lola08

Activity

  • beegee
    I also had he "locking" sensation in my right thumb . The onset was quite sudden and left a couple of months later on it's own. My doctor said that "trigger finger" is very common with use of an aromatase inhibitor...good luck...hope yours gets better!!
    March 2014
  • lilymadeline
    Hi Lola08! I saw that you are on Arimidex and Faslodex. I've been on Arimidex for years but my oncologist decided to add Faslodex because my markers have been climbing lately...so I got my first injection yesterday. And boy I feel awful today...is that normal? I can barely move and get out of bed and I wanted to reach out to somebody else on this drug combination and I found you. Does it get better? Take care and Thanks so much!
    November 2013
  • SueHarris
    Hello, I too live in cape. I'm cancer free since Aug. 13,
    January 2014
  • Rowrow
    Cold Caps worked oK ....I do not still have my long hair but I had enough hair where I did not need to wear a wig. My hair is starting to grow in well and I am glad I did the cold caps.
    November 2013
  • JODYRJ
    I'll go ahead and put the poster on the pinboard (or wherever it is that one can post full-size!) I wish the icon pictures were a bit bigger so we could see all the members better. GregP gave me the idea when he got his Tran poster done. Go to Tran Creative, like their page and there is a link where survivors can post info and get a poster done - for free! It's a wonderful service and wonderful to see their "wall" of posters. (Love your picture - we also have a bit of commonality. I was IIIB at initial diagnosis, made it 12 years until Stage IV recurrence this past year.)
    October 2013
  • JODYRJ
    I didn't realize you had sent me a specific question - still not sure I know all the "ins and outs" of using this site. You asked about my current treatment plan. Initially, once we found out the cancer had spread - mostly to bones, a few other items, no critical organs - we went back on Femara and added drugs to directly address cone strength. Forgot the name of the first infusion for that, and then moved to monthly Xgeva shots. The tumor markers seemed to respond in the right direction; however, they soon turned around and started climbing month-over-month. Not good. We did move to Faslodex, but only for a couple of months as the numbers continued to be non-responsive. Additional scans showed fluid building up in lining of the lung, also caused by cancer cell build up. So, I reluctantly agreed to a chemo regimen and am 5 treatments in to a 12-treatment (6 cycles of 2 week on, one week off) with Eribulin. Continuing Xgeva. Handling the chemo relatively well (have failed at finding anyone else on this drug to compare notes); will probably wait until end of this treatment to do any more scans to see what's happening. Have had lungs treated three times by a thoracic surgeon to drain the fluid, continuing to hope the chemo will cure the underlying cause. Hope this wasn't way more information than you wanted! Thanks, J
    September 2013
  • dmholt1957
    Hi Lola, I also have had a recurrence or as my doctor says another type of cancer this time. I have had both breasts removed with in one years time. I hope that you are doing ok on your journey. I am 55 years old and never would have thought about having cancer like I did but God is never wrong and He has His purpose so I just have to trust in Him and He will see me thru and I know that He will see you thru too. God bless.
    September 2013
  • GregP_WN
    Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, any questions you may have just post them in the questions tab and everyone will see them there and be able to help you.

    https://www.whatnext.com/conditions/cancer/breast-cancer

    There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

    You may also find our "Beginner's Guide To Cancer" page helpful Click Here for that=> http://bit.ly/10BQKCi

    Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

    Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

    Greg P
    3x Survivor
    Team WhatNext
    Community Mgr.
    April 2013
  • DaveWaz

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    David
    Founder, WhatNexter
    April 2013