maryjimhath

Where was the cyberknife surgery done? on brain? Did youo have prophylactic radiation to brain?

Scan anxiety comes with the territory. It doesn't do any good to worry about it, because it's out of our hands. One of my mantras is...worrying does not empty tomorrow of its troubles, it empties today of its strength....of course it's easier said than done, but keep trying to get the anxiety down...keep strong and God bless.

( p s. Maryjimhath good to hear you are doing well..

I'm happy to see you are looking into opdivo...if it works, your side effects may be much more manageable than those with chemo. I hope all is well with you or as well as it can be. You are always in my prayers

How are you doing. I have a terrible time posting things. I'm doing ok. Since we last touched base, after 22 months on the clinical trial, I was taken off because my lung tumors had started to grow. But, they were able to donsurgeryband i had two lobes remover. Now I'm back on immunotherapy again with good results so far. The only downside is that I have a lot of joint pain, which they are treating with steroids and nerve medication. But it's manageable. Hope all is well with you. Keep strong and God bless

Glad to see you are doing better...you know you have been in my prayers every day....stay strong and God bless

I was reading your wall, and we have more in common than lung cancer. I notice we are close in age (of course age is only a number) but more interesting, I too lost my husband to alzheimers. He passed away at age 60 from early onset, so it will be 10 years this November. losing him was hard, but when I look at the goodness that is in my children, I know he is still with me. I hope that thinking gives you some comfort as well. I feel for you because it must be so difficult to face each of these challenges at the same time. Please know I will keep you in my prayers

Just checking in to see how you are doing. I continue to keep you in my prayers.

How are you doing? Been thinking of you and praying for you.

Hey Mary.....check out MY profile here as it might have some things that you can try. Let me know if any of it speaks to you.
Good Luck!
Barry

Deeply sorry for your losses.

How are you helping yourself to get through?

Hope the new year brings you better health

You are a great inspiration. Your battle gives hope to many.

Thanks for the information, good luck to you, I am so glad I found this site its nice to talk to people that are going through the same thing it gives us hope, God bless

Dear maryjimhath .... So very sorry about your losing your husband. I just wanted to let you know that I prayed for you when I read your post.

Hi. It's Dana...It has been so long since you wrote me I'm embarrassed. Thank you for your wonderful words of encouragement. I just moved to a country house, and we love it. I love that I can take my chemo by pill, it's a biological.
Anyway, the side effects are water weight and nodding out. I will take those over anything, any day. Although it means a lot of homeward bound-ness (is that even a word?) lol. I love that I maintain my sense of humor. I have Xylkori the one that works on peeps that have the deficient ALK Genome. I want to encourage everyone to have the genetic testing. Not everyone will react like me, but there will be plenty I am sure. If you have knowledge of a way to pass that around, please write my wall.
All Love and Care.........Dana Leigh

Hi it's Dana again. I had missed about your husband. I am so sorry. I have a roommate who's father is in the grip of Alzheimer, and I forget how hard it is on the people it is around him and he himself. God Bless you again. Sounds like you fly about bringing light and love with you.
I don't know if this helps, I have a cat, have had her for several years, they really help, seem to sense that you are ill and curl around you, let them you know they love you...well, anyway light lady, my typing skills go south when I am tired, so Sayonara...Dana

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/lung-cancer
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You may also find our "Beginner's Guide To Cancer" page helpful Click Here for that=> http://bit.ly/10BQKCi Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

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Team WhatNext Community Mgr.

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

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