MsMope

dear MsMope - just checking in to see how you are doing as you haven't posted in awhile. I hope all is well. Thanks for any updates you can give.

Hi I have uterine papillary serous carcinoma, stage 3C1. surgery last summer, about to have last (6) cycle of carbo/taxol, and then external pelvic radiation will start likely Feb. I will have CT scan after chemo is done. What have been your experiences? I turn 62 next week.

are you getting check ups every 5 months? I go every 3 and get a pap smear and ca125. My ca125 was never high to begin with and when I asked about it , the nurse told me it was not a good indicator for my cancer type but that it would work sometimes. When did they find your nodules in the lungs? How far apart do you get a CT scan? I starte the ordeal in Nov. 2012, so far NED but I have lots of xxxx every time I get checks.

Hi Sorry you are here but don't worry there are amny many treatments.

MsMope,
I wanted to look up where you were from. I grew up in a very small town from the age of nine. While that little town is still in my blood, I had no relatives there except my immediate family and many times I was reminded by the locals that I was not a native! I laugh about it now by as a young person it sure felt like I was looking through the fence of the country club.

I have always been blessed with friends that are my family which is a good thing I learned young as I only have a sister and a few cousins that live many states away. My friends have always seen me through tough times. I now live in a community over 100,000, and while it feels.like home Now, it cannot compare to the bond I felt living in that small town even if I will never be a native!
Glad to hear you did well with treatment and you certainly sound like someone I would be friends with and someone I would certainly send flowers to. Consider this a virtual bouquet.

Jane

I have USPSC diagnosed in Nov,'12. Had the robotic surgery, stage 1, did no choose to have a port, had 5 vaginal radiations and 6 carbo/platin. All has gone well so far I had no problems with the treatments other than being very tired and foggy brain.
Like you I feel I am not a fighter but a target that has to resist the barrage of fire. My cancer was detected by my annual pap, so I feel very lucky as it was early and very rare to pick up in this manner. But we do have a bad bug. I go every 3 months for a ca125 and vaginal not sure how often they will do scans but my last one about 3 months back was clean ,but I worried as in did not include the lungs only the base of the lungs, next time I will ask for it to be included.Good luck and God be with us.

Glad you are done and all is well. If the nodules are gone in your lungs it was probably nothing. Do enjoy each day as should every one who has not had this illness as no one can count on tomorrow. Love and God be with you.

MsMope,ran across your posts and read your history ,which could stand some updating.Enjoy your humor( goodbye lady parts). Never thought to take my husband out for a caregiver dinner but it is a good idea.He has been my rock through this whole process. All my nurses through surgery,hospitalization,and chemo were great but I do know what you mean about some of the nurses more clinical and detached than others. All the best on your journey.Take care.

Good luck, wish you the best, hope your scans after treatment show NED. My next 4 months will be treatments and tests. I'll be having radiation for 28 weekdays, along with chemo once a week. Then 3 rounds of massive chemo. The Dr told me I'm now stage lV says any recurrence is stage lV, very serious, says a fight for life!

Hi, At my first appt after surgery last July my dr said I was to have 3 chemo treatments. I asked him about chemo and radiation because I read it was the best thing going. He said no, wasn't necessary because my tumor was so small. Now after all those months he has recommended chemo and radiation! Duh, I wanted to say something, but I didn't . Hope you have better luck.

Hi, I finished treatments in May. I have UPSC stage 1. Let me know if I can be of help. God be with you. Virginia

Hi MsMope, I am a {as of Nov.6, 2013} 3 1/2 year survivor of UPSC. I am at M.D. Anderson in Houston, Texas. Let us all know when you get your treatment plan and if you have any questions. Best, Debra

Hi Ms Mope. Welcome to What Next. There are lots of great people here. I see you are quite new to your diagnosis, so if you have any questions, please use the question tab above -- that way the entire network has access & you'll get a quicker response. I'm glad you found us but sorry for the circumstances that led you here. Wishing you all the best!

Have grade 2 just finished 3rd chemo. Sorry you are here but welcome to club no one wants to be member of but not a bad group. Share, question you'll get suggestions.

Hope you had a great Thanksgiving Day.

Hello MsMope, and welcome to WhatNext.

Hi, my name is Judy. Have stage 2 serous uterine. My 4th chemo is Dec 10th. Will try to help if you have questions. Goodness knows, if I can't someone here can.

MsMope, You are starting a journey I started in 2011. I'm 67 and cancer-free. The one thing it took from me was trusting my own body(it cheated on me). But it gave Me so much more. I showed me that not one thing could defeat me..with the help of God, good doctors. good friends and my very best friend..My husband. You see, we had been very blessed in the health department. And, although we loved each other dearly after 44 years, we never had it tested. When you hear a word like 'cancer', however, 'forever' seems like a tentative future. Suddenly you think about endings you are honestly not prepared for. And you realize you are still married to your sweetheart. You do not want to be separated for even a moment. This is a terrible time to find out you have cancer. Nothing anyone says can change that. What I would like is to show you the other end of this journey. As terrifying as today is, be patient with yourself...feel whatever you feel(it's allowed)..and NEVER give up! Hope will get you over this bridge. "Be still and know that I am God.". You are in my prayers. Patricia

Hello,
I am an oncology/end of life nurse that specializes in gyne cancers. Welcome to the "What Next" family. If you should have any questions or concerns that you feel I might be able to help you with, please do not hesitate to ask. There are many excellent people here always willing to help in any way with the latest information or experiences to share. You are among friends….there are no strangers here. I hope you find all the information and support you seek, Carm RN.

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