dianalynn

Hi Diana,

I was just cruising around the site and wanted to say hi. Thank you for being such an appreciated member of the WhatNext family. David

What are you doing to stop the progression? Vitamins won’t do that.

Everyone has there drugs differently. I was on Letrozole until it quit working and the cancer spread. Now I am off that and doing Ibrance, faslodex and Xgeva. Does the Ibrance work for people ? It only is good for 9 months. Then what? It's too bad people have to worry about how to pay for the drugs. We have enough to worry about.

I was dx with stage 2 BC when I was 44. 17 yrs later it came back other breast 17 lymph nodes. It's gone to my bones. I am stage IV, HER2+, estrogen/progesterone+. Now that the Femera quit working and cancer spread more I'm on Ibrance, faslodex, an Xgeva. Just starting I hope it works. But I know it only works so long before the cancer starts spreading again. Hope they keep finding something new for us.

I have been on Ibrance and Femara for about three months. I am stage IV wth mets to spine and ribs. I was taking 3 weeks on 1 week off 150 mg. But i could not tolerate the ibrance and white blood cell count very low. Since changing to 2 weeks on 1 week off and 100 mg, I am doing much better. When i am taking the ibrance, i do notice being more tired and more nauseated. I am also loosing a lot of hair. But side effects are tolerable and my blood markers have really improved. I get a pet scan early march. I believe the ibrance is doing a lot of good and my body seems to have adjusted to this drug so side effects are less. Other than the hair loss!

Thank you Dianalyn, I was just telling my husband how alone I feel thru all this. I'm hoping to find some friends to talk with.

IF YOU WROTE ME A MESSAGE I CANNOT FIND IT,
?

Thank you for connecting with me.
Been through this before so any questions or concerns let me know and I'll do the same

Hi, I saw you answered that Acupuncture does work for hot flashes. I am going to try it during my first Chemo treatment in 8/25. How long did you do it before you noticed a difference in them and is there a particular type? Thank you very much

Hi dianalynn....got the results of Pet scan and it was all clear!! Even the spot on the sacrum was gone. Although tumor markers dropped almost 200 points they are still not normal But I figure I have 3 months of smooth sailing until markers are scheduled again. Hope you are well and enjoying the nice weather. Catch you later.....:)

Hi dianalynn, I see from your profile that you are stage 4 for 4 years. That's great! Gives me hope. I just got stage 4 diagnosis recently. I am going for PET scan next Tues. I am currently on Letrozole. What are you getting? Hope it is working for you and that you feel OK. Catch you later.....:)

Hi Dianalynn. I saw your reply to Christine's post and then decided to read your wall. I noticed you were stage 2 er/pr pos which is what I am. Then I noticed further down on your wall about Lupron. I basically talked my doctor into giving me Lupron now (starting next week). He says it isn't recommended for early stage blah, blah and I told him I wanted to be as aggressive as possible now in hopes to stay where I am at... cancer free. Do you also take tamoxifen? I hope you feel well most of the time. Hugs - ROAR

Hello Diana,
Thanks for following me.
So you were diagnosed 4 years ago with stage IV. What treatments did you have and how are you at this time? Thanks

I like what you said about regrets-but follow the heart. I worry, she might not have a supportive family life. If she's worried about getting through treatment without support, she should think of the unrelenting physical misery of dying without support. You just don't say- I feel bad-I'll die tonight without committing suicide.

If I was still married to my husband, it wouldn't have been good at all.

Hi, are you on tour now? or are you going to tour only in the fall? I'm being a nosey rosy. I hope that you have a good New Year

Are we the only ones that can read our posts to each other? Just wondering ... I'm guessing they only show up on our home page?

When were you initially diagnosed?

I too have metastatic breast cancer - I would like to "talk" with you & compare journeys. What kind of treatments are you receiving right now?

Hi Dianalynn, Thanks for responding. Tell me more about your story. Was this your first dx? Were has your BC spread? Mine in is my lungs and few lymph nodes in between my lungs. No bones or other organ mets at this time.

Hello and welcome, we are glad you found us.Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/breast-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

You may also find our "Beginner's Guide To Cancer" page helpful Click Here for that=> http://bit.ly/10BQKCi

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

Follow Us on Twitter Click Here =>http://bit.ly/XExkce
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GregP
3X Survivor
Team WhatNext Community Mgr.

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter