GregP_WN

Greg, can you please send stephperez2003 my e-mail address?

Hello Greg. Is there some way members can email each other directly? I tried putting my email in a couple posts but it was erased

hey there Greg, the link that you enclosed in the message to me for the community does not work. i believe it is the first link. hopefully you are enjoying you first week of the new year. thanks for the welcome.

Hi, Greg. What's the status of your dental work? How is it going?

Hi, I still have strep-got antibiotics, the lab work was posted. My thyroid is out again. It was just on the edge from the last dosage change. And I wonder why I'm exhausted-this is worse than my radiation.

Hi darling. I think the strep is dead. Only problem it weakened me. As you noted, I was able to climb the ladder and cover the cooler.
With the strep and thyroid, I've been purely punyfied. I got up, took a few steps, and my knee bent backward. Fortunately I had an old-fashioned wood bookcase that takes 5 people to move, so I grabbed that-didn't want to fall. I hollered and my grandson came, and I leaned on him. I became scared about the ladder, then I thought of how it could happen in the bathtub, stepping out of the truck-wherever and what ever. I'm getting stronger. I know to be careful--but this lack of care did such a job on me. It even gave me urology problems. I even had boils all over. A $150 medical problem turned into a problem of over $10, 000 with all of the scans, specialists, urgent care clinics-$150-$200 a shot there for this region. $1,800 plus MRIs, echocardiograms, and I can't leave out all of the primary care office visits-about $150/per. All I asked for was a strep test. I'm wondering how long my body will continue to pay the price.
With the ladder, you can tell that I'm feeling better, I'm getting stronger- Greg, where are all of these doctors that love to run tests? I surely could have used one of them.

What I was happy about on Thanksgiving. Sometimes a few days later-I realize that what I'm happy about is different than how I felt once the turkey was on the table. We're Irish-so I'm happy that the family trouble maker was locked up in jail, so we didn't have any fights. I'm grateful that my daughter didn't bring her pack of dogs, so mine weren't locked up and they could join the company. I'm thankful that everyone enjoyed dinner and got home safely.

Hi Greg, hope that you're doing OK. In the question about the husband not wanting to tell anybody, I was so surprised to find out that so many people don't want to tell anybody. Here I thought that I was a twisted individual because I didn't want the neighbors, etc to know. Of course, I don't think that anybody in their right mind would want these neighbors to know. My main peeve is how my son loaned them everything-they'd get a crew in and carry out a heavy tool and it's table. I'd come home and want to vacuum. I had to go pound on doors to find the new vacuum, grinder-weed whacker- that I paid cash for.
I finally got my son to say-Ask my mom-I didn't have trouble in just say-NO- I didn't have to slam the door in their faces, because they already were stomping off.

Hi darling, just wanted to write you. Would you believe that of all people, the ACS picked me to ask about how I physically and emotionally feel? If the ACS is doing a good job in location and online? A person can click on one to ten-but that doesn't tell the story. They have room for comments, like who was the nicest ACS counselor? I told them the reason I don't find their site helpful is because a person has to sign in for each link they have. You have to sign in for blog, you have to sign in to scan for anybody with your type of cancer. I told them that Whatnext is wonderful, because we sign in once and can stay signed in.
They want to know if I got support from others with my type of cancer-the comment section was for something completely else, but I told them I have a rare cancer-so I can't find anybody on their sites with it. I also let them know my local ACS is worthless-their form of providing transportation is a city bus schedule. They should shut this office down, I can get a GoodWill voucher for clothes through the mail when I contact the national desk. I think that telling the national ACS that you provide transportation, when all they do is ask where you live and where you get treatment and mail you city bus schedules for those routes is horrible beyond words. I talked to the city transportation people-the national ACS office gave me the number. The bus people were appalled to find out that they were an ACS resource. I guess most people hang up and cry, when they hear--ALUBUQUERQUE CITY TRANSPORTATION DEPARTMENT-THEY TOLD ME TO CONTACT ACS.The bus line where my cancer center is runs every 60 minutes and is a block off of the bus line. Though we're close to Mexico, we've had gale winds off and on, and snow on the ground for over a week. We are expecting new winds and snow in a few days.

Hi Greg,
How do I add my other primary cancers to my profile? I only seem to be able to put down breast cancer but lucky me I have a couple other primary cancers. Thanks and Help!

