willie

willie, the site I recommended is focused solely on information and support for ovarian cancer survivors and their families. There are others I do belong to but Sisterhood has the larger membership and has been active for many years. The women on this site are great giving their support and sharing their experiences . Unfortunately we are still losing so many . I hope your wife is doing well. Thank you for your continued contribution of helpful tips in caring for our teal sisters.

willie, always enjoy reading all of the helpful information you give the care givers when they come to the site and loved ones have been diagnosed with cancer. Pat is one lucky lady to have you as a caregiver and husband.

Hi Willie, just a couple of tips for you, things that you post as an update are only seen by you and anyone that follows you. If you post on the questions page, everyone that looks at the questions page will see it. And, any update or question that you post as well as posts you make on the Pinboard will be picked up by our Daily digest and could possibly be included in that digest. The daily digest is an automatic email that is sent to everyone on the site, they will have a few of the latest posts, questions, and other posts concerning your listed diagnosis, in your case (ovarian and fallopian tube).
If you have any questions on how to do something, where to post or find information or people, drop me a note.

Thanks for your posts, we appreciate your contributions to the site!

Willie, read your postings and see you live up in Ashland. Hubby and I have been there several times attending the plays in the Shakespeare Festival. Such a scenic town, we always enjoy walking around after the play. Sorry to see the clinical trial has taken a toll on your wife's immune system. Seems no matter what the treatment, our immune system suffers. I know when I underwent chemo, I wore masks frequently and carried hand sanitizer in my purse. Glad though your wife seems stable since starting the clinical trial. How long has she been in the trial and how long does the trial run? Do not understand your onc's answer about " what if we do nothing", stating she will have bowel death.Did it metastisize to her colon? Is this what you based starting a clinical trial on? Sorry if asking too many questions, but I am a fill in the blanks person, and I can not help feel that someday these will be my husband's and my choices also, that is one reason I have elected to keep my chest port in for awhile. All any of us can do is the best we can, and a possible vaccine for cancer would be a miracle cone true.

Hi Willie. Welcome to What Next. There are lots of great people here. I see that y'all drive in to The James from West Virginia. I actually live in Columbus, although I went through Riverside instead of the James. Long drives! Stay safe as you drive this winter. It's been mild, but we are expecting snow this week, for the 2nd time this season, I think. I'm glad things are going well for you and your loved one. Wishing you all the best!

Hi there, willie! Welcome to WhatNext.com. I've only been to West Virginia once but it was a memorable trip and such a lovely place.

We love friends and family members here at WhatNext because those of us with cancer need you even if, as patients, we don't always say so. I was diagnosed a little over two years ago with stage IV ovarian/fallopian tube (or OVCA) cancer, which is similar to what your loved one's diagnosis is.

I am now through with all the chemo, surgery, maintenance chemo and my scans have been clear for 21 months now. No one will use the word cured or remission in my case but there's no cancer they can find and my strength is coming back, little by little. I even have hair again and up here in north of Seattle, it's good to have hair in the winter!

I know you have to be worried about your friend/family member, but if my experiences and story can help you or your loved one, please reach out to me. I'm happy to share my story.

Hang in there and bless you for being there for your loved one. It's a tough road, but together you can do it.

Hi willie. I am a 69 yr. old California girl who was diagnosed in Sept. 2013 with stage IIIC ovarian cancer. I had been misdiagnosed for seven months and treated for gastritis and GERDS. I know well that " oh no" moment. Despite the great family and friend support, I felt I was going through all this on my own. My family found the WhatNext site for me. The people on the site have been great and helped me through some dark days. iT really helps to talk to people who have gone through the treatments, gone through the fears of not knowing how this xxx is affecting us both physically and emotionally. I hope both of you will reac out with questions, postings on the pinboard, talking to those on the site and sharing experiences. Being a care giver is not easy, but a strong loving relationship means the world to a cancer survivor. i want both of you to know, that on this site, we are all here for each other. Take care, talk anytime.

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter