Pinky7

Hi Pinky. I see you've elected to follow me. Please let me know if I can help in any way. Previously I know you'd been having issues w/pain. Are things better? Sure hope so!

It sounds like you've had even more treatment than me. But, you are young, which makes it better to tolerate all the treatments they have available. Just keep up with your follow-up appts and hopefully you'll be healthy for a long time to come. I'm currently celebrating 2 years since completion of treatment for uterine cancer, 1 year for thyroid cancer.

Glad to meet you Pinky7. Last time I was on this site I had a hard time finding clear cell survivors; not too many women have this type of CA. I will keep you in my prayers and hopefully be in touch via What Next. What a blessing to know there are survivors out there. We need that hope and encouragement. How are you? Hope you now able to better manage the pain. By the way I am 69 yrs. Stage 1A, 5 mos out of radiation.

Hi Pinky7, hang in there. I know having cancer and having to go through treatment sucks. I'm really sorry to hear that your family isn't being as supportive during your treatment. You know if you need support or need to talk or vent, you can do it on here or you can even connect via email with any one of us. We're a family here and we understand what you are going through. You are not alone. I'm rooting for you and just know I'm here for you if you need to chat.

I had been on the Cisplatin regimen, then Cisplatin/Gemcitabine, then the had me on Cisplatin/Taxol, now I'm doing Carboplatin/Taxol. I won't lie to you, it's tough, but I have faith that you can get through this. Going through treatment is no piece of cake, but you can still enjoy life. Every day is a blessing, even if one of those days requires me to be bed ridden most of the day, or kneeling over the toilet. I know tomorrow will be another day and I just try to enjoy it as much as possible. You are in my thoughts. Sending tons of virtual hugs your way. Keep smiling.

Hi Pinky. Best of luck on chemo. I completed 6 sessions of taxol/carboplatin on Jan 10. I was fortunate in that most of my side effects were mild. The worst I had was severe leg pains 2 days after my first session. If this happens, please know -- it goes away after a couple of days. I sort of freaked out when it happened to me. Wishing you successful chemo w/no more than minor side effects!

I had the carbo taxol treatments every 21 days for six treatments. I did have some side effects but they varied over the course of the treatment. The nausea was very mild and I never vomited. I did take compazine for the first couple of days whether I felt nauseous or not. The nurses had instructed me to do that.

My hair started to fall out about two weeks after the first treatment. I felt a tingling in my scalp about a day before I started losing my hair.

After the first treatment I had bad pain in both knees and after the second treatment it was only in one knee. I now think these pains came from the Neulasta shot I had a day after each chemo. Both taxol and Neulasta can cause bone or joint pain, but in general I think Neulasta side effects tend to decrease with each treatment whereas taxol side effects tend to get worse with subsequent treatments.

After my third treatment I got some neuropathy (tingling and numbness in fingers and toes). I also started having some gastro-intestinal problems. My doctor reduced my dose of taxol for the last 3 treatments and the neuropathy didn't get any worse and now is almost completely gone. My stomach problems also got better, but that has taken longer.

Good luck with your treatments! Sue

Hello and welcome, we are glad you found us. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, any questions you may have just post them in the questions tab and everyone will see them there and be able to help you.

https://www.whatnext.com/conditions/cancer/endometrial-uterine-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

Greg P
3x survivor
Team WhatNext

Hi Pinky. I also have clear cell endometrial cancer. I finished my chemo (carboplatin and Taxol) in October, and my picture shows the regrowth of my hair. It is quite thick now, and I am feeling pretty good. Feel free to ask me any questions about chemo. I only had 3 internal radiation treatments, no external ones. I am 61, stage 2, and live in NJ. Sue

Your journey sounds very much like mine Pinky. I had 6 taxol/paraplatin chemo treatments which started a month after my total hysterectomy. I also had 25 external beam radiation treatments as well as 2 internal treatments.

Wishing you well.

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