Jalemans

Why dont they automatically give that...he is in a very rural area and I am six hrs away so I do all my discussion with the oncologist via speaker on my dad cell or I call her...She said his wbc was down but his Neutrophil count was still "ok"

Hi Jalemans! The appt went well and I was happy with the responses the doctor gave my brother, which were meant to educate not geared toward change my brother's stubborn opinions about his condition. He ordered 4 vials of blood for labs, will take charge keeping an eye on his progress every few weeks as nothing will deter Kurt from doing whatever invasive procedure necessary to remove the left nephrostomy bag. The main risks, obviously, would be infection, possible left kidney damage/failure/surgery to remove kidney. I'm also concerned they are messing around in the same area that still has inoperable moderately metabolic tumors. Is it a myth or can cancer spread if tumors are disturbed surgically? Thank you for your concern I'm a basket case today!!

I see you are on chemo. My white cells dropped like a rock with first two chemos, would come up with Neulasta. Oncologist cut my chemo in half. Said it wouldn't change treatment time. With shot 24 hours later I knew the bone pain would start but I also had the same pain when Neulasta was delayed due to holiday. Since chemo isn't giving you body pain (but other awful sounding) maybe the Neulasta won't be as bad. Shot on Wednesday, Thursday eve thru lessening on Sunday.

Why no site visits for work?

I had thyroid symptoms, but just thought swollen when I was sick. My pcp felt a nodule and wanted to run tests, but I was already going in for D&C, so we both let the ball drop on that one. It was found after my uterine cancer treatment, during a follow-up Pet Scan. All those cancer docs feeling the neck and none noticed anything?

Just sending you lots of extra hugs. I was diagnosed with stage I TNBC while undergoing treatment for advanced renal cell (kidney) cancer. I know how frightening finding something new on another part of your body while undergoing treatment is. They also found nodes on my lungs - but they were/are begin- they come and come from scan to scan.

I am also here to virtually hold your hand and give you a shoulder to cry on.

Jalemans,even though we have different cancers our prognosises are much the same.IIIC ovarian cancer also has a 70% recurrance rate. Someone has to be in the 30% group.My husband has difficulty preparing for what could be,here we are at 67 and 71 and do not have wills.For now I am content to enjoy my remission and have some us time after the whirlwind of surgery and treatments we have had this last year.Wishing you the best with your treatments and hoping soon you can enjoy your post chemo life.None of us are the same after cancer as before.You are not a whiner,you are a survivor.Take care,talk anytime.

How are you feeling after 1st chemo?

Thanks Jalemans. I doubt I'll give you a run for the 2 hour record you must have set, especially since I hate computers. If I enjoyed the act of filling out forms for anything JUST A LITTLE BIT MORE...I'd simply hate it. Be well.

Jalemans, I have Serous Carcinoma but know there are several on this site with Leiomyosarcoma. Follow Greg's suggestion about using this site. Or, just ask your question someone will show up. Take care. Judy

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/endometrial-uterine-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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GregP 3X Survivor
Team WhatNext Community Mgr

Hello. I see you are new to the world of cancer. I know you're scared, as I was terrified. At first, I was just scared of the robotic surgery (they kept showing commercials for it). Then, when I was diagnosed as stage IIIC, which is done during surgery, I was told I would need chemo and radiation. Then, I really went into a tailspin. I had to have a port put in, which is an outpatient surgical procedure. It was terrifying and painful, but made chemo easier. So, then, I had 3 chemo sessions, with an allergic reaction to it the first time. But, they took care of me, and managed to make my body allow the chemo in. Then, I switched midstream from chemo to radiation for 28 sessions. It gave me severe diarrhia, which I still have sometimes. Then, finally, I switched back for the last 3 chemo sessions. I completed my treatment in Dec, 2011. So far, so good. Then, I was diagnosed with thyroid cancer in 2012, and that is also in remission. So, just take it one day at a time. I know there are lots of appts and all of it is scarey. For me, I have a fear of the big machines (claustrophobia), which just adds to my joy when I have to go for tests. Now, they seem to just want to do blood tests, which is fine with me. I with you good luck on your journey.

Hi Jalemans. Welcome to What Next. There are lots of great people here. I was diagnosed w/stage IVb endometrial cancer in July 2012. Still ticking. I'm glad you found us but sorry for the circumstances that led you here. Wishing you all the best.

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter