FreeBird

Activity

  • Kristinaako
    He spends most of his days sleeping. I guess the combination of drugs they giving to him. Not much appetite.
    December 2012
  • Kristinaako
    Good morning:"-)
    How is your dad surviving holidays? My friend is in a procedure to do stent.
    Do you know how captain Bob is doing?
    December 2012
  • Kristinaako
    Hey Freebird:"-)
    Happy holidays to you and your family.
    Did your dad opted for a stent? We are going to OSU day after christmas for that procedure. My friend's billerubin is still quite high about 8.0. We need it to be around 2-3 to be considered for clinical trial. He feels terrible.
    December 2012
  • Lucia
    Hi, just wanted to check on you & how things are going... :)
    December 2012
  • haleezcomet
    Thank you, my prayers go out to your dad and family.
    December 2012
  • Deb949
    Thank you FreeBird, well said!!
    December 2012
  • 4HeartsBroken
    Hello I was just stopping by to see how your dad was doing?
    December 2012
  • Kristinaako
    Jim been turned down from IU for clinical trial because he is jaundaced. Stent is not an option. Admitted to OSU in columbus to install a drain to relief bile that backs up in his abdomen. It might buy him more time. I am terrified of this procedure.
    December 2012
  • zappons
    HI Neighbor! ( I am just north of Tampa area) Thanks for your well wishes. How are you doing now?
    December 2012
  • Kristinaako
    My friend turned yellow week ago. Because he is jaundiced he is no longer eligible forIU clinical trial. So we going to OSU on Monday. The stent placement is not an option. The way tumor grew . I am so not prepared.....
    November 2012
  • Tracy
    Thank you for sharing your experience, caregivers go through so much that is frequently not shared. From all of us, we thank you for your gift. Tracy
    November 2012
  • greensmythe
    Thank you for sharing your story today. I am new to all of this and often scared and angry. After a successful brain surgery, which showed a benign meningioma five years ago, I thought my nightmare had ended. But, two weeks ago, I was rushed to the ER for a rapid heartbeat and during a routine chest Xray, and then a further CT scan it was found that I required a lung biopsy. After this procedure, a doctor at the hospital diagnosed me with Stage IV lung cancer, -there is more and because off this great site, I got the name of the IU Simon Cancer Center in Indianapolis and have gotten a second opinion there - and I am hopeful - I am grateful for this site and the people here, who, like you have, share their stories and experience to those of us who feel as if we are climbing a mountain in the dark.
    November 2012
  • ckah55
    Thanks for sharing your story, Freebird.
    November 2012
  • mgm48
    Great sharing - thanks . I was just trying to come to grips with a sleepless night (was it excitement or fear of tomorrow) somnehow your story set me back to today and I'm thankful for it.

    Keep it positive and smile :)
    November 2012
  • abrub
    Why the mandala? I've watched the monks make them - wow! I've also watched the destruction. We've had lots of involvement with Tibetan Buddhist monks - housed them numerous times. Lots of fun.
    November 2012
  • angelsteph
    Thank you FREE BIRD ~ So sorry to hear of your cancer ~ Hopes and Positive Thoughts that your treatment is successful ~ You can follow Steph's Celebration on FACEBOOK at http://www.facebook.com/CelebratingStephanie We would love to have you and stay connected....

    Sincerely....
    angelsteph12@gmail.com
    November 2012
  • Nancebeth
    And I looked way different when my hair was even longer. Thanks for the compliment, I like the short hair better, too.
    Happy Thanksgiving.
    November 2012
  • Kristinaako
    Did your father had jaundice? My friend Jim turned yellow couple days ago. We are waiting till Monday to go back to his doctor.
    November 2012
  • krissyann64
    Hello. I’m new here. Just wanted to say hello.
    November 2012
  • visitacion
    Thank you so much. We do need a lot of advice and support from you. Thanks again
    November 2012
  • 4HeartsBroken
    Oh hello I didn't notice that you commented on my wall :)
    November 2012
  • GregP_WN
    Wishing you and Dad the best in the journey ahead. It's tough, I know.
    November 2012
  • mamasdaughter
    Haven't been on in a while. Been dealing with arrangements, etc. for Mama. Just wanted to check in on you and your dad. How are things?
    November 2012
  • Joy535
    FreeBird,

    Thank you so much for your answer, and for "being here" for all of us! You're right; I'm not ready to quit. My gallbladder cancer was caught early just by a fluke. I had breast cancer, lumpectomy, chemo and radiation 7 years ago, and been getting chemo marker tests yearly for that. 9 months ago the breast cancer tumor marker came up just a little elevated (from a normal 20-22 to 45). We went on a 3 week 50th. anniversary trip to visit family in California; and when we got back home I had another tumor marker test which was a little more elevated from two different labs. A CT scan was done which showed suspicious lesions in gallbladder, lymph nodes, and liver. We were thinking a recurrence of breast cancer, but the liver biopsy showed it was new gallbladder cancer. I had no symptoms, no pain, no jaundice, never had gall stones, nothing to indicate anything was wrong inside! And I still feel "normal" after 12 sessions of chemo.

    Fortunately we have an excellent medical facility here in Kalispell, the only surgical oncologist in the state that does the kind of surgery I might need (who has already done very technical surgery on both my husband and me), and an excellent oncologist who we trust implicitly. Our daughter and only grandchild live two blocks away, and she works at the hospital in the lab.; so we are very well taken care of there. Our surgeon told me that if there was cancer left after they biopsy that lymph node he's concerned about (they're going to do the biopsy with an endoscope that will go down and can take the biopsy without any surgery or invasive procedure - another Dr. who is the only one in the state doing such work), that even if I had no further treatment I could expect to live well at least another year. After what you've said, I feel that I probably will be able to achieve my goal of being here to see my 5 year old grandson enter college 13 years from now...

    My Mother's favorite hymn was, "In the garden" which has the refrain "and He walks with me, and He talks with me, and He tells me I am His own, and the joy we share as we tarry there no other has ever known"... I often go walking around my home enjoying each season, and I will continue to do that with Him...
    November 2012
  • Kristinaako
    Thank you for thoughtfull reply. What's interesting that our oncologist is moving to Australia in December. Perhaps, we can pack and move with him!!!!
    I am also talking to Carm about Byrzynsky, what do you think about him?
    November 2012
  • Linda2010
    Did your loved one have any surgery for the pancreatic cancer? Also what is his CA19-9? I get so frustrated with the CT scans. One time they will see 3 or 4 new spots in the lung and next CT they are gone. The only metastatic lesion he has is the one in the lung. Even when they did the biopsy it was not 100% that it was from the pancreas but that is how they are treating it. Did your love one go to the MD Anderson Hospital?
    November 2012
  • Kristinaako
    Is your dad still in chemo? My friend have 1 more round left of 5FU. But his oncologist advised to skip it and start on gemsar. His cancer count is up to 18 thousand.
    November 2012
  • nobrand
    Home is where the cats are! And so far, they have been the best medicine for me. You're right about the hospital bugs... sure it's probably safe to be monitored 24-7 like this, but my contact with strangers is up about 10,000% compared to home.

    The doc let me go because I'm going to have to come back and be checked in soon anyways.. he's giving me a mental break!
    November 2012
  • pixel_bunneh
    Hi there FreeBird! Just wanted to say Hi to a fellow Floridian :)
    November 2012
  • Onoi11
    A neighbor just mailed information about the benefits of lemon and lemon peel in combating cancer. Has anyone heard of this?
    October 2012