kerrijan

Hi Kerrijan! I think I have chatted with you before on here. I have had MM for over 2 years. I saw that you have been on revlimid for a while and doing well with it. I have tried taking revlimid, but my platelets stay too low and the revlimid makes them drop even lower. I have been off of it for about 4 months now. My doctor says it is good to take a break from medicine for a short period. I don't go back to him until June. I am really doing well with the MM, except that I got dizzy and fell in house and broke my right ankle. My right foot will be in cash for 6 more weeks. I live alone (widowed) and this is rough. Have you been on any other meds besides revlimid? Thanks for being a member here and your inspiration.
Judy

Hi Kerrijan I will be getting my stem cell transplant i believe in May sometime. I don't have an exact date. But wanted to let you know your positive posts have certainly made me feel good about following through with that option. I was diagnosed 9-27-14 I broke my arm. Turned out to be a lesion and had a wonderful ortho surgeon that placed a rod in the arm. No other lesions in the body. My light chains numbers were at 72 at highest and IGA # was 1700 Numbers reduced to 8.9 Light chains and IGA 338 in normal range. Had a bug bite from August that wasn't clearing up on my leg did a biopsy on it ended up with celulitus,which was awful. Couldn't do high dose chemo because of leg but is so close to being cleared completely. Are you on a maintenance program? Do you feel well now? I have had Taste and appetite changes as well as gastro issues. Dr feels VRD treatment has something to do with those issue. I did have a stem cell harvesting a few weeks ago. 7 million cells collected in 1 day. I was a very active person. Slowed down a little as treatments progressed. Still working but definitely don't have the energy I used to. Does this change after SCT?

I'm so happy to have someone who has been in remission for awhile! I'm one year past my stem cell transplant and still learning to live with the ambiguity and always hoping for another year (just like everyone else)! I'm also the one that benefited so very much from libhurst magnesium tip. I really almost eliminated what was a serious problem for me. I think we have also helped some people with the eating ice tip when you have a SCT. Anyway, sometimes we rant and sometimes we just share but I think we all feel this site is a lifeline, especially for those of use in rural communities without support groups. Welcome!

Hello and welcome, we are happy to have you with us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/multiple-myeloma

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

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GregP 3X Survivor

Hi kerrijan! Congratulations on your NED!!! And thanks for coming here to answer people's questions and offer support!

I just read the profile of @mibrunelle and I think you might be able to offer her some hope, if you don't mind.

Welcome to the WhatNext family! The WhatNext family is made up of people like you who are looking for help or looking to help others. To help you along your journey the WhatNext family has put together a Beginner's Guide to Cancer that I highly recommend you check-out here: http://bit.ly/10BQKCi. Also, please do not hesitate to reach out to others or ask for help.

Wishing you the best.

David
Founder, WhatNexter