Celste51

My husband went thru 7 Folfox treaments with Avastin added on the last two..They had to reduce the Oxiliplatin due to the neuropathy increasing....I know the side effects are a bear..One of the biggest impacts to helping the severity of the side effects was hydration....His appetite was zilch so any hydration with nutrition in it we did...Fruit was ALWAYS something he could actually taste and wanted so made sure that was on hand..Wishing you strength and peace...

How is FOLFOX going? How are you? I just read you are at round seven!! Congratulations! I know it's tough, but I'm sending you strength.

Hi Celste51, thought I'd move our conversation to your board since we have diverged a bit from the original question.
I'm sorry that your feeling a tummy ache. Please know that nausea is pretty normal and the nausea meds your Dr recommends should take care of it. If, however, you start feeling like you've been kicked by a mule and the tummy ache has you curled up in a ball and the meds aren't working, it could be a rare reaction to the steroids that they give you. Wow,sorry, run-on sentence.
That's what happened with me. I just figured, it's chemo, I'm going to be miserable. I kept calling the nurse and she just kept recommending more stuff that didn't work. I recieved treatments every week and I was a soggy, weepy mess by the third week. When my Dr finally realized what was happening. He reduced the steroids down to almost nothing and my tummy ache improved dramatically.
I hope I didn't scare you. It's just that since you said "tummy ache" instead of "nausea", it raised a red flag for me. I wish I had known about this possible reaction earlier. I might have avoided 3 weeks of agony. It's rare enough that the very experianced chemo nurse hadn't seen it before.

Hi, Celste51. It has been a few days since your first chemo. I just wanted to check in and see how you're doing.

Hi Celste. Our journeys are similar. I am 62, also have stage III, had my surgery Feb 23, 1st chemo FOLFOX on March 31 and my second one today. My first chemo was awful, uncontrollable fire hose vomiting near the end of the Oxaliplatin. Today I just slept through it.

Hi Celste51, dead about you third day after chemo blahs, that is when it hit me also , although the fatigue lasted throughout my chemo treatments. I have a different type of cancer, different chemo but we have commonality also. We are both survivors, both diagnosed in our sixties, both with chest ports( I still have mine although I am 2years post chemo). This xxx disease takes so much physically and mentally. Just after diagnosis, my personal physician suggested an anti anxiety medication for me. At first I resisted, I do not like to pop pills, but relented only on the provision it be the minimal dosage. Hard to believe, it did make a difference in my attitude and ability to cope. Stopped taking it months ago, but would take it again if a recurrance should occur. I feel your loss, your anxiety, and know well the fatigue. You sound like a strong lady, and will get past this. When I first came to WhatNext people on the site all told me that the treatments for this disease were terrible, but DOABLE. I took that to heart. I am two years into remission, and back living my life. YOu WILL BE TOO. Take care. Talk anytime.

Hey just checking in to see how you are managing? Are you getting through treatment or has it been suspended? Sending light

Celste51, thank you for awarding me Best Answer! I really liked a few answers that were posted after mine, and if you want to take back the award and give it to someone else, I'll give it back to you! LOL!

Btw, I was in Toronto in 1976 or so, for a week. I remember Yorkville, and Spadina, and the harbor and how to pronounce "Bloor" Street correctly as "Blu-er."

Hugs -

That is read, not dead. Thought I had double checked everything before posting. Blame it on a lazy finger.

Celeste51, I see you're from Toronto ("the Good"?). Lucky you, to have Justin Trudeau as Prime Minister! Okay, I'm assuming something, so please excuse me if you don't like him (but he's so handsome, charming, intelligent and liberal!). I was in Toronto in 1976, I think; I remember Yorktown, Spedina, and the correct way to pronounce "Bloor Street" ("Blu-er"). Best, Carol

Hi Celste51, David asked me to help with posting. To post on your own wall as an update, just look at your home page, (this is the page that will show when you log in) and at the top of the page, middle you will see a text box, above it are the options to post a question, an update, or update your journey.

1. Use the "ask a question" if you have a question for everyone to see and give you help on

2. Use the "Share an update" if you want to just post something in general about yourself or your journey

3. Use the "Update your journey" if you want to add to the steps you have taken in your cancer journey so far.

Let us know if you need help doing something, or just post a question on the questions page asking what you need to know.

Hello and welcome, we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/colorectal-colon-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx. Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall. Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also.

Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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GregP 3X Survivor
WhatNext Community Mgr.

Hi again. Thanks for the follow. Let me know how I can help. What part of Toronto are you in? I have friends inHamilton

Hi Celste. Welcome to What Next. As you've seen, there are some pretty great people here. I'm glad you found us but sorry for the circumstances that led you here. Wishing you the best.

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter