Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.
https://www.whatnext.com/conditions/cancer/pancreatic-cancer There are also subtypes listed on this page to narrow down the type of cancer to match your dx.
Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.
Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join.
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I have a friend who was just diagnosed with a similar condition to yours. I don't know her stage but she starts treatment with Octreotide in January. I love her dearly and was just looking for folks with similar experience so I might be able to help her.
Hi jujunoodle- welcome to this site. I hope you find it has helpful and supportive as so many others have. Somehow, it does seem to help to communicate with others about this rare disease. It looks like we have a similar diagnosis. Are you on the Sandostatin shots? I've been on them for nearly 2 yrs. have you been able to find a specialist you are confident about? Hope so! Very best wishes on your journey!0October 2013
Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.
welcome to whatnext...I too am a PNET. stage IV .I had 6 months of chemo, Inoperable, and am stable for now. was diagnosed 12 months ago. Would love to know the chemo you were given...I have high grade so we are looking for a maintenance drug. I am going to a Net conference in New Jersey on Saturday, hoping to get the latest information on our rare cancer. You have come to a great place, many people here can help answer your questions0October 2013
