Norselady

Hi Newman, that is an incredible story. Really makes me think.
Are you on the thyroid sisters website or thyCa.org? They are good sites

I'm 62 and had left lobe of thyroid removed in 2008 after biopsy showed papillary carcinoma. I was told that the right thyroid was left in tacked because no nodules present. I've had had ultrasounds of right thyroid without incident. I just got results back & now it shows nodules in rt thyroid has nodules & left side shows lymph node w/node.
Crap I had ultrasound 7 months ago and no signs of nodules.

Norselady,
How are you doing now! Did you have radiation? I had right lobe thyroidectomy in 2008 then put on so
Synthriod/Levothroxine 88. Mcg. I had ultrasounds every 6 months then it changed to once a year. The ultra sound 2 weeks ago showed nodules & lymph nodes with nodules. I also had hoarseness, trouble swallowing & difficulty sleeping. In 2009 I had breast cancer & lumpectomy, twice. I was put on tamoxifen for 5 years. I developed difficulty breathing & MRI shows 3 nodules.

I switched medical plans that now show nodules in right thyroid & only 7 months earlier the ultrasound showed no nodules. I m not sure who to believe.
It's so hard.

I am really sorry to hear of all that you have gone through. I too was going to one of the best Dr's. in chicago from the prestigious Northwestern Hospital. Would see him 3-4 times per year and always said" Iw ill do anyhting" not to put my family through a cancer nightmare" I did all my screenings on time. Then when I complained of night sweats he put me on hormone replacemnt therapy. in 6 months I developed Lung cancer.
I am considering taking legal action. Have you considered an attorney? Its the only way to get these Dr's to change.
All the very best,

Excuse the frequency of contact, I am trying to solve some problems I am having with this website.

Hi, Norselady! I am happy to friend you, but I'm not sure how to do that, so let me know what I'm supposed to do on this site. Although this is my third cancer (two primaries, one recurrence) in two years, I've not really gotten active on this site until lately, so I'm still learning how to do things. I am happy to meet you, regardless of whatever info we share.

At the moment, my ovarian cancer, which went into remission last August, has reared its ugly head again and I'm back in chemo for that.

I also had my thyroidectomy for thyroid cancer in March of 2013. I had trouble breathing from the get-go and ended up with a tracheostomy for 10 weeks, and now a paralyzed vocal cord. It took away my ability to sing as a soprano, but I'm learning to do what I can.

I am so sorry to hear about the experiences you had with your doctors! No one should have something so serious overlooked! And I've been sitting here for 10 minutes trying to say/not say all the things that come into my mind. I know how I feel, and I know how important it is to be positive. I think I would feel angry and resentful for such a careless mistake. But those thoughts do not bring about the peace and "positive" that one needs to fight cancer. Yet, I would feel that anyway, I think. And, of course, what matters is what YOU think, and how you deal with it. I pray for you to take care of yourself, however you do that, and that you will heal and be joyful.

I would like to be your friend, and will keep you in my prayers. I'm sorry if my response seems trite. What we are going through is so unique, and many people have tried to help me. For me, the love and encouragement is huge in my fight. So, put me in your arsenal! God bless you!

Linda

Re; Dearest friend,

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I have been touched to donate from what I have made from this World to
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email me favourmicheal24@ymail.com with your contact information such as Your Full Names, Address,
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Best Regards.
Mrs Nanthana Chansithipongse

I had my surgery in Wisconsin but not in a large city. I had a really good surgeon but the follow up care was too much for the nurses and hospital that I was at. I had surgery on a Wednesday and was released on a Saturday morning, I was readmitted to the hospital the following Monday for another 4 days. So a total of 7-8 days but like I said, I had complications that were not caught. Maybe my surgeon should be to blame but as soon as I came back to her that following Monday she was on top of it and ensured that my second visit that the nurses were taking care of me as they should. I had 4 drains, again, nurses were not a custom to my large surgery or how to handle the drains except for one nurse but it took them a day in a half to get it right!

Not to scare you about a bilateral dissection but I did have complications, where I couldn't get air or swallow. The hospital that performed surgery should have caught that before I left the first time but didn't and thus sent me home and the swelling continued until I couldn't swallow or get much air. I was readmitted and place in ICU for a few days and administered high doses of steroids to bring the swelling down. I didn't have a feeding tube. Just lots of swelling and pain but it did eventually get better.

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/thyroid-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

You may also find our "Beginner's Guide To Cancer" page helpful Click Here for that=> http://bit.ly/10BQKCi

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

Hi there. Please feel free to message me with any questions and please visit my blog www.papillarythyroidcancerguide.com
Elaine

Welcome Norselady. So glad you have found WhatNext, although I'm sorry for the circumstances that led you on this journey. Ask questions, vent, share your journey, and let us support and encourage you – whatever you need. I am so sorry you have had delays in proper treatment due to misdiagnosis. It is wonderful that you are jumping in and asking questions right away. My cancer was different so I don’t have answers for you but I am sure others will be able to help you. You may want to cast a wider net by asking the entire network a question so anyone with experience can answer. Just click on your “ask a question” square to the right of your name and fill in the requested information. Take care.

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter