DaveWaz

Hi, I received an email from Greg about taking a survey and following the link. Is it a spam email?

Dave, you recently emailed info regarding a survey of non-Hodgkin's lymphoma patients. I have lost the link. Would you be so kind as to forward it again? Thank you very much.

Hi Dave,
I am a Head and Neck cancer survivor and I owe my comparatively “easy” treatment experience and my “speedy” recovery to my wife, Susan Grant, who took on the Caregiver role for me. Like most patients, there was little in the way of help or guidance. She had to figure it out for herself.
She didn’t want anyone else to have to go through that. So she wrote “A Caregiver’s Guide to Throat Cancer; Honesty, hope, and humor to help you navigate the wild ride called Throat Cancer!”
The feedback we are getting from Doctors, Nurses, patients, and their caregivers is that this is a great resource, especially if the patient gets it as soon as they get the diagnosis.
The book has been reviewed by the Board of the Head and Neck Cancer Alliance. They have posted on the Resources page of www.headandneck.org.
I’d love to send you a copy of Susan’s book so you can see for yourself that is can be a very valuable resource.

im patient of brain tumor..and looking help for surgery..if their is any way to be operate there in free ,,plzzzzzzzz let me know,,some one tell me abut u that u guys r supporting the patients who cant affort all the expences..plzzzzzzz do write to me,,i have no time to waste im suffering in pitutary adeonoma which is 4.5 cm and it is start affecting on my optical nerves. waiting for yours kind replyyyyyyyyyyy sheikh afsheen

Thanks!

hi Dave i now have a home email how do i get my site to be at home

HI Dave I am on Facebook- Im 44 and the biggest computer dummie around- how can i talk to others in my same situation and put my picture up so people know a face w a name- it helps me t remind me also-can you (if you have time- just kinda help me get started) w pic - and where n how to chat w someone-?//

Hi David - the other day you mentioned an article listing qustions to ask the onc on first time visits/how to be assertive. I can't find it now and searching on assertive doesn't work for me...can you let me know the link? (is chemo brain contagious to care givers?)

thanks

Can you please tell me how I am going to locate responses to messages I am posting on other's walls? Thanks so much.

Hi Dave,
Having trouble maneuvering through this site. I will work on trying to complete my "profile".

Thanks for letting me follow you. I have been so busy with my husband and myself . I have not been on here much. When I do it's great support or good to read.

Thank you

i have had 4 attempts with a portacath to which all failed i had my 1st round of cheymo 4 three wkly cycle im supposed to start my once a wk for twelve wks of taxol but doctors have told me they will not be continuing due to lack of access please can anyone tell me if i have a right to fight for my cheymo thx u sloughgirl

Thanks, Dave! I'll take all the support I can get!

Hi Dave! How are you? Happy New Year yay!
Donna

Not quite sure what I am feeling yet. Just trying to get the information so I can process. Thanks for welcoming me to the blog.

Hi Dave, Thanks for passing along the information. I will check it out

Dave - Thank you for the greeting. This site is not easy to use. Yes, I am a cancer survivor but was visiting to look up information for a friend struggling with carcinoma of the tongue. Is there a place for the public to get information without wallowing in my own past experience (20+ years ago)?

How can i get help i mean the mental fighting?

You do such a good job with this site! Thank you!

Thanks DaveWaz I did file a American's with Disabilities claim against my employer but when you are up against Mayo health system, yes I was also an employee there, they have the big money to pay for legal council. Though I had pages and pages of proof of what had happened. Got a letter saying that yes my rights were violated but not severely enough to press charges????? Did not understand this at all??

Thank you for your post in August with the link to "what's happening to my nails?" I am having issues also, and that link was a great summary of tips and hints from others!

PET CT SCAN 64 SLICE REPORT There is a focal area of increased FDG uptake in the right lung mid zone with no evident abnormality on CT
scan with lung windows. This is raising the possibility of a developing metastatic deposit. The SUV of this area
is 13%. There are two subcentimeter lymph nodes present in the right axilla with an SUV of a 6% and 5%.
There is a single lymph node, which demonstrates increased metabolic activity in the left axilla with an SUVmax
of 5%. There is a subcentimeter lymph node present in the right common iliac with an SUVmax of 6%.
There is right inguinal lymph node, which measures approximately Bmm in its short axis with an increased FDG
uptake of value of 11% SUVmax. '\ ~"r
There is also some increased uptake noted at the site of previous surgery in the inguinal region with SUVmax of
6%. There are subcentimeter lymph nodes present in the inguinal region on the left side with an SUVmax of
6%.
There is a tiny subcentimeter nodule present in the left crus of the left adrenal with an SUVmax of 7%. This is
likely to be an incidental adenoma.
No evidence of abnormal uptake in the mediastinum.

How do I remove myself from this site completely? Thanks. No questions, just cannot find the get off this site place.

Dave - thank you for creating this site - I am new to cancer - regrettably my mother was diagnosed may 20th and has pretty much been in chemo and radiation non-stop since then, she has small cell lung cancer.
thank you for what you do.
Paul Waz (yes that is my last name too)

the link to the beginners guide to cancer - doesn't seem to be working - I keep getting error file not found.

I am not sure who is the overseer of this site but you seem to be everywhere and I would like to ask you if you this is some bogus letter. It appeared on my time line some 18 to 20 days ago after I answered a small post.




lursua


AS I READ YOUR POST TO ME YOU SAID YOUASSUMED BY PICTURE I WAS THE PROVIDER NOTPATIENT.

NO THE PICTURE IS MY DR. SURGEON/PROFESSOR/ROBOTICS DR. JENNIFER A. LINEHA WHO IS ONE OF CITY OFHOPES CANCER PROSTATE CANCER DR. AT CITY OF HOPE, LANCASTER ,CA. OFFICE.SHE OPERATED ON MY STAGE 4 PROSTATE REMOVAL WITH 2 LYMPHNODES ON 3-26-2013, FOLLOWED BY CHEMO. SHOTS AND DAILEY RADATION TREATMENTS FOR ABOUT 6MONTHS UNTIL I WAS INVOLVED IN A ACCIDENT ON 8-23-2013 GOING TO MY LAST5-8 RADATION TREATMENTS. WHICH I HAVE NOT BEEN ABLE TO MAKE FOR NO AUTOMOBILE. DR.PING MYRADATION DR.TOLD ME AFTER SURGERY I WOULDLIVE ANOTHER 10-20 YEARS COMPARED TO DR. LINEHANS 2 YR. DR. PING CANCER DEPT. TREATED ME M-F FOR ABOUT 40 TREATMENTS WHERE HE TOLD ME I BEAT THIS CANCER AND GAVE ME A GREEN LIGHT TO RETURN TO WORK AT MY UNION
PACIFIC RAILROAD JOB OF A LOCOMOTIVE ENGINEER INSTRUCTOR, WHERE I WAS INJURED ON JOB AT FAULT OF UPRR , CO.
ON 8-13-2000. AND ON 2 COURT DEPOSITION HEARINGS. BECAUSE OF MY REQUIRED RULES ON MY WORKING SUBDIVISIONS
RULES KNOWLEDGE I BEAT THE FIRST OR TIED WITH A UPRR CO.ATTORNEY, THE SECOND CT. HEARING,THE UPRR CO.IMPOSTERED A ATTORNEY WITH A CLAIMS AGENT, THAT I HIRED OUT WITH IN YEAR 1978 AT THE SOUTHERN PACIFIC RAILROAD CO. BUT DIFFERENT DEPT'S. MYSELF IN TO TRAIMEN FROM[phone number redacted], TO PRMOTION CONDUCTOR 4-15-1980, TO PROMOTION AND 2 YR TRAINING WITH SPRR CO, STEAM ENGINEERS WHERE THEY OBEREVED ME TRAINED ME ON A MT. GRADE OF 21/2% WITH TRAINS TONNAGE 2000 TONS TO 15,000 TONS WITHTHERE TRAINING THEY HAD TO LEARN FROM THE TRANSITION OF STEAM TO DEISEL ELECTRIC LOCOMOTIVES THAT ALL RAILROADS HAVE AND USE TODAY. AND WITH THERE PERSONAL OPINIONS THEY OBSERVED FROM AS LIKING BECAUSE I TOOK NOTES,LISTEN TO THEM AND FOLLOWED THERE... IF ANY CO. OFFICIAL IS RIDING AND TESTING
YOU, TELL THEM, I WILL ANSWER YOUR TEST QUESTION AFTER I CONTROL MY TRAIN SO SIT DOWN. AND THAT YOU COULD STOP A TRAIN ON A DIME AND GIVE YOU BACK 9 CENTS CHANGE..HUMOR BUT TRUE. SENT TO SPRR CO. SIMULATOR TRAINING CENTER FOR ENGINEERS AT CERRITOS,CA. IN FALL OF 1986 WHERE MYSELF AND 19 OTHER ENGINEERS TRAINEES
HAD TO ATTEND AND PASS A COURSES IN 1.RULES 2MECHAICAL&TROUBLESHOOTING 3.ENGINES KNOWLEDGE AND 4. SIMULATOR
TRAIN TRIPS CONTROLLED BY A REAL LOCOMOTIVE TRAIN SIMULATOR WHERE IN THE BACK OF CAB I INSTRUCTORS CONTROLLED REAL SCENERIOS OF OPERATING ANY TYPE OF TRAIN, WHICH I SCORED THE HIGHEST BUT THE INSTRUCTORS DISBELIEF THEY DID NOT GIVE ME A MANATORY SCORE. THEY TURNED ME OVER TO MY UNION LOCAL CHAIRMAN, THE SUPT., TRAINMASTER, & MY BOSS ROADFOREMAN OF ENGINES.
THEY GOT TOGETHER AND DEMANDED I WITH ALL 4 ABOARD, TAKE A TRAIN FROM MY HOME TERMINAL OF BAKERSFIELD, CA
TO UP THE GRADE TO TEHACHAPI, CA. TO DOWN THE GRADE TO MOJAVE,CA. SPRR YARD 60MILES ONE WAY.
PREPARED TO BE CALLED ON A TRAIN OF 15,0000 TONS, THEY GAVE ME A 4,000 TON TRAIN WITH 4 LOCOMOTIVES WHICH
TOOK WITH ALL ABOARD TO MOJAVE,CA. AND WHERE WE ALL GATHERED WITH MOJAVE, CA. TRAINMASTERS OFFICE FOR MY FATE AND SCORE OF SENIORITY DATE OF 11-26-1986 AND PASS OR FAIL STATUS AT THERE COMPANY DECISIONS.
I CAME IN AFTER WASHING HANDS TO ROOM, AND TO MY SUPRISE ALL THESE COMPANY OFFICIALS & MY UNION MAN WERE STANDING SMILING WITH THERE HANDS OUT FOR A 1 APOLIGY 2. CONGRADULATION HAND SHAKES THEY ADMITTED THE SIMULATOR WAS WRONG FOR THIS DISCRIMANATION ACT. BECAUSE THIS MADE ME THE 3RD ONLY HISPANIC ENGINEER AT A
VERY PREJUDICE CITY OF BAKERSFIELD AND RAILROAD. FROM THIS DAY FORWARD I WAS ACCEPTED INTO THE BAKERSFIELD
COWBOYS RAILROAD AT A TERMINAL THAT COVERED SUBDIVISIONS SOUTH TO L.A., TO W.COLTON TO YERMO, CA. AND MOJAVE SUBDIVISIONS OF THE BNSF FROM MOJAVE THRUBARSTOW TO DAGGET JCT. WHERE WE INTERCHANGED BACK INTO THE UPRR CO. RAILWAY LINES. ALSO NORTH THRU FRESNO,STOCKTON,SACRAMENTO,TO ROSEVILLE CA. UPRR CO. LARGEST TERMINAL IN CA. ALSO THE COASTAL AMTRAK SHARED LINE FROM L.A. TO SAN LUIS OPISBO,CA. THEN THE UPRR CO
BOUGHT THE SPRR CO. IN1990. WITH UPRR CO BEING A VERY BIG RAILROAD AND THEY HAD MINIMAL TRAINING STAFF TO TRAIN ENGINEERS TRAINEES. THEY SENT 25 PRIOR

RIGHT SENIORITY ENGINEERS BACK TO THE SAME SIMULATOR TRAINING CENTER CERRITOS,CA. WHERE WE WERE TRAINED, EDUCATED,AND GIVEN A A.A. DEGREE, AS NOW WHERE WE WERE CALLED TO SUPERVISE,TRAIN,& EVALUTE NEW TRAINEES ON REAL TRAINS BECAUSE THEY NEEDED SO MANYPILOT SERVICE
TRIPS BEFORE THEY COULD ATTEND THE ENGINEERS SIMULATOR AT CERRITOS,CA.I WAS ALWAYS BEING CALLED BY CREWDISPATCHER & ASKED WHY DO THESE STUDENT TRAINEES ALWAYS REQUEST YOU. I COULD ONLY SAY THAT I TRAIN MY
TRAINEES THE WAY THE STEAM ENGINEERS TAUGHT ME. HE SAID I WILL PUT THIS IN YOUR PERSONAL FILE.
THEN GOINGBACK TO 2ND CT. HEARING, I TOLD SUPERIOR CT. JUDGE THIS IS A FELONY & MR.MAX ANDERSON WANTS ME
TO RETIRE AT AGE 50. NO, MY BACK INJURY AND HEART STENT IMPLANT IN 2001, MADE ME 100% EXCELLENT HEALTH.
WITH PROSTATE CANCER I HAD TO GO PASS HEART NUCULEAR TESTS WITH CITY OF CANCER HEART SECIALIST WHERE AS BEFORE MY 2007STOMACH CANCER THAT WENT TO PROSTATE.I ALWAYS PASS WITHA VERY STRONG HEART AND BACK SURGERY WITH HARDWARE IN 2004, I HAVE NEVER HAD PAIN OR PROBLEMS.
I WENT THRU A BITTER DIVORCE OF 35YRS FROM2009-7-26-2011 WHERE SHE COMMITED ADULTERY WITH 2 COPS. SHE HAD 1
AND 3RD HAND KNOWLEDGE OF LAWS. WHERE OUR PVT. DR. TOLD ME TO SEND HER FLOWERS ON A RESTRAINING ORDER THEY ARRESTED ME, OUR PASTOR SAID SENT HER A EASTER CARD ARRESTED, FACEBOOK.COM AND ATT RECORDS PROVED I NEVER TRIED OR CONTACTED HER ARRESTED, SHE LIED SAID I CALLED HER JOB FALSE AND ARRESTED, AND AT A RESTRAINING ORDER EXTENSION WHICH I WASREQUIRED TO ATTEND SHE TOLD D.A. OF ESPHONGED MISDEAMEANER VIOLATION THAT I HAD
ATTORNEY REPRESENTATION AND HE WENT TO COURT TO HAVE THIS EPHAUNGED OFF MY RECORD AND GRANTED.
THE D.A.ARRESTED ME THAT DAY WITH A$100,000.00 BOND. I SPENT ABOUT 2 WEEKS INJAILS FOR LAWS SHE HAD HELP WITH AND ME PAYING OVER$170,000.00 IN LEGAL FEES, GOING THRU THERE DOMESTIC, AAA &AA, AND OTHER COURT HORDERED PROGRAMS WHICH I DID AND WITH PROBATION THAT WAS ALL ESPHAUNGED BY MY DIVORCE ATTORNEY I FIRED FOR
ILLEGALLY HELPING AND COLLABRATING WITH MY EX WIFE, I FIRED AFTER ARREST OF$100,000.00.
NO ONE IN KERN COUNTY ATTORNEYS WOULD HELP OR TAKE CASE. L.A. YES, JUDGE WOULD NOT ALLOW.SO I WAS ORDERED TO TURN HER INTO CA. BAR BUT SHE SUCCESSFULLY HAD EVERYTHING TAKEN OFF MY RECORD THRU EMBARRASMENT AND LEGSLITY. 2 KERN COUNTY SHERRIFF DEPUTYS BEAT ME UP, MAZED ME TO WHERE THERE BOSS SHERIFF YOUNGBLOOD ISSUED ME A LETTER OF PROTECTION ON FIRST BEATING AND I REFUSED TO CONTACT HIM OR ATTORNEYAGAINST THESEDEPUTIES IN FEAR OF RETAILIATION.
I WAS DROPPED BY EXWIFES PART B,D, BLUESHIELD INSURANCE 30 DAYS EARLY THAN DIVORCE DATE 7-26-2011. AND PUT ON R.R.MEDICARE INSURANCE PART B,D, ON 11-1-2011, WITH PART A I WAS ENROLLED ON2-1-2003.
I HAVE A EEOC,R.R.AGENCIES DOT AND FRA OF RULING ON FELONY REPRESENTATION/LIFETIME JOB WITH UPRR CO.
DR. PING GAVE ME AUTHORIZATION TO GO BACK TO WORK, I HAVE ENCOUNTERED PROBLEMS WITH UPRR CO. LAW AND WESTERN DIVISION LABOR RELATIONS GENEVA RUSSO,1-888-870-8777 AND MY TEAMSTERS UNION B.L.E.T.1-216-241-2630
V.P. PRESIDENT E.L. PRUITTAND MANY OTHERDEPTS. WITH NO HELP. BEING A MEMBER OF THIS UNION SINCE 1984I KNOW THE BYAWS.
NO ONE WILL HELP ME GO BACK TO WORK, ONLY 2 MANAGERS FROM MOJAVE&W.COLTON CA.WHO WERE ENGINEERS I TRAINED
