Dianem

Activity

  • pattypie
    what kind of chemo and how are you feeling did the combintion really make you sick and feel terrible . I would appreciate anything you would like to share with me. Thanks
    June 2014
  • LiveWithCancer
    Hi Diane, I'm a little worried about you after reading your post to ShortStuff about a possible problem. Are you having growth?
    March 2019
  • LiveWithCancer
    Have you done okay on your monthly dose? I can't tell a bit of difference from the biweekly infusions and the monthly ... at least so far. It sure is going to feel good to not have to go back to the doctor for a whole month!!!!!
    April 2018
  • LiveWithCancer
    Diane, i just read that you have been (or were) having a lot of nausea. I hope and pray it wasn't the Opdivo and that you're feeling better now.

    I am going to once a month treatments, starting this month. I am both excited and nervous.
    April 2018
  • sarasmash
    I was just reading on another post, that you're on an immunotheraphy drug? How is that working for you? Do you do chemo as well, or just that one drug? Do you have to be on it for a certain amount of time? Im just curious, because I was recently told I will be on one for the rest of my life, and was curious how it works for you? I know it's a different situation, but just curious. :]
    May 2017
  • SandiA
    Hi! I saw your answer on nivolumab. I have been on it for over a year and also having some major joint issues. Swollen, achy, sharp pains and recently numb toes. Just wondered if we have similar symptoms? Thanks, Sandi
    July 2016
  • geekling
    Hello, I am, originally, a Bronx Babe. Please allow me to wish you joy for the year end holidays and many blessiings through the new year. A kiss to each palm and off we go to play ... Im in the South these days ... is it snowing? Better bundle up as Im a crack shot with snowballs. :)
    December 2015
  • ShannonD
    Hi Mama
    February 2015
  • ivyJ
    My heart goes out to you. I've been in stage 4, originally bowel cancer, for almost 2 years. I'm told I'm terminal. I'm positive and can do almost anything I once did. Here is a poem I wrote when I thought, well death is imminent cancer not. I'm 73

    GOING HOME

    The days have grown too long for me,
    to long for me to bear
    My nights bring on discomfort friends
    there's no rest anywhere.
    The world has changed too much for me,
    this body, on loan, has failed
    I'm trading it in for a Holy one,
    that God that I am saved!
    My only regret? Leaving my loved ones,
    the thought gives me much pain
    Beloveds follow Jesus Christ and we will meet again
    Goodbye, Goodbye to all of my friends,
    farewell to those I love.
    Stand strong with God and love the Lord
    I will see you up above.

    I. Jackson @2009
    August 2014
  • adf3
    Dianem...I too have stage 4 NSCLC with bone mets.
    I've been on Tarceva now for 13 mo with a great
    response. What trial are you on. Any tumor markers?
    August 2014
  • Lipi
    Thank you for the positive post! My sister was just diagnosed with stage 4 non small cell lung cancer. Any suggestions are welcome as we begin this journey. Thank you.
    June 2014
  • cuddles456
    Hi dianem, What immunotherapy are you on at Sloans? Is this a clinical trial? We are from NJ and my 18 year old has colon cancer spread to lungs.
    May 2014
  • Pch@the_beach
    Thank you Dianem for the words of encouragement and for reaching out to us (me) and sharing your story. I find, especially now, that the human nature to seek a community of like-minded folks is very strong right now. And then, there you are! God bless you! Mom will have to wait a several more weeks before she knows which study drug she has been randomly selected for. She's anxious because it has been 6 weeks since her last chemotherapy treatment and she's ready to get going. Our faith is in God, and his timing and His plans, though I struggle and wrestle with it daily. I'm so glad to have found this site and plan to bookmark this site for mom on her laptop as she is homebound and needs to talk with others with similar journeys. Take care and we'll be in touch.
    May 2014
  • maryjimhath
    Congratulations on your Tumors shrinking. I have been fighting stage IV lung cancer for almost 4 years. You have found a new family that will be here for you to answer questions or just be there to listen. God bless you and be with you through your journey.
    February 2014
  • GregP_WN
    Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

    https://www.whatnext.com/conditions/cancer/lung-cancer

    There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

    Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

    Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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    GregP 3X Survivor
    Team WhatNext Community Mgr
    February 2014
  • DaveWaz

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    David
    Founder, WhatNexter
    February 2014