Phoenix76

Thanks for supporting others by answering questions, offering advice and positive wishes! It does make a difference for them to see that other people have been there and are doing OK.
Greg

Thank you for your response to my question about caregiving. Good advice I will keep in mind.

I was interested and encouraged to hear your radiation experience, I am in 4th cycle of carboplatin/taxol and have the symptoms the way you did. I am nervous of the radiation that comes next, since I already have had some of the side effects (blood clot and swelling, did PT for lymphodema, but I don't have that thankfully. do those exercises and keep moving every day even if it's a shuffle.

I read thru your experiences. I have just finished chemo and about to start radiation. You mentioned internal radiation. I assume you are referring to brachytherapy. This is what I am considering and want to talk to someone that had experienced it. Let me know if this is what you had.

Hi there! I love your phoenix!

I would love to know who makes your wig that looks so real, what brand is it, I need a new one. Thanks

Hello,

I'm not sure if I've already asked you about this or not, we are looking for a few people that would like to share their cancer journey story in a little detail for our WhatNexter of the week articles we post. You can see some of them on our blog page here www.whatnext.com/blog and scroll down until you find a WhatNexter of The Week article. If interested we would need you to write us a little biographical piece describing your diagnosis, treatments, and how you're doing. You can look at some of the previous posts for an idea.
Let me know if interested, and if so email it to greg @ whatnext . com
Thanks for your input on the site!
Greg

Thanks for your post regarding my daughter. I just recently read up on the Phoenix bird after you related your screen name and pic. Very inspirational. My daughter sings for choir she gave up on musical instrument part. She's an active runner, runs out her thoughts you could say. Thanks again and hope you have a great day!

Thanks Phoenix . The Dr was explaining something similar with the same drugs you took. I wasn't sure if I remembered correctly.
I am meeting with the surgeon who will install the port on Friday and then he will schedule me. I am approved for both just waiting for the port to start chemo. I just would like this to be over so I can live back to my normal routine.

Sounds healthy and delicious at the same time!

Thank you for the info

Yes, people should live by 2 Timothy 7th verse. I was once timid, and the Lord changed that. My mom use to say when I was young, "speak up, speak up!" I would feel so bad. When I moved from what was a small town many years ago (Hackensack, N.J.) to a New York City tenement, I cried everyday and was genuinely afraid of area. I had lived in a middle-class neighborhood. Before I graduated High School, my grandmother who raised me passed. It was understood that after I graduated from High School, I was to go to my mother's apartment in the tenements, in Bronx, New York. When I arrived in New York City I was a mouse. Over the years, I have become the mouse that ROARS. A man about 40, rushed to get a seat on the bus as I was about to sit down. I said forcibly, " Oh no you don't. You better back off mister." He backed away and continued to hold on to the overhead straps. I love myself now. The squeaky wheel gets the oil.

I have been so busy. It keeps my mind from thinking about the cancer. I made earrings, I revised a song I wrote, I bought a tablet and love the brain challenging software I've loaded on it....also I like some stupid talking dog free downloads, gave clothes and shoes to those who needed them ( I was given beautiful clothes and shoes by two businesswomen who were moving out of the complex) and other activities. I hope you are feeling as well as can be expected. I think I told you that my new tumor stopped growing. My cancer has not advanced. I swear by the Graviola that I take. It is antitumorous. May God bless you with no pain. Ivy J

Thank you so much for your reply. Today has been a frustrating, angry, not feeling good or very grateful day. I appreciate it very very much.

Hi Phoenix, my journey has been a lot like yours, including issues with my port insertion. I have to tell you though that I do not miss my uterus, but I do have a huge scar that starts above my belly button to remind me it is gone - very large tumor 14+cm & leiomyosarcoma so no laser or robots for my hysterectomy!

Anyway, welcome to the group. I hope you find the support & answers you need & if I can help please let me know!

I am wondering why they waited so long to start your treatment? 7 months seems like a long time when you are talking about cancer.

Keep us posted.

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/endometrial-uterine-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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GregP 3X Survivor
Team WhatNext Community Mgr

Hi Phoenix. Welcome to What Next. There are lots of great people here. If you have any questions, please use the question tab above -- that way the entire network will have access & you'll get a quicker response. I'm glad you found us but sorry for the circumstances that led you here. Wishing you the best.

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter