suzyq

Activity

  • penny364
    Hi, Suzyq, I hope the scrubbies idea in regular swimwear works for you. I guess they could be pinned in place. Mine didn't seem to move much but I didn't do any vigorous exercise either :) I love your idea to just use existing swimsuits. We have enough expenses! Maybe next summer I'll feel differently but I doubt it. Enjoy your water aerobics.
    September 2013
  • penny364
    Hi, Suzi,

    The skin sensitivity has all but disappeared now. Sometimes by night my clothes irritate it and it's a relief to put on a soft pajama top. I'll try the oil you recommend for the scars! Thanks for that info. Hope you're doing better every day and have plans for something fun in the near future, like a cruise.
    September 2013
  • 2Dakota
    I haven't had a bit of trouble, knock on wood, since surgery. Got two of the four drains taken out so far and go in tues for the others, hopefully. Healing nicely from the DEIP flap reconstruction. Can't believe no stitches, all glued shut. Glad to hear yours didn't travel either. We sure are fighters!
    June 2013
  • mistyb
    Hi suzyq~ I hope that you are home and recovering from your surgery.

    I am recovering myself from a dbl masectomy/reconstruction from 5/22. My advice to you is rest as much as you can and dont try to go off of the pain meds too soon!

    Rest, rest,rest!
    June 2013
  • penny364
    Hi, Suzy, I had my lumpectomy on May 20 and pathology results say they didnt get all of the tumor. I'll need a mastectomy now on the right side. I'm considering making it a double because I don't ever want to go through this worry and a cancer diagnosis again. Stage 0 sounded like a little insignificant thing, but it's turning out to be a bigger deal than I thought. I'm pretty down about it.
    May 2013
  • 2Dakota
    I am also high grade. The doctor's are still running tests on heart murmur and kidney disease first to make sure I can handle the extensive surgery. No date has been set for surgery yet. Next week I have a CT Angiogram being done and a first appointment with an oncologist. Finally moving from the diagnosis to treatment. I wish you luck on your upcoming surgery and we both can share our happiness in the end.
    May 2013
  • Nonnie917-89591
    Welcome to the site. I have learned a lot about the different types of cancer out there and how each and every individual deals with it in their lives. This place has given me peace because I know I have a place to come to complain, as you have a place to come to sound off or vent, when I am having a particularly rough day. It has helped me to understand myself and the moods I go through which to me is the biggest help of all and you will find it might do the same for you. We all have our moody days when dealing with cancer and the people on this site are so understanding and friendly and you can't find that anywhere else, I believe.
    May 2013
  • Giraffe
    Be sure you visit often, members are very supportive .
    May 2013
  • Nonnie917-89591
    Welcome to the site Suzyq. You will find a lot of friendly, helpful people on this site. No question is too silly or dumb on this site. They are all taken seriously when they are answered. You won't find a better place to go to sound off either. That is what we are all here for, a place we can go to to sound off when it gets to be too much for us. Is your DCIS invasive or localized? Mine was stage 0 and localized so I didn't have to have any treatment of any kind except I did chose a BL mastectomy because the MRI showed clusters in the left breast and rather than have a triple MRI guided biopsy (because the radiologist didn't read my mammogram right on the right breast) I chose the mastectomy. Did not want that stuff coming back on me. Good luck with your process.
    May 2013
  • Gabba
    Will be thinking and praying for you on the 31st...take one day at a time and remember we are all here for you. god bless!
    May 2013
  • pjmc
    I wish you the best of luck. Let me know if I can do anything to help you. I am HER2 positive & a great listener & supporter
    May 2013
  • BuckeyeShelby
    Hi Suzy. Welcome to What Next. There are lots of great people here. I'm glad you found us but sorry for the circumstances that led you here. Wishing you the best.
    May 2013
  • Nonnie917-89591
    Welcome suzyq. You will find this site very friendly and helpful. No question is silly or dumb, if you have one ask it. Everyone here is friendly and willing to help with whatever you might need.
    May 2013
  • GregP_WN
    Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

    https://www.whatnext.com/conditions/breast-cancer

    There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

    You may also find our "Beginner's Guide To Cancer" page helpful Click Here for that=> http://bit.ly/10BQKCi

    Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

    Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend
    May 2013
  • KateMarie
    Welcome suzyq . I hope you find an abundance of support and encouragement and whatever else you may need here at WhatNext! I'm sorry for the circumstances that led you on this journey, but glad you found your way here. Take care.
    May 2013
  • Gabba
    Welcome to this wonderful site...you can ask questions, get support, vent when needed...your decision to have reconstruction is such a personal choice...certainly your surgeon will advise you and you can and should get a second opinion if you still have questions...I am 67 and I sure would not want a "new" breast to look like my "old" one! I accept that I will never have perky ones again, actually I am not sure they were ever perky!
    I would never advise you one way or the other, lots to think about though...for myself, at my age, I would not go through the reconstruction as I have had enough surgeries to last, what I hope is a long lifetime...I wish you luck in your search for answers and I am sure you will hear from others here...good luck and God bless!
    May 2013
  • DaveWaz

    Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

    Wishing you the best.

    David
    Founder, WhatNexter
    May 2013