ghorselady

Dear ghorselady, just checking in to see how you are managing with your cancer as you haven't posted in awhile. I have a friend who was recently diagnosed with Uterine papillary serous carcinoma and we are trying to get some idea of what the future looks like...

Hi ghorselady! I see you've elected to follow me. Thanks! Please let me know if I can be of any assistance. Bit of a warning -- I am a bit sarcastic -- I'm a Scorpio; I don't have a choice! Hope all is well in your world.

It goes into a computer program that sorts out the answers without our names being attached. It does help others. I think that there is less chance of our personal info getting loose than we have with our clinics and ACS. before I joined this site, I was already receiving solicitation from UCLA, Scrips, and Mt. Sinai cancer clinics in CA. I also received solicitations from Johns Hopkins, Boston Mass, Sloan-Kettering, and Duke in one of the Carolinas. This was before I was in my clinic- ACS was what I contacted immediately, because I had questions about my first visit. Matter of fact, I was contacted by Email to join this group. I don't know if ACS or my clinic were the ones that passed my info to Whatnext. Anyway, that's my POV. Like the questions about family income- I never answer them.

Missy is allergic to Frontline-flea-tick med. She seemed sort of funky- bad appetite, losing hair all over. Vet said nothing was wrong. Spent lots of money on labs. 2 days after her last dose, she fainted on a walk. A block and a half from the house, and I didn't have a cell phone. It took us almost 2 hours to get home. She'd struggle up (she weighs a 100 lbs.) we'd walk a couple of feet, then I'd sit on the curb til she was ready to try. She shook for several days.

I went online and used different search words- I found some Appalachian coonhound hunters complaining about Frontline doing this to their Walkers. Other hounds didn't seem to have this problem. Frontline made one epileptic, and they put it down- the necropsy should nerve damage. A few others were showing signs of nerve damage. I didn't take her to the vet, we just coddled her, fed her chicken noodle soup and steak.

Last summer, Levi bought Frontline, and she started shaking, then went down like tree. I screamed at Levi- You gave her Frontline! How do you know---Look at her, it just about killed her. He said- Take her to the vet. I screamed the vet says that it's not happening. Frontline doesn't do it. So we coddled her. Now Frontline has side effects of loss of appetite, hair loss, weakness, shaking and fainting. I did call up my vet and ranted about Frontline again.

We all need a spotter at times. At least on a horse, the horse took me home. I just had to hang onto the saddle horn.

Regarding Avastin:My diagnosis was IVb Nov 2012, hysterectomy and chemox6 in winter 2013, returned winter 2014= chemo plus avastin x6, returned winter 2015= chemo x6. Now I am receiving Avastin by itself and suppose to be covered by insurance, but they have denied. No side effects from this as I have received it twice so far. I will be getting it every 3 wks until it doesn;t work or I have too bad of side effects. Please connect with me, as I have heard from no one else on this site having it.

Hi would you email me the name of your gyn dr if you don't mind? I'm having issues with my email where I can't compose an email to you. Should be able to email back tho.

Thanks, hope you are doing well. Yeah onc is great about defending my right to heal. Now only if the rest of the world outside of our cancer realm understood. But I'm asking for a lot lol. Again hope you are well.

We can only do what we can do. What's right for me may not be for you. I think for MOST cancer killing the immune system with chemo and radiation is NOT a good thing long term. Also doing the chemo etc. and then desperately trying to get it back to normal never mind in super health it is a long slog. There are a lot of supplements that have anti angiogenesis and apoptosis qualities and chemo and radiation does not. SO.....Just do the best you can with as much info as you can and then DON'T look Back. I TRY to live like I'm Not Sick but it's not that easy erasing that from the old noggin. I'm going on 19 months and still ok. Nodes in right side of my neck still there and don't know about inside and DON'T want to know...No Pain and everything is still working. Wrote a GREAT New Song yesterday called THE ANGEL BY THE SIDE OF THE ROAD and as long as God Keeps sending them to me I'll keep writing and recording them. Take Care and Keep in Touch!!!
Barry

Glad to have you aboard.
Good Luck !!!

Hi, ghorselady. Sorry so long getting back to you. See we are close in age and diagnosis. Just ask away. I'll be happy to share my experiences with you. Have you received your stage and grade yet? See you have asked about immune system. I took vitamins B 6 and 12, my PCP put me on 5000 Vitamin D. Would like to follow you thru your treatment.

Glad to hear you are recouping well. Take it easy!

Hope your surgery went well and that you are recuperation is going very smooth. Let me know how you are doing and praying for a good pathology report. God be with you.

Hope surgery Went well. Prayers for you.

Morning. Yes, scared is the right word when all of this is thrown at you. Pain is taken care of- as that is a big quality assurance standard in all hospitals. I know it is hard not to worry about what is down the road-( just look at all of my questions- I keep asking too) but concentrate on the surgery and getting through that before you have to attempt the chemo. Believe me the chemo affects all of us so differently, that said, please keep an open mind about recommendations. Many of the quote "side effects" didn't happen for me. I also found that there is a "reprieve" between chemo that you get before the next one. I live for those days and that is what gets me through. My family reminds me daily of that fact. I wish you well as you attempt to quietly contemplate the next days in anticipation of surgery. My thoughts are with you.

Usually you won't be staged until after surgery...it is scary. I am Stage IIIC1. I had my surgery at Henry Ford and feel that I got the best treatment possible. One thing at a time, one day at a time. I have had four of my six rounds of Carboplatin/Paclitaxel chemotherapy. No radiation as of yet, trying to avoid it. Love IronMom45, she is a great source of info, support, and encouragement. Hope all goes well for you.

Hello we live very near one another. Hope you are doing ok and happy to help Any way can.

Greetings. Welcome to What Next. There are lots of great people here. If you have any questions, please use the question tab above -- that way the entire network has access & you'll get a quicker response. I'm glad you found us but sorry for the circumstances that led you here. Wishing you all the best.

Hello and welcome, we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/endometrial-uterine-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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GregP 3X Survivor
WhatNext Community Mgr.

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter