Tenshi25

It sounds like your mom and I have the same diagnosis. It's so rare it's hard to find lots of info.
I take Sandostatin Lar.... Doing well with that

Welcome to WhatNext. Hope you find a helpful and supportive community here. You will have lots to offer having been through many years of surviving cancer.

I am caring for my husband, he is stage 3, just finished his rounds of chemo infusion & will start radiation & oral chemo next week. I feel that are constantly changing our norm. But we try to do it will a good attitude. I hope you find some peace.

Welcome. Thank you for registering. Here are a few tips to get you started:

1) Learn from people who share your diagnosis. You can do this by clicking on the "see more" in the "Who to Follow" box on the right side of this page.

2) See what other questions people like you have, ask a question or share what you have learned. Here is a link to our questions page: http://bit.ly/XrqDMt

3) Keep the WhatNext family up to date on your progress by posting updates. You can do this by clicking the "Share an Update" button on the center of this page.

4) Don't forget to upload a picture!

We look forward to helping you through your journey. If you have any questions, please refer to our help page or email us.

Best,
Your WhatNext Family