LiveWithCancer

Has your cancer spread to other parts of your body? Bones, lymph nodes etc. My husband was diagnosed in Nov. 2015 with Seq. non small cell lung cancer has spread to his bones and lymph. Just wondering if anyone else has experienced this and what is the best treatment? He did 9 rounds of radiation and has done 3 weeks chemo, off 1 week and will now do 3 more weeks.

Hi LiveWithCancer. I have not been on much lately, have been really busy and just cannot seem to find the time. I have felt good so going and doing more and having less time for the computer. Just wanted to update you on my status with Opdivo. I was on it for 17 months and it kept my tumor at bay however this last cat scan showed growth in the tumor and some growth in my lymph nodes so I should have an appt scheduled soon to go back to Tennessee Oncology and see what else they have in clinical trials. Dr. Spigel had told me when Opdivo ran it's course that he had other treatments in mind. Please keep me in your prayers as I know prayers work. Two years ago was doom and gloom and I am still here and have led a pretty active life these last two years. I actually still feel great. Hope you are still doing great and enjoying your life, I do come on now and again and try to follow what is going on with you. You gave me lots of hope. Thank you so much for your posts.

I am thankful each day.

Hi live with cancer just going over people posted and wanted to wish you happy thanksgiving ...remember the lady with the 4 dogs..

I thought I read you could not have opdivo unless the chemo did not work. Did you have chemo and if so what kind? Glad to hear you are doing good with it and enjoying life.

Thanks for the concern. Teetering on going insane.

Thanks for your support. Your name says it all. Live with cancer. Realize I will have to do this. But how? If I can't get into research trial or as I hoped immunology. How do I do chemo
Again?

Walgreens called me in and said they had the generic Librax. I went there, and they said they didn't have it in the state Walgreen system-try Costco.

I've been going to Costco. The price is much cheaper for what they carry. This comes in only one size. I need 3 a day or I get diarherria and cramps. The mucus lining of my stomach actually comes out when I drink water and can plug up a hospital toilet.

This morning I realized that I will be out of thyroid. I called the doctor's office, sent a message on my medical chart. I just called Costco. Costco already filled my thyroid-the doctor's office called in a new prescription for Armour, but they haven't heard about my Librax generic. Costco has sent 2 requests for it this morning.

Costco has the med in stock, and they are holding it for me.

Please pray

Thanks for your response. We did the clinical trial pills for the 3% aggressive cancer and one of the side effects is tumors. Well she now has a tumor in addition to the colon liver lymph node in her left lung. Thursday is the big day of the reading of the ct scan. It's either going to be the chemo is working or there's nothing else I can do. Thank you for you and everybody's response. Dwigbt

Hi livingwithcancer..how are you..how did your trip to dc go...we certainly need more funding to find cures for these cancers..it's been quite a while since Nixon declared war on cancer..I just hope in my time people don't just go into remissions but real cures are found..

Hey! I know it's this week, but I lost track of exactly when. When is your big day? If it hasn't happened yet, best of luck, and remember they are just people, too. Pretend you're talking to all of us.

If I write something that has been suggested I write about cowboy n me... Would you proof it n help edit it?!?! You know I ramble n I'm scared I will lose something important about the story in the blog from my rambling!?!?!

HAPPY 62nd BIRTHDAY! !! YAY. My birthday is 9/14...Relax and Enjoy your birthday

It won't be anytime in the next week... It might be two weeks from now...

Thanks for the well wishes. Happy birthday! ! I will not be 342...just 42. So funny! !

Happy almost birthday!! And best of luck with that "speaking gig" next week. Speak from the heart & you'll do great!

hi live.im doing good GR. doing good to . we have her first dr apt for stem cell 15 sept. she is vary nerves. and afrad.and me to sounds like a high dose of chemo.to kill everything.

Hi livingwithcancer..thanks for answering..hope that you are having a great weekend..to answer your question I have a 14 year old pit bull, a frenchie, one English bulldog my first girl..and a small hot dog (doxhound)
I wanted to ask you a question how did you get into a clinical trial? I want to find out if there is any for endometrial endenocarcinoma

I have treatments every 4 weeks and scans every 3 months. I have already spoken withe the NP and I will be seeing the dr in a couple of weeks. I am just staying positive for now.

Hi livewithcancer, yes I have started treatment and so far hardly any side effect..thanks to the glory..I have 3 more months to go...I have 4 dogs and they do make me happy..but unfortunately I inherited my moms worried nature she spent 10 yrs of her life worrying about death till she died..I usually get Anxiety early in the morning than it goes away..I really like your way of thinking..I have stage 3 uterine cancer all taken out with surgery now doing a mop up with carbo..toxil for no recurrence..I pray that it works..and I truly appreciate your answer to my rant..please keep in touch

Hi, I am in Grapevine Texas. Hope you are enjoying your weekend.

Thanks for the well wishes. Been a very stressful fight. Can't believe still taking this long but can't wait to see the improvement after using it. Hope you are doing ok. Thanks again.

How is your 20 year old friend doing?

In response to your question on religion and cancer. I can only give you my answer on my faith and cancer.. I was 62 when I was diagnosed with Stage IV Ovarian Cancer... They did the surgery, removing a 39 pound tumor...(not a typo..39) Then he scraped cancer off my intestines and my urethra.... and placed a port under my skin on one of my ribs. When I asked how long I had.... he answered "SIX MONTHS. That was February 23 2006. I had six twenty-eight day cycles of chemo. Day 1... I/V; days 2 and 8 I/P using the port under my skin... to place the chemo within my peritoneal cavity. We complete all six cycles just prior to Thanksgiving.. I went back to see my Gynecologic Oncologist Surgeon in January... He wanted me to do more chemo... once a month for 12 months..... I did it. I had asked God to take my hand when I figured out what they were looking for... ie Cancer... I asked Him to lead me to where He wanted me to be. Here I am 72 years older, 3 grandchildren more, 4 great grand children... I know he still holds my hand and is still leading me.... Bless you and know that I have had several PET Ct Scans and they have all shown... No Evidence of Cancer.... May God bless you.

hi live my gf. is doing good last chemo was Monday know stem cell transplant. I think this month in milwakee wi . it takes three to for weeks for that.

hi live.lights here going for a ct scan again to see if that spot got bigger that will be 8-13-15 will have a follow up with cancer dr 8- 14-15 to tell me about the scan hope its nothing but if it is I will keep going on.

I had one 3years ago. It was good but the endoscope showed \
cancer of the esopogus

Thank you for your warm wishes

Originally, my immunotherapy drug was Merck, not sure of the name. The new immunotherapy they are putting me on is what you are taking, opdivo. Originally, I was told surgery was not an option, I suppose because it had metastasized. But, once they got those other tumors under control, like you, referred to as scar tissue, it did become an option since the lungs were where things were changing. The original plan was going to be watchful waiting with scans every 6 weeks, but because of the joint issues which might have been a result of coming off immunotherapy coupled with some other minor changes they put me back on. Well we will seehow it goes. You know I'll be saying a prayer for you today for your scans. Keep strong and God bless.

hi live. im good but didn't tell u but now I will my girl friend in march got told she has maltable milowma cancer.ben with her for eight years now. her kidknees.shot down. she is very sick.sorry for the spelling