Do you think we might be able to one day get smiley faces and such to put after our posts?

greg what were your sysptoms of tonsil squamous cell carcinma on cat scan they are quesitioning if i have that how did u find it how good are cat scans denise

Greg,
I've looked for my email setting. Can you change it? New email is r.condi@twc.com. Formerly r.condi@insightbb.com
Thanks. Richard c

Greg, you can step on my toes any old time...it won't stop the dancing!!!

Hello, I am 51 just diagnosed with LCIS, had wide excision biopsy... have you been able to find anyone else on these boards that are just lcis or high risk?

Hi GregP_WN - IkickedIt said I need to ask you if she and I can share Do you need anything else from me?

Thank you. We were at Vandy too and the docs there were all great. Given that there is a sliver of uncertainty, we are bringing her home for Christmas and just taking it a day at a time. You must be a strong person. Thank you for reaching out.

Greg. What happened to the article about the restaurant/hat situation? Did it turn out to be a hoax? I suspect there was a lot more fault on the part of the so called cancer patient than the reports mention.

I think it's regrettable that the Morton's incident has attained the visibility it has, principally through the TV station's reporting, and through placement on WhatNext and the WhatNext Facebook page. The patron involved has forgiven the establishment and their personnel, and has moved on. What constructive purpose does it serve to continue to drag this on? This country is rife with people claiming, "victim" status, and blaming others. Morton's has taken responsibility. What else can they do? Close all their restaurants?

I am asking WhatNext to remove this story from their web site and Facebook page. Encouraging anger over an incident that cannot be undone is destructive and negative. Cancer patients don't need to expend valuable energy being angry about this; in fact, I am suggesting that anger over a thing like this can hinder healing - counter to one of the purposes of this web site!

If WhatNext continues to see value in promoting a negative situation, I will withdraw my participation from this site.

Next, I will take this up with the TV station.

Sent you a message yesterday about no longer getting a daily post. Got one yesterday afternoon, but nothing today. Used to get them very early in the morning, will the time have changed? Just hope this isn't a daily issue!

Greg, can you private message me to give someone my email address?

Hello Greg, do you happen to know how many members there are who have had CNS Lymphoma? I think I've come across one so far. I understand it to be a very rare disease, but when you spend a lot of time at Sloan Kettering it doesn't seem so rare. I met many other survivors there. It is said to be the best hospital in the world for CNS Lymphoma thanks to the hard work and dedication of Lisa DeAngelis. I am certainly a satisfied customer and would recommend it to anyone.

Congrats on the remission!!

Doctor said I was in complete remission! Thank you for all your support. We are so excited!

Greg, I just posted a list of THE TOP TEN BEST THINGS TO SAY... If appropriate please share with all. I would love to get more involved with this site but I never received your call. You are more than welcome to call me anytime.

Is there a way to report inappropriate behavior and comments?

Thank you for your response to my chemo brain question. I will definitely read the article you suggested!

Greg, doing well today, thanks.

Regarding your comment on me cycling during chemo infusion. The point is to exercise during the limited time that we have before starting treatment, and I think during chemo infusion too (emerging physiology reasons), and throughout the duration of our treatment plans, so that we CAN walk out of the hospital, hopefully with a Complete Response to treatment.

Many chemo drugs can decimate the cardiovascular system, if we don't exercise throughout treatment our muscles atrophy, exacerbating the fatigue problem. The counter-intuitive thing is that we don't FEEL like exercising, but it can significantly help with cancer treatment related fatigue, among other quality of life measures (National Comprehensive Cancer Network category 1 [highest] for cancer treatment related fatigue).

Patients need to approach treatments with consideration for the physical challenge that it is - prepare physically for it. Otherwise, chemo can push us around like a balloon in a whirlwind.

The last concept is what is exercise? For most patients, it might be something as simple as walking the halls of an oncology ward, infusion pump in tow. Or puttering around the house - putter, get tired, rest a few minutes, putter... repeat throughout the day. Walking the dog is another activity that probably qualifies for many patients. I was very fit going into treatment, so a bike was appropriate for me.

Move more, nap less.

Is there a way for me to send a private message to you? I won't be home till tonight. Thank you.

Hello Greg! Can you
Lease give my email to Abbi? She has a similar cancer and is going to go to MSKCC for a possible consult! I was treated there and had a great outcome! We have been going back and forth on this site but there is to much info to give her by typing! If we can talk it would be a lot easier! Thanks JoeTEMT