sunshine407

To answer your question, they told me the tumor size, but I forgot that immediately! Thank you, pain meds for the memory gaps. I did not even look at the scar for weeks afterward. Now, my sizable scar and I are as one and we are ok. I left the tumor at the hospital and will not give it any more power in my head. I hope you are doing well today and that treatment is going well.

Sunshine, went back and read the various posts here. My word, folks and you have been through so much and came out the victor in the then current battle in the war. Hang in there. Hope you are ok these days. Keep the positives coming.

Thank you. My tumor was 11 x 10.6 x 13.6 a month latter it was 8.2 x 7 x 5. My doctor is a oncologist surgeon. There are no GIST specialist here in Louisiana. He is also in his 60's but he is very good I heard. I am glad to hear you are doing good.

Hello I found out I have GIST of the stomach in March 2014. I believe I had it for years as I have been sick a lot. The tumor is 7 inches and is attached or pushing against other organs. I have been on Gleevic for 2 months now in hopes that it shrinks the tumor than they will do surgery. They say I may lose my whole stomach. I have had a CT scan after 1 month and the tumor shrank but than the next month no change. I am frightened and do not know what to expect. My body hurts all over and it's hard to do my normal activities. I am also unable to sleep afraid I may not wake up. I live alone and have no family in the state I live in. My sister's are coming from MI and FL when I have surgery. I'm hoping they stay longer than 2 weeks. Can you please tell me about your surgery? Did you lose a lot of weight? When we're you able to eat solid foods?

Congrats on returning to work! Best wishes as you recover from the surgery, which I am told will cause twinges and other pains for a year. My treatment was surgery, as well. No other treatment recommended for my adenocarcinoma, small intestine. Let's all hang in there!

Hi, from another GISTer sister.

Hello. I don't think I have been ;here before. This is part of my story. In 2011 I had cronic abdomen pain. The doctor's office I went to grew tired of me and couldn't figure it out. After being told not to call for four days I woke one morning to feeling cold and lethargic. After trying to warm up with electric blanket, hot shower and sitting in front of a gas fire place. I was shaking uncontrolably. I decided to go to the Salem Hospital emergency room. My wife Margo drove me there. It was a stormy morning and still dark. It's kind of a blure. When I went to step out of the car, someone said you are not going anywhere and wheeled me in in a wheel chair. There I had X-rays and had to drink this awful stuff called Crystal Light with contrast. The head of the trama department Dr. Van Der Haden did emergency surgery. I had gone septic and they said hours to live. What was thought of at first a neurofibroma a condition which I also have turned out to be GIST in the Duyiduium (which is misspelled here). I have had subsequent surgeries on my liver February 2012 and another part of my abdomen January 2012. These were done at OHSU Kinght Cancer Institure by Dr. Billingsley. Dr. Henrich did not think Gleevic would work on me because of the neurofibromatosa. In April 2014 he changed his mind and I am taking Gleevic now. I have somehow have survived all this and am continuing to go running. All this has given me a new respect to be alive and living in general. I live because Dr. Van Der Haden saved my life.

Hi Sunshine. Welcome to What Next. There are lots of great people here. If you have any questions, please use the question tab above -- that way the entire network will have access & you'll get a quicker response. I'm glad you found us but sorry for the circumstances that led you here. Wishing you the best.

Hello and welcome, we are glad you found us.Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/small-intestine-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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GregP 3X Survivor
Team WhatNext Community Mgr

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter