LiveWithCancer

Activity

  • biga17133
    still taking a bath by myself biga17133 Prayers
    November 2018
  • meyati
    About what type of site Whatnext is? It sounds like Christians would be banned from a secular site in Russell's opinion--- I told her that all of us have a right to speak up because it is secular. I liked your posts on that question- sensitive and factual.

    I did look and I never saw anybody telling her to be a Christian or needing a dose of Jesus-whatever. But sometimes I miss a lot. LOL-

    I was raised in an Atheist home--Dad was nice and polite-we went to church or the synagogue only for weddings and funerals.

    I was 7 or 8-and I was with a group of kids playing cards. These 2 big boys came up and started screaming that we would go to hell. It sounded horrible--we were like a covey of quail and we all took off in different directions-screaming and crying for our mothers.

    Our mothers ran to the park to give those boys a pieces of their minds. The park groundskeeper told the boys that religion belonged at church and home. Thanks for sharing, but nobody would be a Christian, if everyone ran away and hid from them. Be Christ like and be gentle and kind. So, we all co-existed. The boys kindly asked us to go to sunday School, and some went and some didn't. I went twice-and decided it wasn't for me.

    Anyway, I suggested to Pauline that she post something that really says something to her once in a while like Boise suggested.
    October 2018
  • BuckeyeShelby
    Death to avocado toast!!!
    October 2018
  • meyati
    Hi---how are you doing? Ryder had the tumor removed from his paw-between the toes. I should get the results by Tues at the latest. We have one of Missy's giant cones on with towels on his neck to keep it from sliding toward his shoulders. I guess that you figured out that Ryder is flexible and crafty in getting his tongue to his paw.

    Everything is going nice-- good weather--and so on.

    Because I refused sleeping pills, etc-they wanted me to go to a shrink. They actually wanted me to sign papers that somehow would force my family to get counseling through Presbyterian and they blathered about my legacy. I don't see how the family counseling would be legal or moral.

    Anyway- I told them I don't have money or property-no Cadillac from Elvis, so who were they kidding about legacy. Then I told them that my son could get counseling at the VA, and he was already getting help at the VA in avoiding civilian money traps and telling the truth. Then my family are all adults, which means they could take care of their selves and decide on their own if they wanted counseling. My Legacy was to treat my family with respect.

    October 2018
  • mtnraindancer
    So sweet of you to take the time to encourage me..thank you !
    October 2018
  • meyati
    Jax seems to be getting his sense of smell back. Monday night, I was sitting with my stocking feet up. Jax was walking by, and he got a whiff of my feet. He came up sniffing. Then he sniffed my feet.. He stuck his muzzle between my feet and rubbed his muzzle and sniffed my toes and and ankles. He seemed so delighted.

    Last night he was walking around sniffing, and then he tried to get on the table. He's sort of like a pup, getting excited about smells.

    He was mad at me Tues, because I gave him a bath Monday. He saw me- and he ran. That's one reason that I was so surprised when he discovered my feet.
    September 2018
  • KimberlynJ
    Hi my friend! Diagnosis 10/12. Almost 6 years ago!! Want to check in with you and see how you're doing?? My husband is still in remission!!!! 4.5 years!!!
    September 2018
  • Jaxun1
    Hi there. My wife is also on Alimta & Avastin. Did you notice being pretty tired out after your treatments? Could you possibly tell me what clinical trial you were on? My wife is 59, my best friend, and I feel so helpless as her husband. Thank you for any information you can provide. :-)
    August 2018
  • po18guy
    September 2018
  • Danelife
    So how long has your battle been
    September 2018
  • Snaz
    Cancer in right lung metastasis to ribs. Thatwhere painis. Go for port 9/11 and opdivo immunotherapy in October. In a lot of pain. Hope the treatment will work. Only did 3 rounds of chemo couldn’t do anymore 21 rounds radiation. Any stories like mine I welcome
    September 2018
  • meyati
    Hi, you'll never believe what happened this morning. Ryder and Missy went roaring out of the house-foaming at the mouth, and Jax went out and bawled like a sick baby. The sound was beautiful for me and my son. I woke up this AM, and the 3 of them were on my bed-snoring away. -Beauty- We mostly sleep with the interior doors open, so the hounds can check things out.
    September 2018
  • meyati
    Hi, I saw your Medicare Question--Each state and region is different. Someone said that doctors don't take care of Advantage Plan patients, but it's the opposite in NM. NM is locked into state-which does take medicare, Presbyterian, Lovelace-the right stuff hospital and it often locks both doctors and patients out-even paid up third trimester pregnant women, St Joseph, and St. something or the other. in Santa Fe and northern NM.

    Yes I have co-pays with my Advantage Plan. $5 for Primary and Urgent Care. Free X-Rays when ordered by UC and my primary. a $80 ER fee that covers IVs, X-Rays, Scans, etc. $300 for my CT scan. $50 for a specialist. Insurance premium-$37 a month. Free eye exams. I pay dental and eye glasses. My cancer treatment and all scans and visits the first year were $0-ZERO--labs-- ZERO- and I even have ER medical coverage when outside of the US and body transport back to my home.

    If you sign up for Advan you need to go to doctors in the plan, or get prior approval.


    What you need to do is to call area doctors and ask if they accept medicare, and if they are on any Advantage Plans. Contact the Advantage Plans and see what doctors are listed for each plan.

    Get Medicare info as someone suggested. It's almost impossible to be an inpatient with anytype of Medicare-- Several doctors must declare that you need inpatient and they want you to stay there--If they don't list you as needing a nursing home or physical therapy before you are released, you have to pay for all of that, otherwise Medicare Pays for most of it.

