Jenvivace

I have been diagnosed with squamous cell esophageal cancer in the mud section, T3N1MX. Started chemo weekly with daily radiation and have 1 week left if treatments. Then wait a month fir scan to show if treatments were effective and if I’m a candidate for full surgery.
I’m really scared about the surgery recovery. I had an upper left libe removed several years ago (metastatic colon cancer) and said I’d probably not do that again. How was your recovery in terms of pain, length before able to swallow again, and sny other thoughts you have.
Thanks

Jenvivace, how are things going for you? I know you had to start chemo again and I would like to know if that is ongoing, or if you are finished with it. All the best to you!

My husband was told he had cancer; doctor did biopsy and ct scan is this tuesday( dec 30). If you dont mind me asking, did you have radiation and chemo before surgery? Doc said tumor is to big to remove and needs rad and chemo. What was your symptoms? Hope your cancer never returns. Prayers are helping me cope with this; any advice would be appreciated

Jenvivace, I got your name from Skimpy10. One more radiation treatment and I will be scheduled for the surgery. Did you have the surgery to remove your esophagus? I would be interested in your thoughts.

Jenvivace, I'd like to thank you for your post to my wall. You explained everything exactly how my husband is feeling. He's had a rough road so far, In fact just got out of a three day stay in hospital tonight. His last week of chemo ended yesterday and we have one more week of radiation. They will schedule a PET scan approx 2 weeks from last day of treatment to re-stage the cancer.

Thank you again for your post, it really helped me out.

Hi Jen, I guess you're still doing good. I thought I better say hi and see how you and your family are doing.

I'm allergic to the adhesive glue too. It doesn't make any difference if it's cloth, paper, plastic, latex free, sports tape. I itch , I get bumps , and my skin falls off. Then I'm allergic to Neosporin too. Some people like us have all of the luck, don't we?

I like the answers you give and you taking the time to explain in detail. Your journey is similar to mine in a lot of ways and I share the same thoughts and feelings about EC as you do. I am 20 years senior to you but EC does not discriminate.
So many people need to hear about this decease and coming from a survivor at your age sends a message that it can happen to anyone at any time. I personally appreciate what you do for the patients and caregivers on this site. Keep up the good work!
Fight to Win, Win to Live

NO apologies necessaries. I get a little too hyper sometimes.
I'm not taking chemo and radiation SO I needed to do something.
Hoping for the best.
Barry

Thank you SO much for your detailed story. It has been a rough road for you, I am impressed with your strength and your excellent depiction. My inquiry was for my sister who now is on "What Next" and will be communicating with you. Thank you again.

I have noticed that you have mentioned that your Drs. have indicated that if Esophageal Cancer returns it will probably return to a nearby location. That is mainly true for males however my cancer returned to my overies. It probably would not have been detected if I had not developed Uterine cancer. You should probably discuss this with your PCP or gyneocologist

Thank you for your response. My sister has stage 3 esophageal cancer. She just had a feeding tube placed and begins chemo/radiation this week. Is this similar to your experience? I am looking for a bit of hope. . .

Thank you for following me. What stage was yours? If yours was early stages, I'm so happy for you that it was caught early.

Hello, My name is Brian, I was just diagnosed with Adenocarcinoma, Esophagus Cancer this week and am trying to get my head around it. (my dad, whom I had not seen in 20 years died of Adenocarcinoma, Esophagus Cancer last July) I have found that our cancers may have been due to contaminated water we had while dad was stationed (USMC) at Camp Lejeune. but right now I am more concerned with what is next for me in tests,treatments and surgery. ( I have an appt. with surgeon next week -- my Gastro doc made the appt as soon as the biopsy came back, before he called me, as he felt it was serious to get started on this quickly = thanks, BF

What type of surgery did you have?

Stay positive in everything you read and do. Find creative ways to do what ever you want or need to do. Stay healthy as possible. Recovery is tough but look how far you have come. Live your life best you can and don't sweat the small stuff. As I always say, "Fight to WIN, Win to Live" After the win all you have to do is live!

You can buy Prilosec over the counter ( 12 hour one ) take two a day.....very cheap. All Nexium is.....they ran out of patent on Prilosec (12 ) and changed the name to nexium and made it a 24 hour job....nice eh?
Good Luck!
Barry

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/esophagus-esophageal-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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GregP 3X Survivor
Team WhatNext Community Mgr

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter