gijanet

Activity

  • Lipi
    Have you found a particular ident to be helpful? Thank you
    July 2014
  • dls
    Hello, Thank you for responding to my question and helping. Hopefully we will hear more about that trial. It sounded very encouraging.Thank you again. :)
    April 2014
  • frannorm
    Thank you, i wish for you to get well. Hopefully you have a caregiver with you all the time to help. Be strong to beat the beast.
    April 2014
  • wildblue66
    Thank you gijanet. I dont yet know the type of cancer. Right now I am going insane with thoughts of dying and losing my family at only 47. So scared an overwhelmed, not sure how or what will happen. Thank you again!!
    March 2014
  • dinkersmom
    Welcome to What next..an unfortunate way to meet. I too have sclc and was diagnosed in July and have been through chemo, radiation and now going through PCI. My tumor is shrinking but anxiety is always there if it has spread or did the scans miss something. Something I am going to have to learn to deal with. I wish you the best and found it extrememly helpful to both me and others in our situation to journal EVERYTHING in "My Journey". It will help you remember dates and times and it will help others know what to expect and that they are not alone. I pray that your journey goes smoothly and some day we can stand on top of the mountain together and scream that we are survivors. God's Peace to you and your loved ones!
    December 2013
  • barryboomer
    This is what I take.....Check out the book THE CHINA STUDY and the site Chris Beat Cancer site AND Facebook...lots of stuff.

    I was diagnosed 3 months ago but had small swollen nodes in my neck and
    left groin area for awhile.
    I decided to go to a General Surgeon and just have a biopsy and it came back
    Marginal Zone Nodular Non Hodgkin's Lymphoma.
    I have seen HORROR SHOWS with people taking Chemo and Radiation and told the
    Surgeon that I won't go to an Oncologist and
    I asked if he had any other ideas. He asked "WILL YOU ACCEPT THE
    CHALLENGE"...I didn't know what he was referring to but he said
    only Juicing and ALL RAW FOODS and NO BREADS OR GRAINS AND CEREALS....
    SO....had a PET SCAN and it lit up the nodes in 5 places so it's spread
    around but not to any Major organs except a little in the Spleen.
    NOW......3 months on my Protocol. My BP is 110/70 and I'm 68 and it was much
    higher. My weight dropped from 170 to 154 and holding steady.
    My anti oxidant level went from 16,000 ( worst is 10,000 and the best 50,000
    plus is 47,000.
    SO My body IS responding in some ways. I don't have any symptoms except the
    nodes I can fee. Actually I feel Great.
    I Juice for 3-4 drinks a day with carrot, granny apple, celery, brocolli,
    ginger and cabbage.
    I take Reishi and Green Tea Extract, ginger, soy/genistein complex,
    curcumin, resveratrol, dandelion extract and others.
    I eat lots of strawberries, pineapple, blueberries, melons, bananas and
    other fruits and pumpkin seeds, almonds, raisins and sunflower seeds for my
    first meal everyday. For dinner I eat Huge salad with broccoli sprouts and
    many other vegetables and nuts and apples and cranberries and walnuts etc.
    I munch on the nuts all day and LOVE them all. My taste buds changed and a
    little sunflower seed is sweet. I take a powdered green drink once a day and
    take apple cider vinegar every morning and some whey protein powder and
    syllium seeds.
    I deep breath all day and walk twice a day. I also PRAY a LOT and Dry Skin
    Brush.
    I took on my own Nutritionist.....GOD....
    AND Hoping for the best.
    Hope that helps. GOOD LUCK!!!!!!!!!!!!!!!
    Barry
    January 2014
  • ladyc
    I am also on the cisplatin and etoposide.. I have not had any ringing in ears.. I also get a shot of neulasta on the 4th day... I have only had 2 rounds so far. But, the first time with neulasta I had a reaction of rapid heat beat, turned white, weak.. the last time, a week ago. had shot stayed at clinic 45 min to be sure , went to lunch , sat had a few sips of coffee and started getting light headed... had my husbands iced tea and was fine...He is the one that said,both times, I had coffee after and got this reaction...
    Has anyone else gotten this? I go back on the 13th for round 3.. I will let them know... very weird....other than that, I have not had any other problems....
    We will fight to win and WISH HAPPY NEW YEAR TO EVERYONE...
    January 2014
  • ladyc
    Good luck to you.. I was diagnosed in Nov....Keep positive, get mad, angry do what you need and then continue on a positive note... I am thinking of you....
    January 2014
  • shineon6
    Went through this in 2011/12 .... I am doing well as I know you will be soon. Just keep fighting , don't give up! Wishing all the best as well as the strength to win. If you ever need to talk, I'm here
    December 2013
  • GregP_WN
    Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

    https://www.whatnext.com/conditions/cancer/lung-cancer
    There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

    Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

    Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

    Follow Us on Twitter Click Here =>http://bit.ly/XExkce
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    Our Help Page with instructions for the site->http://bit.ly/1aR5165
    GregP 3X Survivor
    Team WhatNext Community Mgr.
    December 2013
  • DaveWaz

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    David
    Founder, WhatNexter
    December 2013