    I studied the plans-because nobody would take medicare- showed up for enrollment and have been with Pres ever since.

    Good luck- and those on phone insurance agents weren't too helpful IMHO
    September 2018
  • Outlier
    Hi LiveWithCancer,

    I couldn’t find where you asked about my Epic Experience trip, so I’ll reply here.

    My adventure camp experience was both challenging and rewarding. I would recommend fellow survivors apply to participate in one of the camps held by Epic Experience.

    I consider it a personal victory that I participated in all activities held during the week. Yet, even if Epic allowed for it, I wouldn’t apply to go on another adventure camp. As for me a week is a long time for my wife and I to be apart.

    You, and any member of WhatNext, feel free to Fb messenger me, or e-mail me at gdk5kirks@yahoo.com If you’d like specific details of the adventure camp, as well as my experience during the week.

    Glen D. Kirkpatrick



    August 2018
  • lindaglover920
    I was not asking for another PET scan, but I think a CT or MRI would be appropriate to determine if the chemo is working.
    August 2018
  • AElenaB
    I just wanted to say that i love you & I’m praying for you, you sound like an amazingly strong woman! I just joined this forum and saw the number of Goodwill Points. Good Gracious
    August 2018
  • po18guy
    Funny how we age physically, but our spirits still sense that we are younger. There's a message in there somewhere, but no denying that I'm officially an old codger. As to supplements, "cures" ,miracle this and that, show me the survivors! I don't have the Geek on ignore - I have internal software which does that for me! An aversion to the image and username I suppose.
    August 2018
  • Carool
    Hi, LiveWithCancer. I, too, won't let her run over me. I may just have to block her. I should've awhile ago. She still bouncing words off what Shoeless is writing and she's of course deaf to what he said and feels. Something really wrong there....
    August 2018
  • po18guy


    She's a "true believer" - that's why I have been linking to quackwatch.org. A digital finger poke in the eye. An excess of wishful thinking going on in her head. And the arrogance! The worst part is that it may not even be intentional. She just assumes that the rest of us are drooling ignoramuses waiting to be illuminated. Ugh.

    This forum needs an easier private messaging system, and the edit function. I stopped posting at the Cancer Survivor's Network when my upbeat and optimistic attitude enraged a certain angry noob over there. Personal attacks, for which he was moderated and grumped off - but soon came back. And he has follicular lymphoma, which he will live with for decades.

    Anyway, by way of introduction, I have a ten year nightmare medical resumé - no hero, but lived out one day at a time, it is completely do-able, as you well know. Also a moderator at www.cancerforums.net. We have very busy pancreatic and prostate forums there, and it is international, which I find intruguing. Oh, quite a few lymphomaniacs, and a never ending stream of freaked out anxiety-laden undiagnosed young people.

    So, some I do not respond to, letting others take on that task.
    August 2018
  • po18guy
    She's a "true believer" - that's why I have been linking to quackwatch.org. A digital finger poke in the eye. An excess of wishful thinking going on in her head. And the arrogance! The worst part is that it may not even be intentional. She just assumes that the rest of us are drooling ignoramuses waiting to be illuminated. Ugh.

    This forum needs an easier private messaging system, and the edit function. I stopped posting at the Cancer Survivor's Network when my upbeat and optimistic attitude enraged a certain angry noob over there. Personal attacks, for which he was moderated and grumed off - but soon came back. And he has follicular lymphoma, which he will live with for decades.

    Anyway, by way of introduction, I have a ten year nightmare medical resumé - no hero, but lived out one day at a time, it is completely do-able, as you well know. Also a moderator at www.cancerforums.net. We have very busy pancreatic and prostate forums there, and it is international, which I find intruguing. Oh, quite a few lymphomaniacs, and a never ending stream of freaked out anxiety-laden undiagnosed young people.

    So, some I do not respond to, letting others take on that task.
    August 2018
  • po18guy
    What little hair I have left I nearly tear out when I see certain posts. It takes all types to make the world go around.
    August 2018
  • po18guy
    Enough material there to keep a few analysts busy! She has the highest percentage of questions with no responses - simply because she is a habitual or possibly compulsive poster. Oh, and questions or rather "information" that is actually relevant would help. Your thinly disguised exasperation in your "pointed" question about care was crystal clear to me, so I had to contact you. You are far from alone. Same with Barry and "Chris beat cancer" (with SURGERY!!!). Sometimes, I swear...
    August 2018
  • po18guy
    Age 64? Oh, now I get it! At 66, I readily admit that I am ever more curmudgeonly these days.
    August 2018
  • po18guy
    po18guy here. Just what is it with a 'certain member' here? The self-appointed bearer of all good news, all bad news, responder to any and all questions (helpful or not), promoter of all things green and gooey, and...well...you know... :-D
    August 2018
  • Carool
    LiveWithCancer, I LOVE what you said about someone's 13 doctors! And about how someone thinks most doctors are stupid, especially compared with....And if I hear someone's story ONE MORE TIME...!
    August 2018
  • biga17133
    just wanted to say hey so "hey" i'm not doing to good on this 2 line of defense so im not on here a lot as im laying down more but still thinking of you and all the others praying God heals us all, marven
    August 2018
  • Jaxun1
    Thank you for your post on Lungcancer.net. My wife is in active treatment and your post was important to us. :-)
    August 2018
  • BoiseB
    You probably know this already but I thought I would remind you so you can post on the PINBOARD. Tomorrow is "World Lung Cancer Day" Here is the link https://www.daysoftheyear.com/days/world-lung-cancer-day/
    BoiseB
    July 2018
  • cady
    hi my name is cady glad to meet you
    July 2018
  • cady
    hi my name is cady nice to meet you
    July 2018