gwennm

gwennm, Hope things are going well with you.

So happy to hear your son is doing well. I'm sure the nurses enjoyed the doughnuts!! Best wishes to him!!

I went to my PCP and he had just as many questions as I did. We were both confused about the follow up with my Endo. The Endo gave me 200mCi's of radiation and sent me home. I received a letter 2 weeks later. He explained the post- treatment whole body scan did not show any additional areas of iodine uptake in my body. He said this is reassuring. Then he followed by asking me to return in 6 months to see him for blood tests and an ultrasound.
REALLY SIX months???
I called twice to see if this was correct. Finally I called yesterday morning. I thought perhaps it should have been 6 weeks. The staff finally asked the doctor if this was correct. The doctor wants to see me in 3 months with this follow up. He also told me to follow up with the oncologist at the hospital. I had seen her a long time ago, but did not remember him ever telling me to follow up with her again. My husband did not remember him telling me to follow up either.

I see my PCP this afternoon. Expecting some lab work to be ordered today. I always have a lot of questions for the doctors. Food smells soooooo good, but I still can't taste a thing. It is all about texture right now. The smell of a good cup of coffee as I drink it is my favorite. I also enjoy tapioca , and other puddings. The smell of vanilla makes me think I can taste it. I also have saliva problems. Toast is almost impossible to eat. I chew gum for the smell of it, also it keeps my mouth moist. Tomato based food is nasty, very metallic. I use plastic ware often. This too will pass. It's just a matter of time.
I will discuss the lung with my PCP today. I believe that the high dose of RAI was to help with shrinking the cancer.

How are you doing ? You and I are on a very similar path. I am hungry, and can smell food. I can not taste a thing. I hope everything is going well for you. After the diet we have to be on, I was expecting to enjoy eating again. I'm sure it won't be long before I can taste again. I looked as though I had swallowed a doughnut whole. My neck had swelled awful. That went away pretty quickly. Again I hope you are doing well.

Dear Lord it's Friday again. How many Fridays have I faced with this cancer inside me? I've lost count. But I haven't lost my faith. Because this is the day that every thing turns around for me.

My cancer will be healed this Friday.My pain will go away this Friday. I won't feel sick this Friday.I wont be unloved this Friday. My hair will begin to grow this Friday.I won't want to vomit constantly this Friday.I will thank my doctors and the pharmaceutical companies for all their help this Friday.My family will cry with happiness,this Friday.And I will thank you my GOD for curing me of this disease. This Friday.
I will hear bells in the air and shout horay for me. My eyes open and I wake up. It's only my alarm going off thats right its Friday. I awaken Oh GOD another day with cancer. Oh well I will fight on with GOD at my side and maybe it'll soon be next Friday.the Friday that I'm cured.
BLessings CELLKILLER

Wishing all my friends on What'sNext
a great Sunday filled with hope for the future, and a cure this year 2013
Blessings CELLKILLER

Wishing all my friends on What'sNext
a great Sunday filled with hope for the future, and a cure this year 2013
Blessings CELLKILLER

I was able to find an Endocrinologist in Bangor ME that was willing to follow my doctor's order from Boston for the first RAI. Although I will be going to Boston for this next treatment on the 22nd . My husband and I are driving 2 vehicles as far as Portland. We will drive to Boston together, get my treatment, then drive together back to Portland. I will drive the rest of the way home following him. Too funny...I really trust the doctors at Mass General.
I also feel like this is a waiting game. I found a large lump in my neck(lymph node) in October 2012. Still waiting. I have a wonderful supportive family at home and at work.
I actually turned 59 years old today. I'm very happy to be surrounded by so much love.

Start round 4 of XELODA on Monday 29 of July. Need my friends to think good thoughts for me Blessings CELLKILLER

gwennm, Thank you for such a quick response. My surgery was in January. After my surgery I was on that wonderful diet for 6 weeks. Followed by the nuclear iodine treatment. Then seven weeks of radiation. My next lovely treatment has begun. I have been taken off the thyroid medication. I am one week into taking cytomel, with one week to go. Then two weeks with no medication and that great diet of low iodine. August 19th I have lab work and prep for a full body scan. I get the nuclear iodine treatment on the 22nd of August. I am lucky to have a spare bedroom with a bathroom just down the hallway. The husband and 16 year old will be using the second bathroom upstairs. I hope you are well on your way to recovery. Keep listening to your doctor. I live in central Maine and receive my treatment in Boston.

Psalm 271. The Lord is my light and my salvation whom or what shall I fear

The Lord is the stronghold of my life of whom or what shall I be afraid.

Blessings CELLKILLER

Just checking in to see how you are doing...sending thoughts and prayers your way...fondly, Gabba, aka Grace

I just love you

Blessings CELLKILLER

Finished 3rd week on XELODA 7/21/13
Everything seems to be OK side effects minimal. Pray for me. CELLKILLER

Hi there> Sorry to hear about what you are going through. Please join me on my blog www.papillarythyroidcancerguide.com for some helpful info. I have been through it all. 3 surgeries and 5 RAI treatments. Message me if you have any questions.

I am so sorry about your bx results but it sounds like you are in very good hands based on the fact that you are in the Pittsburgh area...Take a few days to absorb the news...you will make the right choices with your team to give you the best chance of beating this...I will keep you in my prayers and hope all goes well for you with the RAI and scan...God bless

Hi, gwennm! I am here to help. Have no idea if you have checked out a couple of other websites, but I recommend thyca.org and thyroid.org. Also, there is a thyroid cancer support group in your area. Go to http://www.thyca.org/sg/pa_pittsburgh.htm for more info regarding meeting times. There are also phone numbers there. I am certainly willing to walk with you on this journey. If you contact GregP_WN at the bottom of this page, he will give you my email address. You are not alone. Thyca.org has great information that should prove helpful to you. It certainly was to me. You must be your own advocate, first and foremost. I look forward to hearing more from you.

Gwennm - let me restate how to contact me. Scroll down to the bottom right hand corner of this page. Click on "Contact Us". Request to get in touch with me.

Hello and welcome, we are glad you found us. Please feel free to join in the conversations. Here is a link to our cancer dx page for your type of cancer. Take a look at it to get you started on some information. You will notice at the bottom of that page 4 of our active users who have had that journey already, you may wish to contact them for their experience and wisdom. Also, I encourage you to go to the questions page now by clicking on the questions tab at the top of the page and post what is the most pressing issue you have right now. This will introduce you to the community and get you started on the help you need right now.

https://www.whatnext.com/conditions/cancer/thyroid-cancer

There are also subtypes listed on this page to narrow down the type of cancer to match your dx.

You may also find our "Beginner's Guide To Cancer" page helpful Click Here for that=> http://bit.ly/10BQKCi

Also, if you can take a few minutes and fill in some details of your journey so far, it will help others as they try to answer questions for you, it also helps others as they search through the data base to find someone like themselves. Confirming your email will allow you to receive updates and notices from the site when someone answers your questions or writes on your wall.

Thanks for being with us and let me know if I can help you find any information on the site. After you have an opportunity to look the site over and see what great things there are here, we encourage you to invite your friends, family or anyone you know that may be helped by the connections on WhatNext to join the site also. Just click this link to invite them to join. http://www.whatnext.com/recruit-a-friend

Follow Us on Twitter Click Here =>http://bit.ly/XExkce
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GregP
3X Survivor
Team WhatNext Community Mgr.