lilcat

Hi Lilcat,
I'm glad to find someone whose diagnosis and experiance is very close to mine. I also am stage 1A clear cell and thought I was going into surgery for fibroids. Though, because of inconclusive imaging, the Drs. did say that there was a very small chance that what they thought was a fibroid could be ovarian and an even smaller chance it could be cancer. So I was somewhat forewarned. I only had one surgery as I was lucky enough to be at a large teaching hospital with huge resources. A preliminary pathology was done while I was in surgery and when it came back cancer, a gyno-oncology team came in and performed the hysterectomy and debulking. Unfortunately, I had complications after surgery; small bowel obstruction and TIA stroke. I try to find the upside of everything and the delay for Chemo caused by the complications allowed me lots of time for research into clear cell. If you are interested, I can give you the sites with the most pertinent information.
Are your Drs recomending Chemo? There is alot of controversy about it for our stage of clear cell. I did finally make the decission to have chemo, but I will never know if it was the right decission. I'm currently on the third infusion of the first cycle (4-6 cycles) of a dose dense regime of Carbo and Taxol. It is not fun!
Stage 1A clear cell comes with it's own unique set of problems and decisions that some Drs and other cancer survivors tend to downplay as they consider us "lucky". I know it could be worse, but I still don't think "lucky" and "you have cancer" should be used in the same sentance.
Hugs, prayers and happy thoughts for your journey.

I have had the combo you are getting ready to start. If you have any questions I would be happy to answer them as best I can.

WOW. I CAN'T BELIEVE HOW SIMILAR WE ARE. I HAD A BAD FEELING ABOUT MY LOCAL GYNECOLOGIST. SO TOOK MYSELF TO UCLA. MY UCLA GYNOCOLOGIST WORKED OUT SURGERY PLANS A, B C, D, E DEPENDING ON WHAT SHE FOUND WHEN SHE GOT INSIDE. PLAN 'A' WAS MORCELATION. THANKFULLY, SHE CHOOSE TO MOVE ON TO PLAN 'B' AND EVENTUALLY PLAN 'E'. I'M SO GLAD THAT YOU GOT YOURSELF TO SLOAN KETTERING AND THAT YOUR PROGNOSIS IS STILL SO GOOD.
I'M WISHING YOU ALL MY BEST. WHEN DO YOU START CHEMO?

lilcat, welcome. My family found this site months ago when I was diagnosed with IIIC ovarian cancer. Your IA diagnoses means your cancer was caught early and your changes of a forever remission go way up. Don't know what your medical team's game plan is but do know it is doable. Share your experiences and ask questions or vent. We are all here for you. Take care, talk anytime.

Hello and welcome! You've come the perfect place for information and support. This is a great group of folks and all of them have experiences that can be helpful to those of us fighting (and beating) cancer.

I'm happy to answer any questions about my experiences and treatments and am sending out healing energy to you.

Hugs,
Diann

Lilcat,
Welcome to the WhatNext family. I am an oncology nurse and I amalways aavailable to answer any questions you may have. Best of luck to you, Carm RN.

Hi,

We are here to answer questions when you have them. This site has been so helpful to me in the past 6 weeks!

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/ovarian-and-fallopian-tube-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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GregP 3X Survivor
Team WhatNext Community Mgr

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter