Hi Esther, My Sioux Falls Comrade. Wonder how you are doing? I am in my 3rd round of chemo. That makes every Winter 2013, 2014 and again in 2015. Disappointing with my CT in November and trying to maintain a good quality of life. Hope you are doing well?

Hi Esther. I see you've elected to follow me. Hope you enjoy comic relief. I can be a bit sardonic now & then. Hope all is going well in your world.

Hi, Estherj. See you are following me. See you are recurrent? Sorry, of course this is what we all dread and watch for. What was your DX originally if you don't mind my asking and what is it now? I finished chemo a year ago so far NED but have a small nodule on my thyroid gland. Of course don't know what it is yet. I'm really interested where your Cancer came back and treatment. Did you have symptoms? Forgive me if this is too personal.

Thanks, Estherj! I was doing so well with my initial treatments....then developed "platinum resistance." Am feeling very ....hopeless, in terms of survival...beyond a year. Did attend a conference put on by Foundation for Women's Cancer yesterday and a 5krun/1mi. walk (I walked,) today. Gotta stay active, involved with others. Other tools? (P.S. I went to grad school, years ago, in SD!)

May I asked how you found the cancer was back? Right now I'm NED serous Uterine Stage 2 Grade 3. I'm 73, nothing told me I had cancer, had surgery for a blockage in iliac artery, saw a thickening endometrium. Finished chemo January 2014. Looking at this site it appears it goes to the lungs, my oncologist said goes to vaginal cuff. I'm sorry for your recurrence, got to be hard. How is your treatment different? I feel so rude asking you these questions but I live alone and like all of us I want to stay here.

Thank you for following me Esther. I know that we can all benefit by this shared information. Wishing you all the best.

Hi Estherj,
Yes this is often considered a chronic illness. But hey that means it can be treated. I also have a spot on my lung but it has been stable for a number of years and is considered too small to deal with. I have had several chemos and surgeries. The last was January of this year. I had part of my liver removed as well as the right adrenal gland and they "peeled" the top of my right kidney. For the first time in 11 years I am considered to be NED, (no evidence of disease). I took Megestrol for 6 years prior to its failure to stop progression. Until something turns up on my ct they are not treating me. Scans every 3 months.

I am so happy for you-Happy 4th. I was wondering if you can tell me if there's anything else to drink (other than water-somewhat healthy) during treatment. Sis is not crazy about water. And previously you mentioned blood clots in your legs? Did you have to have anything done for that or just watch and baby aspirin? So much of what of I read sounds familiar so I hope you don't mind my questions. I am blessed to have you.

Hi, thanks for your response. Did they put you on antibiotics for 5 months straight? The infectious disease dr in the hospital mentioned that people who get it frequently could be on a low-dose antibiotic as a preventative measure but the oncologist wants to wait, as it was her first treatment. Also, we get mixed answers on how to prevent it. Everything i read says to keep cream on the legs to prevent dryness and cracks but the oncologist said to keep it powdered so there's no moisture. I am so sorry you have been through so much.

I have an attorney who is interested in helping those who have been affected by sarcoma spread my morcellation. If you would like his contact info let me know. I see all emails are blacked out by the site

I'm NED right now--today. Finished 6 chemos in January. Stage 2 C. What is the chemo treatment when same cancer, different location?

Hi Estherj, So sorry, that's something you never want to hear. It has been exactly a year since I knew something was wrong. I had surgery in July, then chemo. I'm having a biopsy on my enlarged lymph nodes, hopefully this week. Is it considered a recurrence in the same year? Hope you are feeling well, and good luck.

Hello Estherj,
I was diagnosed more than a year ago and treated with radiation and surgery. My doctor did not explain about my cancer and had to do much of the research myself. I was 1b with vascular involvement. Did you know that means I have more of a risk of recurrence? No one told me! My ct scan in July showed everything was okay. They failed to mention a lesion on my kidney and a nodule on my lung. I had another ct scan in November due to a lump caused by cellulitis...another gift from radiation....and in that short time another 9 mm nodule showed up in my lung. They are waiting until March to do a pet scan.
Just wondering if you or others on this wonderful site get really tired of having to wait. I find it very hard to be positive every single day. Going out with friends wears me out as I am acting happy for them.
Thank you for listening!

From one Sioux Falls girl to another. Hope you can hang in there during the next chemo rounds. MY oncologist is originally from Sioux Falls. You would recognize the family name. i am in St. Louis area. 6 months post chemo rounds of 6 total. Growing my hair back.

Hi Estherj, How did your chemo go? Mine was postponed until next week. Everything looked good except for my platelets so my doctor scheduled it for next week. Hope all went well with your treatment.

Hi Esther. Welcome to What Next. I was diagnosed w/Stage IV B endometrial cancer July 2012. There are lots of great people here. If you have any questions, please use the question tab near the top of the page -- that way the entire network will have easy access & you'll get a quicker response. I'm glad you found us but sorry for the circumstances that led you here. Wishing you all the best.

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

You may also find our "Beginner's Guide To Cancer" page helpful Click Here for that=> http://bit.ly/10BQKCi

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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GregP
3X Survivor
Team WhatNext Community Mgr.

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter