Sweetmarie1

When I realized in January what could possibly be happening to me by researching the Mayo Clinic website, I mentally started preparing myself for surgery. My gyn sent me immediately after my ultrasound and CA125 test to a gyn oncologist surgeon. That made sense to me as my number, though not very high, 61, plus the appearance of tumors, told me from my research that surgery would be the order of the day first and foremost. So when I me the surgeon, I was ready THAT DAY for surgery and told him to take out anything I didn't need especially the appendix as I am 62 and my son just had an emergency appendectomy in January. I didn't want to have repeat surgery down the road for that, so I brought it up. As it turns out, but this is a very good surgeon, he found nodules on the appendix which were not cancerous and took it out along with a complete hysterectomy. No tumors were found to be cancerous, with the exception of a fallopian tube, and cancer cells from a pelvic wash. Had the surgery in February and began chemo 2 weeks later. 6 chemos down and 12 to go. I will be half-way through at my daughter's wedding in May. Just trying to keep it together until after then and then get out more. I do not regret any thing as of yet in my or the doctor's decision making process. It is unfortunate you were not informed as to the potential of an appendectomy, but I sure am glad that they took out mine.

Hello Sweetmarie1. I'm "Victoria14" I have the same diagnosis as you, and am just a little older. I grew up near San Francisco but have lived in Japan for 30 years, and my cancer was diagnosed and treated here. I just finished chemo (7 rounds). I am thinking of you!

Okay I sure will, it does sound great, I really thank you for wanting to brighten up my days. It's such a pleasure to know some one takes the time out their day to brighten up my day.

Thank you very much
Tank

Hi Sweetmarie, We have the same stage, and I just finished 1st course of chemo for ovarian cancer. I live in Japan. Good luck with chemo and radiation.

HAIR LOSS IS JUST A STEP IN YOUR JOURNEY. I AM BALD FOR THE SECOND TIME NOW AND HAVE A WARDROBE OF SCARVES. TLC CATALOG IS THE ONE I FOUND HAS A WONDERFUL VARIETY OF SCARVES. STAY STRONG AND GOD BLESS.

Hello,
I am an oncology/end of life nurse that specializes in gyne cancers. Welcome to the "What Next" family. If you should have any questions or concerns that you feel I might be able to help you with, please do not hesitate to ask. There are many excellent people here always willing to help in any way with the latest information or experiences to share. You are among friends….there are no strangers here. I hope you find all the information and support you seek, Carm RN.

How are you doing with chemo and all the adjustments that go with it? Keeping you in thought and prayer.

Hi, just thought I. Would touch base and find out how your chemo is going. Start my final round today and should be done next Tuesday. Hope things go well. Take care.

Thank you for choosing to follow me. Looks like our journey started about the same time. I had debulking surgery on Dec. 6, 2013. I was in the hospital for a week, came home and had to return within 2 days because of an infection. They had to insert another 2 JB tubes and that landed an additional week in the hospital. The good news is that I was home in time to spend the holidays with my family and grandkids.
I had my first round of Chemo on Jan. 13. Lots of leg pain 2-3 days after. The 3rd day being the worst. But each day after that they felt better and I feel really good at this point. I will have my 2nd round of Chemo on Feb. 4th.
If you have any questions, please feel free to ask. I do not mind to share any of my experiences.
We are strong women and we will get through this!!!
God Bless You!!!

Welcome to WhatNext. Hope you find the group of people here to be helpful, supportive, listening, and a bit fun too. Blessings on your journey.

Sweetmarie1, welcome to the WhatNext site. I can imagine you are still trying to make sense of everything. Shortly after my diagnosis I found myself implanted with a chest port, then two cycles of chemo to shrink my tumors, then onto debulking surgery. Am currently back in chemo with hopefully only two cycles to go. We can all identify we you and the battle you have ahead but it is doable.I had many questions and found not only the answers but support and encouragement. I have also heard Epsom salts helps with the bone pain. Everyone is different with side effects. I had one day of terrible bone pain and took a benedryl to relieve it. Hair loss comes with the chemo. My hair grew thinner and thinner, some people lose it faster . Eventually I had my son-in-law shave it off,now have several hats but some people get wigs. Good news is that it will grow back after chemo and I have seen women with beautiful heads of hair. Stay strong you can do this. Keep us informed,share and vent when needed. Take care.

Hello. My name is Jeanie and I was in your shoes almost 2 years ago(Feb 14th)
my diagnosis too was a stage 111C at 48 years old. If you have any questions or concerns, please feel free to ask me any questions. I will pray for you during this time.

Sweetmarie1, don' see answer to latest question you asked me ,perhaps I wrote it but didn't post it, chemo brain. For my long IP therapy sessions they place me in a private room with a t.v. I bring an IPAD and a book . It is still a long day to stay in bed.

Hello,
I am an oncology/end of life nurse that specializes in gyne cancers. Welcome to the "What Next" family. If you should have any questions or concerns that you feel I might be able to help you with, please do not hesitate to ask. There are many excellent people here always willing to help in any way with the latest information or experiences to share. You are among friends….there are no strangers here. I hope you find all the information and support you seek, Carm RN.

SweetMarie, is it ovarian or fallopian tube? Just wondering.

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/ovarian-and-fallopian-tube-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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GregP 3X Survivor
Team WhatNext Community Mgr

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

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David
Founder, WhatNexter