Kmack927

Just keep on doing your research. It is your life and your cancer. $&@" them if they cannot understand. I read constantly and advise my students what to eat and about lifestyle choices. We are the voices for the future generation.

I had breast cancer not uterine. I was hormone positive and went through the same chemo regimine as you. I guess I have to wait so long because my onc is so busy. Glad to hear your doctor is not too worried.

Hi Kmack, I am researching and writing down questions for my PS for the end of this month. I want the DIEP and we have already had the CT scans done and he says I am a good candidate. I was just wondering if you had made your decision on what kind of recon to have and how it went. I will not have recon until about October (I am still doing rads) but want to ask him all questions this month so I know where he stands. He is very reputable (does these like 3 per week) and has a great way about him.
Thanks for any info you can give.
Hope you are feeling good and everything went well.

my daughter had a double mastectomy in 2009,, had the TE put at that time,, they tried to do a couple fills of 100'cc,, but was unable to do that much,, the left side was not able to be inflated at all ( it sprung a leak!),, so for over a yr,, maria had one boob, and one not so nice of a boob ( can you understand that?), her skin was not expanding like they wanted, exspecially on the left side,, they removed so much tissue, and had to scrape the bone, that it just didn't work with a TE.. after a yr or so,, they took both of the TE's out,, and she had the DIEP flap done. she did had pain after that surgery,, but within awhile,, with PT,, she is all well and looking good, might add,, she's is very happy with her body.. and like you,, Her surgeon's would not have done the TE's, if they'd known of all her problems,, Good luck to you,, june

Hi Kmack927!!!!! This is debmarsan speaking to you now. My treatment team told me that I need to have my port flushed at least every eight weeks. I haven't been posting anything for about six months because I had a rough time recovering from all of my radiation. I have had a difficult time regaining my strength. I wish for you everything good and wonderful for your life. Sincerely, debmarsan

Kmack, I also had a prophylactic mastectomy and DIEP flap on Nov 5. Abnormal cells were found in my breast, so glad I made the decision.I am very pleased with the results. Healing is a long process, but I feel good. Will also try to answer any questions you have about the procedure. Yes. it is a very difficult decision.
Marcia

Hey Kmack927,

Just read your post about your edema lasting 6-8weeks post chemo. Say it isn't so!

I'm 2 weeks out and ready to see my ankles again. I'm on Day 3 of the water pill but not seeing much improvement.

Any advice? How bad was yours for this 6-8 weeks?

Welcome to the What's Next site. We have a lot of wonderful people on this site. Any questions you have, chances are someone out here has experienced something like it, can offer some advice or maybe just a little empathy. The nice thing is -- we all get it. Until you walk the journey, you only think you know. People here have been on that path. If you have any questions, you'll see the question tab at the top -- someone will respond. I'm so sorry you have to be here, but I'm glad you've found the site, and I hope you find it as helpful and supportive as I have.

It really does get better and eventually the roller coaster ride evens out. It is so hard to think straight when you are scared, hurting, and tired. I am so glad that I decided early to fight IBC with every weapon possible. I had 16 rounds of chemo, bilateral mastectomy, 36 daily radiation sessions, and 20 lymph nodes removed. Now 2 years later I am cancer free. Even with the loss of body parts, it was so worth it. Good luck to you!!

I lost you but hope I have now found you. It was nice of you to answer my question about our new drug. I am only the second person at my cancer center that they have given this one to. I have had lots of nausea but am able to continue life. I played in a golf tournament and was able to play well despite feeling bad.

Thought I would pop in and say Hi!! How are you doing?

Welcome to the site. I think that you will find this a friendly place to come when you need to sound off or vent from anger. We are all here to listen and help, if we can, because at some point and time in each of our lives we have been in your situation. Please don't be afraid to ask questions either. No question on this site is silly or dumb. We all have questions we would like other opinions on or answers to. There are so many nice people here that it has helped me get through my fears I had when I was DX'd with DCIS. Good luck in the future.

Welcome to the site. I think that you will find this a friendly place to come when you need to sound off or vent from anger. We are all here to listen and help, if we can, because at some point and time in each of our lives we have been in your situation. Please don't be afraid to ask questions either. No question on this site is silly or dumb. We all have questions we would like other opinions on or answers to. There are so many nice people here that it has helped me get through my fears I had when I was DX'd with DCIS. Good luck in the future.

Hey Kmack927 I'm glad u followed(friended) me what is the difference BC vs Inflammatory BC I hpe you had a good day...

Welcome. Thank you for registering. Here are a few tips to get you started:

1) Find other people like you. You can do this by clicking on "see more" in the "People Most Like You" box to the right.

2) Go to our Questions page to see what's been posted, ask a question or give some advice. Here is a link to our most popular questions: http://bit.ly/MfN45w

3) Complete your journey profile to share your experience. You can do this by clicking on "Add Experience" in the box next to your picture above.

4) Don't forget to upload a picture!

Thank you for being here and sharing your story. If you have any questions, please check out our FAQ or contact us.

Best,
Team WhatNext