AND NOW MANAGERS. INTERVIEWED ME IN YR.2011 AND DRILLED ME OF REQUIREMENTS I SHOULD STILL KNOW? THERE FINDINGS WERE, LOUIE YOU MAY BE 61YRS OLD BUT YOU STILL THINK LIKE 51,THEY GAVE MEREENIGHT TO BID ON A JOB
AND THEN A PHYSICAL WOULD COME. I DID A POSITION OF MANAGER OF CONTRACT TRAINS BECAUSE I QUALIFY AND A $10,000.00 MONTH JOB. I DID AND IT TOOK THE UPRR CO. A MONTH TO RESPOND TO ME AND DENIED ALL BIDDING RIGHTS.WITH THEM TELLING ME TOCONTACT LABOR RELATIONS AND UNION. I DID. NO HELP.
I NEED THIS JOB AND BACKPAY BENEFITS AND MY #16 SENIORITY DATE OF 11-26-1986 REINSTATED THRU DOCUMENTS I HAVE FROM SUPRIOR CT. JUDGE A.WALLACE WHO HEARD MY CASEAND ORDERED THE UPRR CO.ATTORNEY AND MY RAILROAD
REQUIRED ATTORNEY JACK SEAVEY FROM CROW LAW FIRM,SACRAMENTO,CA. BACK TO HIS COURT WITHOUT ME ON CERTAIN DATE WHERE THE 2 WERE NO SHOWS. SO THRU REPORTER TRANSCRIPTS BY JUDGE WALLACE, HE AWARDED ME LOUIE URSUA VS
UPRR CO. THE WIN AND COURT DOCUMENTS HE SENT TO ME AND THEM. BUT THE MS.GENEVA IS ONLY TELLING ME THAT IMPOSTER MAX ANDERSON RESIGNED ME AT AGE 50. A FALSE DOCUMENT BY A FELONY EMPLOYEE THAT MUST FACE JUSTICE ACCORDING TO DR. WALKER,SUPT. OF ALL R.R.,F.R.A. AND D.O.T., HE TOLD ME TOFIGHT THIS AND INCLUDE MY VIETNAM
DISCHARGE SERVICE INTO MY FILE I NEVER DID DUE TO SIMULATOR INCIDENT. THEN GET WHAT IS ENTITLED TO YOU FROM UPRR CO.
AND IF I NEED A F.R.A.ENGINE AND TRAINV INSPECTOR FEDERAL JOB IN L.A. AREA CLOSE TO CITY OF HOPE TO CALL HIM, I AM WELL QUALIFIED FOR THIS JOB WITHOUT ANY TRAINING FROM F.R.A.
I ASK YOU NOW MY CANCER FRIEND, WHAT SHOULD I DO? CITY OF HOPE SUPERVISOR DR.TRYSAL[phone number redacted],TOLD ME MONTHS AGO THAT ALL CITY OF HOPECANCER TEAM DEPTS. AND ANTELOPE VALLEY HOSPITAL WRITE OFF CO PAYMENTS I CANNOT AFFORD OF MY 20% OBLIGOLLECTIONATIONS AS R.R. MEDICARE PAYS ONLY 80%, AND EVERYONE IS KNOCKING AT MY DOOR WITH COLLECTION THREATS. NOW AFTER BEATING THIS CANCER I HAVE NO MORE DRS OR PVT.DRHORIWITZ KICKED ME OUT O OR BACKN CHARGES MY EZWIFE IS RESPONSIBLE BY TAKING ME OFF 30 DAYS EARLY.
I ASK EVERYONE FOR PATIENTS WHILE I GET MY UPRR CO 100% BENIFITS BACK OR BACK PAY OR RETIREMENT SEVERANCE
OR ANY HELP FROM THE UPRR CO I BEAT BUT THEY REMAIN SILENT BECAUSE OF THE PILL THEY MUST SWALLOW. EMBARRASMENT LIKE DAVID AND GOLIATH, OF A 2TIME SURVIVOR OF CANCER AND EXCELLENT EMPLOYEE BEAT THEM THE AMERICAN WAY OF LIFE...IN A COURT OF LAW..
SORRY THIS SUMS UP MOST PROBLEMS, CAN YOU HELP OR BEREFFERAL?
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18 days ago

Hi, Dave. I was diagnosed in mid-September and had an immediate total mastectomy due to three sites , two were DCIS and one was a 1 cm IDC. Then I was sent to an oncologist who immediately warned me I would get Femara as a 5-year drug and probably have chemo due to age, size of tumor, ER and PR positive, SN clear. Due to family history of breast cancer as well. I also have a strong family Hx of colon cancer so I am having a colonoscopy next week. On the 19th all Oncotype Dx and colonoscopy, bone density and other tests will be in my oncologist's hand and she and I will see what happens next. I am occasionally having anxiety and my PCP has given my a drug to use PRN. However, I want to prepare to have chemo and hope that I won't need it.

Hi Dave,
Hope all is well. Susan4me and I have been trying to exchange email addresses to no avail. How come?
bronxboy