BILLY22

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Hi Billy
I just saw your updates Have you had a reoccurance? I have not been posting much on WhatNext because I have had to limit screen time due to two concussions in 5 months.
Sending prayers your way

Billy how is your wife? You both are in my thoughts

Hi Billy
How are you and your lovely wife doing, I was just thinking about you the other day

Hi Billy, How is your wife. as I remember she had the same kind of cancer I have. As I remember you posted a picture of the two of you at a cancer event awhile ago.

Hi Billy22, you asked me a question on another question since I was stage IV OC that had to do with my CA125's. my answer is as follows: Billy22, right now as of last month it was at 36 after 2 out of 3 years of treatment. I get my next numbers next week. I was originally diagnosed early stage in 1995 and was 17 years remission when diagnosed stage IV. I did 8 treatments of taxol/carbo and the original 4 tumors were gone. I then went the next year with no treatment until lymph nodes started acting up and had to start treatment again I only did taxol then and all nodes were unnoticable except for 2 which shrunk in half. My number has gone up 1 point each month since my last treatment in December which is not bad but then again it is worrisome as it is going up, but I do not think about it much. My highest CA 125 has been 128 and was only 98 when diagnosed. I am glad your wife is enjoying a good quality of life. I did the same while on treatment because I refuse to let it get me down and I am still enjoying it

Thank you Billy22 - you have provided a lot of information and
I now have a lot of new stuff to study.

Viet Nam Claim, read what you wrote to Viet Nam1968, very interesting, Have you ever heard of any one being successful with a esophagus cancer claim? I filed my claim in 2010 when I was first diagnosed. Still fighting

Billy I have placed you and your wife on my list to place on the prayer board.

Was diagnosed with EC end of Sept 2014! Had about 3 months chemo and 28 radiation treatments. Was scheduled for operation when I discovered a small lump in armpit! Biopsy showed malignant! Had PET Scan and showed no metastasis. But still residual disease in Esophagus! Still say I can never have the operation! Insurance refused more radiation (claimed it would damage the tissues?) and waiting for more chemo (probably delayed by insurance?). I have a feeding tube. Wondering where I should go from here! My oncologists are great!

Hi Billy, I have sent you an email concerning sharing your story in our WhatNexter of the Week posts that we do on our blog page. Your history of surviving EC for 13 years would be an inspiring piece to all those who are just getting diagnosed and those who are currently fighting. Take a look at the email and I look forward to hearing from you. Stay well!
Greg P
WhatNext Community Mgr.

I am an esophageal cancer stage III survivor of 14 years. We created the Esophageal Cancer Education Foundation www.fightec.org to help patients with their journey through this disease.

We have co-authored a book called 100 Questions and Answers about Esophageal Cancer published by Jones and Bartlett and can be purchased at any book store.

We have also published a book called Esophagectomy Post Surgical Guide Questions & Answers published by Authorhouse that can be purchased at any bookstore or on our web site www.fightec.org

We have support groups that meet by conference call on a monthly basis. Patients calling in with quality of life questions and hearing how other patients have handled a specific issue.

We also have a 24 hour hotline to help with quality of life questions as well. Check it out.
Good luck
Bart

Wow your journey seems easy. Where did you have treatment and what stage were you?

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/esophagus-esophageal-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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GregP 3X Survivor

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter