Maryme

Hi Maryme, welcome to the site. I am a 72 year old ovarian cancer survivor who had that “ oh no “ moment in 2013 at the age of 66. I know this is a scary time. I urge you to find a good gynecologist onchologist for your medical care and if possible get two opinions for your medical care going forward. I lived in a small city and there were no gyn/ onc here so I traveled over two hours away for my surgery and chemo treatments. Memorial Sloan Kettering in New York has a great national ranking for example and stays on the cusp of the newest advancements in cancer care. I can tell you that there are no easy treatments, but I can also say the treatments are DOABLE. All the caregivers and survivors on this site are here to help support you. Please ask any questions you have and look over the information provided. I would be happy to talk to you anytime on my wall.

Welcome Maryme,. I saw your question about alternatives to chemo. Debulking surgury by a Gynecological Oncology Surgeon will get rid of most visible cancer, they have the best outcomes. My oncologist explained that cancer is like the seeds on a dandelion. They spread all over your abdominal cavity. So chemo works to destroy those microscopic seeds of cancer that can not be removed by surgury. Radiation is not usually the standard of treatment for Ovarian Cancer in the US but it is for some countries outside the US. Chemo is hard! I have had 2 cycles of 6 in 3 years. I am stage 3 C and had a football sized tumor removed from my abdomen in July 2015. I was cancer free for 2 years. Reoccurred this year, currently cancer free again. Cancer is now considered a chronic disease. Chemo scared me! But I did it because I want to live. Quality of life is important and so far mine is excellent. I am here because of my initial surgury, chemo and the love, support and prayers of others.

Welcome to our 'What Next" family.. Glad you found us. I was diagnosed with Stage IV Ovarian Cancer 13 years ago in January. I was 62, After surgery to remove a 39 pound tumor, my ovaries, (had a hysterectomy at 45) and all the cancer he could see, My Gynecologic Oncologist Surgeon, told me '6 months' when I asked him how long I had..... I asked God to take my hand and lead me to where He wanted me to be.... He led me here... writing this to you. I told my doctor I wanted to fight... and a PET CT Scan showed No Evidence of Disease six weeks later. I started I/V and I/P infusions of strong chemo... did six 28 day cycles of Day 1 I/V infusion, Days 2 and 8 I/P infusions... When that was complete we did one I/V infusion a month for a year... Here I am still NED. I'm here if you have questions... Just know that we CAN BEAT THIS THING... God bless you...I'll say a prayer for you....

Hi Maryme and welcome to WhatNext! This is a great place to get advice, support, a sympathetic ear and more. The folks here definitely "get it".

I was originally diagnosed in 2013 with stage IV ovarian cancer. Initial treatment was rough but I made it through. My life has changed a lot. Since the original diagnosis, I've had two recurrences and recently stopped treatment with Avastin and Topotecan so I can get a much-needed knee replacement. My tumors are very small and have been stable so I hope they continue to behave as I can't do chemo and the knee surgery.

I've had several different chemo cocktails in my five years since diagnosis so if you have any questions, let me know.

Please take some time to explore this site and check out the links, resources, Pinboard, and questions pages. The information there is great. The rest of us here are also happy to connect and answer your questions about our cancer journeys and how you can navigate the changes to come.

Best of luck! Hope to hear from you soon.

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter

Hello and welcome, we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started with the help you need right now.

https://www.whatnext.com/conditions/cancer/ovarian-and-fallopian-tube-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx. Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the database to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site.

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GregP 3X Survivor
WhatNext Community Mgr
3X Wego Health Awards Finalist
ACS Voice of Hope Speaker