Maddy61

We are just checking in with you to see how you are doing. How about an update? We hope you're doing well!

I felt exactly what you thought when the doctors filed into my room to tell me I had multiple myeloma and it was not curable.

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Maddy61, I am so sorry to read about your son and his fiance losing everything in a fire. My son and his girlfriend had the same thing happen on Super Bowl Sunday about 10 years ago (can't believe it was so long ago!). It was horrible to lose everything. They weren't as fortunate as your son - they didn't have many generous friends come through. Still, it is very traumatic. I'll be thinking of them as they rebuild.

Maddy Souch sad news about your son's apartment. I will remember your family in my prayers.

I wish I had known that it was going to be a new way of life (the new normal) 7 years later I can sleep 10 to 12 hours get up and take a 1/2 hour nap. Then sit up to eat and take another 1/2 hour nap. My new energy level is maybe 1/4 to 1/2 of what is was before 5 1/2 years of chemo for brain cancer. But I'm still here so life is good and I thank God every day for that.

Hi, Maddy! I see that you are a photographer and painter (once a painter, always a painter). I, too, am a painter, as well as a digital printmaker (I draw and "paint" in Photoshop). I have friends who went to SVA. Anyway, I just wanted to say hi to another visual artist on this site. Best, Carol

Maddy61.... Thank you so much for your feedback I really appreciate listening to your story and I will listen and take my time.

Maddy Please try to paint again. Perhaps at first it will not be what it was two years ago but you will have the thrill of improvement all over again. Sometimes in life you have to start over again relearn old skills; learn new ones. There have been artists who have lost the use of their hands and continued painting holding their brush with their teeth or toes. Of course making jewelry is a great art also. But if there is a painting in you, you must make let it come out.

Maddy, I'm excited we are following each other. I've really enjoyed chatting w you:))

Maddy61, you must be one of the patients like me where the M/M comes back. After chemo and stem cell transplant, I thought it was gone ....but one year later, it's back! Now they are going to try a new medicine, farydak. I see my oncologist this week to find out more. I'm not sick,I just tire ot way too fast! I can't get any projects done, because I wear out before I am through. I hope you can get some treatments that work. Judy

Hello and welcome, we are sorry for your diagnosis, but we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/multiple-myeloma

There are also subtypes listed on this page to narrow down the type of cancer to match your dx. Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall. Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also.

Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

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