Llk

Lik, perhaps I have mentioned this before, but for greater feedback regarding ovarian cancer survivor feedback in particular, I refer you to a FaceBook group Sisterhood of Ovarian Cancer Survivors. There are literally hundreds of ovarian cancer survivors on this site. We have a great group of ovarian cancer survivors here at WhatNext but it is a relatively small group with this particular cancer. The Sisterhood is a closed group for women only both survivors and caregivers. You use your real life name. Just ask to join and ask your question.

Lik, read your welcome to DebMH and wanted to wish you well on the surgery. Sending extra support . Please let me know how you are doing in the weeks ahead.

Hi and welcome, Llk! WhatNext is a great place to get advice, support, a sympathetic ear and more -- the folks here definitely "get it".

I was originally diagnosed in 2013 with stage IV ovarian cancer and thought it was a death sentence. Initial treatment was rough but I made it through. My life has changed a lot in the five-plus years since I heard the words "We think you have cancer."

Since that original diagnosis, I've had two recurrences and recently stopped treatment with Avastin and Topotecan so I can get a much-needed knee replacement. My tumors are very small and have been stable so I hope they continue to behave as I can't be undergoing chemo and have the knee surgery. That surgery is scheduled for Monday. Yippee.

Please take some time to explore this site and check out the links, resources, Pinboard, and questions pages. You'll find lots of great information as well as a few chuckles. The people here are also happy to connect and answer your questions about our cancer journeys and how you can navigate the changes to come.

Feel free to reach out if you have any questions or want to connect.

Hi Llk, welcome to the site. I was diagnosed with ovarian cancer stage IIIC in 2013 at the age of 66. I know these must be scary times, no one wants to have that “ oh no “ moment. If you have not started treatment yet, make sure to get a good gynecologist/ onchologist to be your primary physician. These doctors have the experience and education needed to treat ovarian cancer, None of the treatments are easy, but they are DOABLE!
Reach out with any questions you have to the community of caregivers and survivors using the question tab. I encourage you to talk with other survivors on their walls. When I first came to WhatNext , I was scared and depressed and wondering about the journey ahead. I have benefitted from both the advice given, and the added support I have received. On WhatNext we are all here for each other, and we are all stronger together. Take care- here to talk anytime.

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter

Llk, welcome to our WhatNext family! I just wanted to let you know You can do this!!!!! I was diagnosed at 62 with Stage IV Ovarian Cancer... I told my Gynecologic Oncologist Surgeon, I wanted to fight..... First surgery, He removed a 39 pound tumor and my ovaries, then carefully scraped all the cancer he could see from my urethra, my intestines, etc. We did six 28 day cycles of I/V and I/P Chemo infusions. (The Strong Stuff) Day 1 was I/V infusion, and Days 2 and 8 were I/P infusions. After a few weeks of finishing the infusions... I did infusion a month for 12 months. I was tired - very very tired....But it was doable.... I've been cancer free for 13 years now... At diagnosis I was given six months to live..... We'll be here to help you, cheer you and listen and comfort you. Welcome to our Family!

Welcome Llk,.
I am glad you have joined us! When you first hear the bad news that you have cancer, it can be devastating. I was in shock for months. I had trouble focusing and solving simple problems. Since you know your stage, I am guessing you have had your debulking surgury. Sometimes they do chemo first but I believe you need surgery to be staged 3C. That's how it went in my situation, when I found out I was stage 3 C in July 2015. If you give us more information about where you are in the treatment journey, we could know how to help you better. If chemo is coming up, many of us can answer any questions you may have since we have had chemo too! (I have had it twice.). Wishing you more good days than not so good days.