princess123

Hey there! We have the same dx. I was diagnosed 2/14/08...coming up on my 8th year of NED! 4 young children, 5 Yrs separated from my husband- very slow divorce proceedings. We went through 4 Yrs of marriage counseling. It just didn't work. He is still bitter and resentful. I'm just happy to be alive and caring for my 4 wonderful kids full time. I'm exhausted about twice a month- but luckily he has the kids that often, so the kids only see me tired and snippy just a couple of days out of the month. I freaked out the last couple of days, (he's picking the kids up this weekend), because I couldn't find anyone on WN who is still surviving IV IBC. But today, by grace, I've found you! How are you? Can we keep in touch? Sending you light and love and lots of hope!

Hi, read what you wrote in the question about stupid cancer comments . I want you to know that no matter what happens, you arent ever alone. I spent 13 years seeking help from a variety of stupid people who had medical degrees, pointing (physically) to a small but classic tumor asking that it be removed and being told it was nothing but a wart or hemmorhoid, that I looked fine and that warts really did not require removal. During that time, I was also living in a house with toxic mold hidden behind the walls (which lijely caused the cancer) and told I had nothing to be upset about, should see a psycho, and that I was an uncooperative patient (doctor terminology for the patient wont take Wellbuterin) and other less than pleasant stuff. I finally had to gain 50 pounds for the tumor, which grew along with the rest of me, to finally be lopped off by a surgeon. That wasnt the end of the idiocy either. Best witches and goblin grins...

Princess123, I noticed that you haven't posted anything in a while. Are you okay?

Hi! Have been through am almost parallel journey but I started last November. Would love to compare IBC, stage 4 notes...
I am her2 pos, mets to liver, bones, breasts and lymphs. Am undergoing adjuvant treatment indefinitely because clinical, PET and counts show cancer is under "control".
Hope to hear from you soon...
Janna

I think being tired is just part of it. You do what you can and don't worry about the rest. Right now I'm 3 weeks in on radiation so I feel really good. What chemo are you starting on Wednesday?

I have been wondering how you are doing. I survived losing all of my hair but I had wigmaker turn it into a wig for me. It's amazing. Did you tumors shrink? Are you feeling better?

I'm glad to see that you're posting again. I hope your new cancer center is wonderful for you. I hope chemo goes well this time.

Princess,
What part of Indiana are you moving too? I see Dr. Bhadia at Community North Hospital outside of Indianapolis. He also has an office at the East office too. He is part of MD Anderson. He is wonderful and considered the top in his field. Good luck to you on moving back.

Hi Princess 123. Remember me? I have been thinking of you and wondering how you are. I shaved my head on Thursday. I hate my bald head worse than I hate cancer.

Hi princess123,
Just wanted to check in and see how you were doing. I hope you are feeling well and in good spirits!

I saw your post on Klou's wall about losing your hair and was surprised to see that you are 59. I am 55 and I just don't know how I can cut my waist length hair. I have cried with my stylist and plan you cut it short, but how do I make myself do it? Any advice?

Hi Princess, I not sure what happend but you use to be able to email another what nexter. I found the pockets on line and posted the link below. Good luck with your MRI.

http://cancervictory.com/products-page/product-category/post-surgical-drain-pockets/

Hi Princess 123,
Thanks for responding. I appreciate it!

Hi Princess 123,
I noticed your post on TopazCat's wall. RE: gal that survived 14 years I was curious to know if she had IBC? Thanks

I was on a hospital program. When I was offered medicare it automatically bounced me out of the hospital program. You don't really have a choice, at least I found in my case that to be true. Be careful. Don't end up with neither coverage. My office visits on medicare are about $20.00. I have been approved for prescription extra help so my meds are either free or $6.50 ea.

Hi! I'm just a little North of you but in the same county. Please remind those folks, politely, if you must, that you have feelings too. Perhaps you are not aware (and it is somewhat doubtful a threat on which to make good) that there are lots of places you can get pet scans and you aren't tied to a place that intentionally or carelessly hurts you. You are VIP, princess123! Please do what you must to protect yourself from careless individuals. I hope this is all far behind you ASAP. I hope you have people with you. Hugz.

The owner of my nail salon has a sister in Korea having chemo treatments so my freak out is starting to subside. I just have to feel well enough on a good white count day. Luckily I can always get an appointment on the day I call. I guess it pays to be a loyal customer

Hi! I just read a post that you were from Monrovia and that your kids and grand kids also went or go there. My girls also went to Monrovia. I have also worked for Monrovia for over 15 years. What a small world!

Princess123, I am a misplaced hoosier living in Texas, mom lives in Stanford outside of Bloomington, sister in Indy. I too am a her2 positive...got a stable pet scan so I am planning a ten day Christmas rode trip with a friend. We are going to drive north until we find snow :-) We have decided to take a mascot and do a photo journal of our mascot having fun. I will take my juicer for making simple carrot/apple juice but otherwise I will be at the mercy of road food. I know you are a secret Queen and I shall be a loyal subject following you, wishing you much success with your treatments, ups, downs, joys...all the stuff of life. Lindy