sunmoonie

Thank you for sharing your journey and your hope. I may contact you after my tx is over for advice how to start a support group in my area for uterine. Right now I don't have the energy but thinking by summer I should if all goes well. Thanks again for the hope.

My goodness sunmoonie,you seem to be a bundle of energy.Good for you starting an ovarian cancer advocacy group.Have not gone to a community support group because it would hurt too much to lose friends to this xxx disease,it hurts enough on line.You have been through much as we all have.Can not believe you still have your IP port in after all theses years.Must be part of you like an arm or leg by now only not as useful.:).I was suppose to have mine removed in June but they forgot to allow enough appointment time to allow for this so Sept. It is.You are a survivor pro and a valued asset to this site.Looking forward to seeing your postings.

Hi Sunmoonie,

As you surely know, having had a major cancer truly changes our lives forever. About 25 years ago I had a basal cell skin cancer removed. At that time, doctors all thought this had no relationship to other cancers, but now there is some evidence that this can indicate a propensity to other cancers. Now we all know better, and even if it appears that we're really doing well, that fear never goes away. So I may be more likely than others for another cancer or a recurrence. When I'm busy, facing everyday experiences and a sometimes busy life, this is far from my mind. However, when it's time for a cancer checkup--scans, blood tests, exams--the fear becomes front and center again. I've learned to schedule these events plus the doctor's review appointment to go over results as tightly as possible. All needs to be over within 2 days. At least that way the worry is for a shorter period of time. Then with the all-clear that we all hope for (twice there wasn't an all-clear, so more scans and procedures were needed for a more definitive answer), we can get on with regular life quickly. Gradually my checkups are getting further apart, which also helps the anxiety levels.

You might consider counseling and/or medication if you're overly anxious, if your treatment was particularly damaging or if you're more prone to worrying about it. I'm using both counseling and medication, and it helps a great deal, even though I hope not to need it forever. That would be the next step in getting my life back.

Just remember that normal for us is never going to be the same as before cancer, and that so far we've been the lucky ones. May it stay that way for as many of us as possible, and may that realization help us to view the whole picture and relax somewhat.

Good luck to you!

Hello Sunmoonie. I see you chose to follow me. I am not exciting and don't post as often as I used to. This site was my savior when I was first sick especially as I tried to find my way through treatment. I have been finished with chemo and radiation since the end of November. Just now returned to work part time. I don't think the fear of recurrence ever leaves. It is always in the back of my mind. Of course, it gets worse before each exam scan. I wish you well and look forward to reading your posts.

Jane

Hello sunmoonie, and welcome.

Hello,
I am an oncology/end of life nurse that specializes in gyne cancers. Welcome to the "What Next" family. If you should have any questions or concerns that you feel I might be able to help you with, please do not hesitate to ask. There are many excellent people here always willing to help in any way with the latest information or experiences to share. You are among friends….there are no strangers here. I hope you find all the information and support you seek, Carm RN.

Hello and welcome, we are glad you found us. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, any questions you may have just post them in the questions tab and everyone will see them there and be able to help you.

https://www.whatnext.com/conditions/cancer/ovarian-and-fallopian-tube-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

Greg P
3x survivor
Team WhatNext

Welcome. Thank you for registering. Here are a few tips to get you started:

1) Learn from people who share your diagnosis. You can do this by clicking on the "see more" in the "Who to Follow" box on the right side of this page.

2) See what other questions people like you have, ask a question or share what you have learned. Here is a link to our questions page: http://bit.ly/XrqDMt

3) Keep the WhatNext family up to date on your progress by posting updates. You can do this by clicking the "Share an Update" button on the center of this page.

4) Don't forget to upload a picture!

We look forward to helping you through your journey. If you have any questions, please refer to our help page or email us.

Best,
Your WhatNext Family