CAS1

Thanks. I really appreciate it.

You answered a question I asked about tumor profiling for endometrial cancer that had spread to my lungs. You wrote about a post you made regarding freezing lung tumors. I can't seem to find or access this link. Can you tell me where you found it or give me a brief synopsis of the procedure? Thank you.

just up north from you. Saw this post but can't access rxwebsite. This is treatment I have/am receiving. how are you doing? Stage?

Seeing you describe the discomfort in my chest as "squeeze" was brilliant. That is the best word to describe it. Thanks for sharing!

I have been having lots of problems with my pain meds, pain mgmt doc put on 100mg fendayl patches 2 months ago and i was in lala land for a month, i finally just tore it off and went cold turkey, with withdrawals etc. The same doc then put me on dilidud and methadone. the methadone built in my stystem and almost stopped my breathing Again after a trip to the er and chest pain I again stopped the methadone,withdrawals etc. I have an appt Monday with my ongoloist and amrefusing to go back to that pain mgmt doc because he said those are the only pain meds avaivalbe to me,(I know better) I hope we can get my pain under control without lala land I already have to give lot s quialtiy of life

Glad to hear you were able to find Livestrong at one of your Y's. It's a fantastic group. I started back in January. I've since completed the program but joined the Y when I was done so I could stay with the group. I've lost about 35 pounds and there are no signs of me slowing down. I honestly don't think I would have stuck with it otherwise. Good Luck!!

you do mean ste-roids....not "hem"-roids right? LOL!!!

thank you for your response. From what I am reading...seem to be good results from proton therapy but only a total of 20,000 have been treated since 2008...and that is for all cancers included not just colorectal. Still on the fence about it. Went to see my radiation oncologist and told him I had to either rule in or rule out the proton therapy before I could move forward....

This is greensmythe- I have had mutation testing and was told no radiation due to the size of the tumors-too small

Thanks for the tip on Isotoners! they are currently on sale at Target for just $7.00. Very cool that they work with electronics. Thank you again for the tip!

Hi CAS1,
Just wanted you to know that I met a 72 yr.old man this week who is a 20 yr lung cancer survivor. Told he had small cell iv and only 6 mo. to live. He had no surgery, just radiation and chemo.
He's doing fine.
No reason that we can't do the same!
Stay Well,
bronxboy

Hi Cas 1,
Always think of youself as being in the % that gets cured and not the other. You're well on your way. Good Luck!

Thank for the message,,, I have been trying to get up and move around.. But after only half of a day, my right side of my chest feel like I have a really bad sunburn really bad,, I am trying to be positive but it's getting Harder to do that,,,,, sometimes I just feel like giving in...

Good Luck next week!

Hello and welcome, we are glad you found us. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, any questions you may have just post them in the questions tab and everyone will see them there and be able to help you.

https://www.whatnext.com/conditions/cancer/lung-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

Greg P
3x survivor
Team WhatNext

Welcome. Thank you for registering. Here are a few tips to get you started:

1) Find other people like you. You can do this by clicking on "see more" in the "People Most Like You" box to the right.

2) Go to our Questions page to see what's been posted, ask a question or give some advice. Here is a link to our most popular questions: http://bit.ly/MfN45w

3) Complete your journey profile to share your experience. You can do this by clicking on "Add Experience" in the box next to your picture above.

4) Don't forget to upload a picture!

Thank you for being here and sharing your story. If you have any questions, please check out our FAQ or contact us.

Best,
Team WhatNext