haleezcomet

I was trying to add to our discussion but my brain is not technical tonight. I had a reoccurence happen 30 years after the first. The treatment was SO much easier with the exception of having to go without thyroid for 3 months. That was really hard!
The way it has been explained to me is that the endocrine system responds to stress by triggering a call through your body for the hormones produced by the adrenal glands and the thyroid (as well as others) those with thyroid cancer need to make sure that this call is not answered. Other cells will try to become the answering response by becoming thyroid and then become malignant. In my case it was a lymph node since it had spread before being found.
They don't normally test for T3 since most people are able to create T3 out of T4 and don't need it specifically. Every few years I do a specific test that tests for antibodies that gives a result to indicate whether we need to do further testing for cancer. This is an expensive one :-)
As you can probably tell I have lived without a thyroid for a very long time, If you ever want to talk or exchange emails let me know. You do need to have a specialist who knows about thyroid cancer. Another good resource is http://www.thyca.org/ - Tracy

Hope your doing well, and those tests come back like you want them to.

Let us know if we can help you with anything around the site.

Hi,
Am I reading right that you are on a dose of 125 mcg as a replacement dose for your thyroid after Thyroid Cancer? I spent many years on 200 mcg - this is considered to be a normal replacement dose for Thyroid Cancer (I now take higher after it reoccurred). I have had arguments with Dr's who wanted to lower my dosage. It must be higher than a normal replacement dose to suppress the endocrine system from triggering the thyroid as it normally would. PLEASE - if you don't have an endocrinologist who is familiar with thyroid cancer you need to find one who is, this may be why you are having trouble. I used to keep an article on thyroid cancer treatment that covered this in my medical records for just this reason, Dr's treat as if you are a regular thyroid replacement but we are different ;-) - contact me if you want me to find more info for you, Take care - Tracy

Hi. Welcome to the WhatNext Forum. If you have any questions, or want to share your experiences with others who have questions, a good place to go is the area labeled QUESTIONS in the purple bar at the top of the page. There are people here who have been discussing thyroid cancer. I haven't so much. My cancer is a blood cancer. But, look around. There's a lot here.

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