Julie061

Hi Julie, so sorry to hear of the mets to your lungs. Mine are also in all lobes of both lungs. I recently started backnowledge on Folfox with Avastin. I will complete 4 rounds and be rescanned in April. My largest nodules are 4.4 x 3.6 cm. I've contacted MD Anderson in Houston to be put on a list for new trials. I'm in the process of getting medical records to them. Yes your nodules are small and I pray the xeloda keeps them in check. If you would like to talk, let me know and I'll ask Greg to send you my email address. Email me, and then we can exchange phone #'s, if you want. Take care and I look forward to contacting you. Either way, keep me posted.

*backnowledge*??? Should just be back!

My husband developed a partial obstruction and has an ileostomy. He is on his 6th day in the hospital on an NG tube. How long did it take for you? What else helped you to resolve it?

Hi. You recently replied to a posting that you do some yoga that helps the digestive system. Could you share some more information on that? Is there a website you could direct me to or other information that I could search more on this? Thank you.

Hi Julie. I am a 7 year survivor from stage 4 colorectal cancer. I also had three surgical interventions all of which were pretty heavy. I had a full round of radiation and have had around 30 doses of chemo. I am also chronic and am on maintenance chemo which is not too severe. I did have a colostomy and have been fortunate in that I had no bowel problems but I think the bag helps me in this regard once one gets over the psychological negatives.
I do hope you continue to soldier on and continue to give inspiration to survivors like myself.

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/colorectal-colon-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

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GregP 3X Survivor
Team WhatNext Community Mgr

Welcome! I concur, we sure to love the experience, wisdom and inspiration of long term survivors!

Julie, I am a 4 yr survivor and like others have stated you are an inspiration. I pray I can also walk in 10 year survivor shoes.

Well that's a big compliment coming from you. Thank you! I hope you are well. This is rough.

You are an inspiration to me Julie061. I hope to walk in your ten year shoes. Getting back for me is a one day at a time challenge, but every breath I take is sweet. Beat wishes to you.

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter