babstravel

I am sorry to read about another recurrence. There are many weapons in the arsenal toda with more in the pipeline. I hope any future treatment is successful or at the very least keeps your condition stable. Always wishing you better days.

Hi lady. Checking in to see how you are doing. Did you decide to retire? I read your update and what the doctor stated. Have you seen the video that kalindria made about living life while on maintenance therapy for ovarian cancer.This site keeps improving with blogs and videos that are very helpful.

Golly babstravel,.

I very rarely actually look at my wall. So I never told you my Zejula story. Cost is alot! But my insurance and the drug company has covered it so far. (Over $17,000 per month).

I started the end of September on 300mg. First 2 weeks, no problems. Then severe acid reflux set in. Added Zantac and Tums. Little improvement. Creatinine went up a bit over normal as well as my liver function test. Acid reflux so bad regurgitating on an empty stomach.

Down to 200mg around Thanksgiving. Held dose for a week (supposed to hold 2 days but it was Thanksgiving and my symptoms took a while to improve). On 200mg had a hacking cough associated with belching, again after anything I ate and sometimes when I woke up on an empty stomach. By now these symptoms were way too much like when I got diagnosed with Ovarian Cancer in 2015. ( Severe acid reflux, poor appetite and feeling full all the time) . Soe did a CT of chest, abdomen and pelvis, all clear. By this dose, Liver Function labs normal but creatinine still up a little over normal.

So Christmas week held dose again. (supposed to hold 2 days, I held 2 weeks, Yes I know, but it was Christmas, my sister's birthday on the 29th and New Year's Eve, my doctor is aware) Restarted at 100mg on January 1st. Creatinine is now normal. Occasional acid reflux, occasional cough but nothing like before. I feel normal and I feel good. (Today is the 29th of January).

Keep in mind everyone responds differently to this drug. I received weekly labs X 4 weeks and then monthly labs X 1 year. We have a slight concern about my hemoglobin and hematocrit. It has dropped a bit since October, Hemoglobin around 11 then is a little over 10 now. Just had my stool checked for hidden blood, (likely negative, no call from them about results and it was a week ago) and my B12 was normal. Platelets are normal. No sign of bleeding anywhere. I had 5 blood transfusions with my chemo last year due to several anemia. It may be the Zejula. Zejula is considered chemo, I was required to sign a chemo consent when I started Zejula. Not only is my oncologist monitoring me closely but the pharmacist calls me regularly to see how I am doing. This is probably TMI. Constipation has been a problem which is improving. Hope all this is helpful.

Thanks for welcoming those with your diagnosis and offering them some advice and hope. It truly helps to have someone with the same type of cancer to let them know that you have been through it and are still here to talk about it. We appreciate you!

Hi lady. Saw your postings welcoming other survivors, thanks so much for the support. Also noted that you will soon be having your last treatment . I hope everything goes well and congratulations.

Hello and welcome, we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/ovarian-and-fallopian-tube-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx. Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall. Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also.

Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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GregP 3X Survivor
WhatNext Community Mgr.

Hi babstravel, welcome to the site. Read your experiences, sorry you had an especially rough time with treatments and surgery. Everyone is so different in their journeys. I was diagnosed IIIC serous epitheal ovarian cancer in 2013. Chemo is no picnic, that's for sure. My greatest side effect was the fatigue, and later chemo brain. Now, three years after my last chemo, brain is functioning much clearer. Please reach out with any questions and talk with other survivors, it helps. It really helped me while going through treatment and continues to be a great source of support today. Nobody knows what we all go through except another survivor. Take care, talk anytime.

Hi, babstravel! Welcome to WhatNext.com!!

I was diagnosed in 2013 with stage IV ovarian cancer and, after treatment and surgery, was cancer free for two-and-a-half years. I went through my initial diagnosis, chemo and surgery. In July of last year, I had a recurrence and am now taking part in a clinical trial which was going pretty well until recently. Surgery and more chemo are in my immediate future. I'm OK with that. Ready for another battle!

WhatNext is a great place to connect with others who can help you, share experiences, answer questions, offer links to resources, and provide moral support. I think you'll like it.

Let me know if you have any questions for me; I'm happy to share whatever I know. All the best!

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter