cearnsha

Cearnsha: My husband has and will have more radiation for the bone mets. Based on a recommendation of a doctor friend of mine, we talked about Zometa. It is a drug that you get IV monthly, that helps strengthen the bones, as you are susceptible for pathological fractures with bone mets. Also, they are going to put my husband on Xeloda as a pill chemo for stablizing the cancer and progression of the disease.

cearnsha - I'm so sorry for what you are going through, but know, as you can see from the comments below, that you are not alone. I share both your age and Stage - and, of course, your diagnosis. I have finished a nearly 12 months of treatments, but since they weren't successful, am about to embark on another round of what promises to be very challenging new treatments. Please feel free to ask questions, seek guidance or just sympathy. You'll find this site an excellent source to help you as you move through your treatments. Best regards and luck to you, JMS

Hi cearnsha. I guess I was lucky with my radiation treatments as I didn't have any significant side effects other than some fatigue after I would drive myself home each morning about 30-minutes from the treatment center. The radiologist and cheerful techs at the center turned it into a pleasant experience and the sessions themselves were about 15-minutes, including preparation. Sending a big hug to you that you will have a similar experience to mine. I realize each of our bodies react differently to these foreign onslaughts of treatment modalities. Again, good luck and let us know how you are doing.

cearnsha,
Welcome to What Next, best place on he web for us pancreatic cases. I just finished 9 & 1/2 years of blood work, CT scans with contrast, physical exams and annual blood panels. i am at Vanderbilt in Nashville. Some of the very best surgeons. Doc called last Friday to tell me my CA-19 score which was unchanged at 7, After my next appointment this fall I will be "released from clinic". I tel you this because pancreatic cancer is now being cured. I saw your staging. Did you have The Whipple procedure? Glad to see your chemo mix, very effective with minimal nerve damage. It will be tough, with the radiation you may or may not lose some/all of your hair. Go with it. Shave it off and get a couple of nice scarves or a good wig. Do you have a husband/partner to help you? Near the end of your treatments you will be one sick little lady. You will need, if possible, a caregiver to be with you. But the best news is, you should make it through this horrible interruption of your life but then you should return to your "new normal. Ask any questions, We are all here to help! God Bless..

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/pancreatic-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

You may also find our "Beginner's Guide To Cancer" page helpful Click Here for that=> http://bit.ly/10BQKCi

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

Re; Dearest friend,

My name is Nanthana Chansithipongse, I want to donate part of what I have to
the needy through. You could be surprised why I picked you. But someone has
to do it. I have been diagonalized with Breast and Blood disease which has
defiled all forms of medical treatment and I have been told by my doctor
that my days are numbered on earth.

I have been touched to donate from what I have made from this World to
charity through you for the good work of humanity, rather than allow my
relatives to use my hard earned funds inappropriately after my death. Please
email me favourmicheal24@ymail.com with your contact information such as Your Full Names, Address,
Direct Telephone number and direct email address so I can tell you what you
need to do and also give you more details about my intentions.

Best Regards.
Mrs Nanthana Chansithipongse

I've got neuro endocrine pancreatic cancer... No cure, so all of my care is palliative.... I get a huge long acting shot ( Sandostatin LAR) each 21 days that slows tumor growth and reduces symptoms.
I tolerate the shot fine and so far it is working. I've only had a little bit of tumor growth etc... Since Feb '12.
I've got liver mats on both lobes also...nothing operable.
I do get some pain in my back and on my right side...not everyday.i take a low dose morphine pill that dulls the pain and makes it all manageable.
I still have a 21 yr old only son at home. Thankfully, I can still do about everything... Just not for long periods. Fatigue is an issue.
I wear out quickly and need a nap. I understand that is not only a side effect of the drug, but also of just having cancer. I've been on this shot for a year and am starting to notice joint pain... I understand that can come from long term use...
I do my best to make the most of each day! Do stuff I really feel like doing while I can! Right now, that's spending some time outside planting flowers, trimming bushes, and listening to the birds sing! I'm blessed with a lot of dear friends that I try to keep up with, phone, go to lunch, etc... I'm also spending a lot of my efforts nursing my spirit with prayer group, bible study, church , meditation, and etc! For me, it's imperative to stay in close with the LORD- listening, praising, leaning, depending on His provision and seeking His Will within my circumstance. I have many folks lifting me in prayer daily. Honestly, my faith is what carries me... And the loving kindness of a great family and friends!
If you are a person of faith, lean on it with your whole being! Ask your friends to place you in the arms of the LORD and let Him carry you too!
I wish you the very best!

Welcome to whatnext.com and best wishes to you.

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter